Search results for ‘Subject term:"end of life care"’ Sort:
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Hospice care in the UK
- Author:
- HOSPICE UK
- Publisher:
- Hospice UK
- Publication year:
- 2016
- Pagination:
- 24
- Place of publication:
- London
Drawing on an analysis of the hospice responses to the Minimum Data Set (MDS) for Specialist Palliative Care Services and Hospice UK data collected for Scotland, this report provides an overview of scope, challenges and opportunities for hospice care in the UK. It provides key statistics on hospice care for 2014-15, including numbers of people accessing support from hospices. The report also details the percentage of people receiving support in different hospice settings, including: community and hospice at home; inpatient hospice care; day hospice and outpatient clinics; bereavement care; and supporting care in other settings. The report focuses on hospices for adults, but also includes a summary of hospice care for babies, children and young people in the UK. It concludes by outlining the wider changes needed to ensure that hospice care is available to everyone at the end of life. These include developing community-based responses, placing death and dying at the centre of public health strategies, better support for families and carers, improved knowledge about people's needs , and long-term planning and reliable funding. (Edited publisher abstract)
Hospice enabled dementia care: the first steps
- Author:
- HOSPICE UK
- Publisher:
- Hospice UK
- Publication year:
- 2015
- Pagination:
- 51
- Place of publication:
- London
This is a guide to assist hospices consider their contribution as local players in the provision of care for people living with, and affected by, a diagnosis of dementia. It explains why dementia care is an increasingly important strategic consideration for palliative and end of life care providers including hospices and considers the degree to which the hospice sector has started to acknowledge the dementia challenge. The document examines the principles underpinning high quality care for people with dementia, their families and carers, and the specific strengths of hospices in taking forward this agenda. The guide sets out what hospices must do to support people with dementia, their families and carers, focusing on: a corporate commitment to reach out to people affected by dementia; a collaborative approach to the development of services and skills in response to the needs of people affected by a diagnosis of dementia; a creative approach to adapting existing models of care to meet new needs and preferences; an evidence-based approach to care and the care environment; and investment in the development and support of its workforce (staff and volunteers). A selection of resources to help hospices achieve high quality care for people with dementia, their families and carers is also included. (Edited publisher abstract)
Equality in hospice and end of life care: challenges and change
- Author:
- HOSPICE UK
- Publisher:
- Hospice UK
- Publication year:
- 2021
- Pagination:
- 53
- Place of publication:
- London
This scoping review provides a snapshot of practice, academic research, progress and ways forward on hospice and end of life care in the UK. The report is themed around different groups and includes examples of good practice, explores reasons why services are still not engaging fully with some parts of our communities, and put forward recommendations for change. The analysis in the report relates to the following groups: people from racialised communities; homeless people; prison population; LGBT people; people living in remote and rural areas; an ageing population, living with frailty and dementia; people living in poverty, deprivation, and with lower socioeconomic status; people living with learning disabilities; and people living with non-malignant conditions. (Edited publisher abstract)
Commissioning and statutory funding arrangements for hospices in England: survey results 2015
- Authors:
- HOSPICE UK, TOGETHER FOR SHORT LIVES
- Publishers:
- Hospice UK, Together for Short Lives
- Publication year:
- 2015
- Pagination:
- 32
- Place of publication:
- London
Presents the findings of an annual survey of local hospices, exploring their experiences of the commissioning and statutory funding environment. The report reveals that funding for hospices is fragile, with more than two thirds of hospices having had their statutory funding frozen or cut by NHS commissioners for 2014/15. More than eight in ten hospices surveyed do not think their hospice is being funded fairly and sustainably by the NHS and in spite of providing a range of social care services, less than a quarter of hospices surveyed reported receiving funding from local authorities to fund this care. Current levels of funding is not sustainable and some hospices have warned they are likely to have to review the services they offer and may not be able to continue to provide the same level of care in the near future. In addition, commissioning and contracting is perceived as too complex, and while they should be regarded as integral to local palliative care provision only in some local areas they are seen as key partners. (Edited publisher abstract)
National survey of patient activity data for specialist palliative care services: minimum data set (MDS): full report for the year 2014-15
- Authors:
- NATIONAL COUNCIL FOR PALLIATIVE CARE, PUBLIC HEALTH ENGLAND, HOSPICE UK
- Publishers:
- National Council for Palliative Care, Public Health England, Hospice UK
- Publication year:
- 2016
- Pagination:
- 107
- Place of publication:
- London
Presents the findings from a survey of specialist palliative care services provided for people in England, Wales and Northern Ireland. The report gives an overview of palliative care provided by hospice, inpatient specialist palliative care units, day care, community care, hospital support, outpatient and bereavement support services. The survey examines details of 126,000 patients cared for in the community, 36,000 patients admitted to palliative or hospice units and 97,000 people seen by hospital teams. It provides breakdowns of numbers of people seen by type of service, age, and diagnosis. Individual sections discuss the findings for each service. Key findings reported include: that at least a third of those with an expected death are seen by palliative and hospice community teams, demonstrating a level of unmet need; 81 per cent of patients supported by Community Specialist Palliative care teams die out of hospital compared to the national average of 52 per cent; and that there has been a steady increase in the proportion of people admitted into specialist palliative care and hospice beds from hospital. (Edited publisher abstract)
National survey of patient activity data for specialist palliative care services: MDS full report for the year 2013-2014
- Authors:
- NATIONAL COUNCIL FOR PALLIATIVE CARE, PUBLIC HEALTH ENGLAND, HOSPICE UK
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2015
- Pagination:
- 157
- Place of publication:
- London
Presents the findings from a survey of specialist palliative care services provided for people in England, Wales and Northern Ireland. The report gives an overview of care provided by hospices, hospital palliative care teams, community teams and outpatient clinics. The report shows that increasing numbers of people are accessing specialist palliative care across all settings - especially community-based services, with the average number of patients per service having risen for all specialist palliative care settings and service types since 2008. Dementia is becoming an increasing issue for community care specialist palliative care teams, with five times as many people with dementia accessing community services in 2013/14 compared with 2008/09. The proportion of older people (aged 85 and older) seen by community teams has also continued to increase, as it has for hospital support teams. People with cancer are still far more likely to access specialist palliative care than those with other terminal conditions, and the disparity is more pronounced in in-patient settings where just 13 per cent people seen had a diagnosis other than cancer. In contrast more than a quarter of people seen in specialist palliative care outpatient settings had a terminal diagnosis other than cancer. The data also show that the numbers of people from black, Asian and minority ethnic communities accessing specialist palliative care appears to remain disproportionately low. (Edited publisher abstract)
Care committed to me: delivering high quality, personalised palliative and end of life care for Gypsies and Travellers, LGBT people and people experiencing homelessness
- Author:
- HOSPICE UK
- Publisher:
- Hospice UK
- Publication year:
- 2018
- Pagination:
- 68
- Place of publication:
- London
This guide looks at how commissioners and service providers can provide personalised end of life care to people in three diverse communities: Gypsies and Travellers, LGBT people and people experiencing homelessness. It is based on project to improve access to personalised end of life care, which included a literature review, focus groups with Gypsies and Travellers and a workshop with professionals from the palliative care, homelessness and wider health sector. The guide includes case studies for each client group, alongside information from the literature review and feedback from the accompanying workshop and focus group activity. It also identifies key five principles to providing good end of life care across all groups. These are: good communication to enable people to make informed decisions about their care; an approach founded on dignity and respect and investing in a relationship of trust; the provision of workforce training and support; enabling partnership working at a strategic level; and recognising that people are all different, so inclusive, equitable care is not about treating everyone in the same way. The guide also highlights the need for better data about different end of life care needs in local communities in order to support effective and more targeted commissioning of services. (Edited publisher abstract)