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End of life care strategy: quality markers consultation
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2008
- Pagination:
- 29p.
- Place of publication:
- London
Information on: the End of Life Care Strategy - promoting high quality care for all adults at the end of life; how the Government's commitment on end of life care will be delivered; and other end of life care-related issues and programmes.
(My) dying is fun: a comedy of disabled misadventures
- Author:
- DAY Christopher
- Publisher:
- Trafford
- Publication year:
- 2007
- Pagination:
- 170p.
- Place of publication:
- Victoria, BC
Can terminal illness ever be fun? At the peak of his career as an eco-architect, Christopher Day developed Motor Neurone (Lou Gehrig's) Disease. Initially, the future seemed bleak, but as the illness progressed, his attitude changed. The more things went wrong, the more hilarious life became. He began to appreciate the gifts illness has brought. (my) Dying is Fun is for anyone, or anyone who knows anyone, who might one day die. Especially, it's for anyone who needs to laugh. This book transforms disability and dying into a testament for life.
Palliative and end of life care in Scotland: the case for a cohesive approach
- Author:
- SCOTTISH PARTNERSHIP FOR PALLIATIVE CARE
- Publisher:
- Scottish Partnership for Palliative Care
- Publication year:
- 2007
- Pagination:
- 64p.
- Place of publication:
- Edinburgh
This report provides recommendations to the Scottish Executive for developing a cohesive approach to palliative and end of life care in Scotland. The work was undertaken with the aim of ensuring equity in access to and standards of palliative and end of life care across Scotland on the basis of clinical need not diagnosis. This report focuses on those elements of palliative care which are likely to be delivered in the last 12 months of life, including both general palliative care and specialist palliative care.
Lessons learned in the sandwich
- Author:
- PETROVICH Anne
- Journal article citation:
- Affilia: Journal of Women and Social Work, 23(3), August 2008, pp.223-230.
- Publisher:
- Sage
In this personal account of caring for an aging father until his death in her home, the author reflects on the personal and professional challenges of being a "sandwich-generation" professional social worker. Both the poignant rewards and stresses of caretaking are described, as are the conflict and confluence of professional and personal roles. The ironies of appearing competent in the professional role while feeling overwhelmed in one's personal life and the need for support from professional colleagues are elaborated on, with concluding comments concerning future challenges and lessons to be learned.
Home comforts
- Journal article citation:
- Community Care, 9.8.07, 2007, pp.32-33.
- Publisher:
- Reed Business Information
Most people want to be cared for and die in their own homes, and the hospice-at-home model allows them to do so. This article looks at the West Cumbria Hospice at Home Service which recently won a GlaxoSmithKline award for its work.
Death and dying: a sociological introduction
- Author:
- HOWARTH Glennys
- Publisher:
- Polity
- Publication year:
- 2007
- Pagination:
- 301p., bibliog.
- Place of publication:
- Cambridge
This book provides an introduction to the key issues in the sociology of death and dying. In recent years, the social sciences have seen an upsurge of interest in death and dying. The fascination with death is reflected in popular media such as newspapers, television documentaries, films and soaps, and, moreover, in the multiplying range of professional roles associated with dying and death. Yet despite its ubiquitous significance, the majority of texts in the field have been written primarily for health professionals. This book breaks with that tradition. It provides a comprehensive discussion of the key topics in death and dying and in so doing demonstrates that the study of mortality is germane to all areas of sociology. The book is organized thematically, utilizing empirical material from cross-national and cross-cultural perspectives. It carefully addresses questions about social attitudes to mortality, the social nature of death and dying, explanations for change and diversity in approaches, and traditional, modern and postmodern experiences of death.
Calling the question of "possible dying" among nursing home residents: triggers, barriers, and facilitators
- Author:
- BERN-KLUG Mercedes
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 2(3), 2006, pp.61-85.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
Glaser and Strauss reported decades ago that in order for a person to be treated as dying, he/she must be defined as dying. Defining nursing home residents as "dying" can be complicated because most residents are in advanced old age with multiple chronic conditions. Using a social construction theoretical framework, this study looks at the step before the declaration of dying, that is, the consideration of the possibility of dying. This qualitative study is a secondary analysis of prospective data collected during 16 months of fieldwork on behalf of 45 nursing home residents whose health was considered declining. The purpose of this paper is to build understanding about the social construction of "possible dying" by reporting triggers that can call the question of possible dying and stimulate the question of possible dying, including families having a sense of treatments they would like to avoid and having the opportunity to talk through options. Findings are discussed in light of basic assumptions of social construction. Implications for social workers include helping residents, families, and staff anticipate and address the possibility of dying, and to reflect these discussion in care plans, as well as the need to be available to help residents and family members with psychosocial issues related to living and dying in the nursing home setting, including the profound issues that can be provoked or exacerbated by resident health status decline and possible dying. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY
Support for people severely affected by MS
- Authors:
- BURMAN Rachel, NEILD Chloe
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2006
- Pagination:
- 30p.
- Place of publication:
- London
This publication seeks to answer the kinds of questions and concerns that people living with severe MS may have. These questions may include: What kinds of complex symptoms are associated with severe MS? What care and support is available? What can be done to plan for the future treatment and care? How can users ensure their wishes are respected? What is palliative care and is it appropriate for people with MS? And, questions about the very end of life.
Death and dying
- Author:
- ROSE Steve
- Journal article citation:
- Community Connecting, 5, Summer 2006, p.10.
- Publisher:
- Community Connecting
The author briefly reports on setting up and facilitating the 'End of Life Choice Group' for people with learning difficulties in Wiltshire. The group aimed to discuss the subject of death and dying and was winner of an award from the National Network of Learning Disability Nurses.
Dying and death
- Author:
- AGE CONCERN
- Publisher:
- Age Concern
- Publication year:
- 2005
- Pagination:
- 20p.
- Place of publication:
- London
The experience of dying and death has changed considerably over the last century. At the beginning of the 20th century, children aged 0-4 were the age group with the highest proportion of deaths. Improvements in public health, including the prevention and treatment of infectious diseases, greatly reduced the proportion of deaths in childhood and early adulthood. By 1951 the position had changed