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Death, dying and bereavement training
- Authors:
- MULBERRY HOUSE, (Producer)
- Publisher:
- Mulberry House
- Publication year:
- 2008
- Pagination:
- (49 mins.), DVD, handouts
- Place of publication:
- Norwich
This DVD aims to equip staff to deal with dying, death and bereavement issues professionally and efficiently but also sensitively. It should help them offer physical and emotional support to someone who is dying and enable them to manage the consequences of death. It deals with practical matters that can sometimes be left out of training in order to help care staff put what they have learned into practice logically and thoughtfully. Eleven handouts are included. Among the subjects covered are: loss; culture and ethics; stages of dying; communication; planning; the body; formalities; notifications; and stages of bereavement.
Developing an education intervention for staff supporting persons with an intellectual disability and advanced dementia
- Authors:
- FAHEY-McCARTHY Elizabeth, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 6(4), December 2009, pp.267-275.
- Publisher:
- Wiley
This study aimed to explore care concerns in supporting people with a learning disability and advanced dementia, and to develop, deliver and evaluate an educational intervention with staff in learning disability settings and specialist palliative care services. Fourteen focus group interviews were conducted with staff across six learning disability services and one specialist palliative care provider in the greater Dublin area. Qualitative descriptive analysis resulted in the emergence of key themes and formed the development of an educational intervention. Pre- and posttest questionnaires assessed responses to a pilot delivery of the educational intervention. Formal feedback from staff indicated that the educational intervention was highly valued and addressed key training concerns. They agreed that the training supported "ageing in place," and the preparation for a "good death" including support for staff, peers and family in their grief and bereavement. An educational intervention in the form of a trainer manual was produced to support cross-service system in-service training on issues of addressing advanced dementia in people with learning disabilities.
Exploring the interface: a survey of neurology nurses' involvement with specialist palliative care services and identification of their training needs
- Authors:
- BRIDGER Jane, SUTTON Lucy, THOMAS Sue
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2008
- Pagination:
- 31p.
- Place of publication:
- London
This document provides results of the survey of neurology nurses that was carried out jointly between National Council for Palliative Care -NCPC- and the Royal College of Nursing Neuroscience Forum. The overriding message from this survey and NCPC’s previous work is the need for the different people caring for those with neurological conditions towards the end of life to come together and work in collaboration, sharing skills and expertise.
Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved: a UK‐wide survey of intellectual disability support staff
- Authors:
- TUFFREY‐WIJNE Irene, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 33(5), 2020, pp.927-938.
- Publisher:
- Wiley
Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690) completed an electronic survey. Detailed data were obtained from staff where a client had died in the past 12 months (n = 111), was terminally ill (n = 41) or had been bereaved (n = 200). Analysis included descriptive and chi‐squared statistics. Results: 52.6% of people with intellectual disability who were terminally ill were told about their illness, and 18.1% were told they would die. Of those experiencing an anticipated bereavement, 32.4% of staff said no one talked about this with them beforehand. A quarter of staff had received training on end of life or bereavement. Conclusion: Death affects many people with intellectual disability. Staff require training and support in communicating death. (Edited publisher abstract)
Talking about end of life care: right conversations, right people, right time
- Author:
- NATIONAL HEALTH SERVICE. National End of Life Care Programme
- Publisher:
- National Health Service. National End of Life Care Programme
- Publication year:
- 2011
- Pagination:
- 32p.
- Place of publication:
- Leicester
Effective communication is essential to deliver quality end of life care. This is the final report from the communication skills pilot project. This project aimed to improve the provision and quality of training for staff to provide them with the confidence and competence to respectfully and compassionately care for individuals and their families towards the end of life. The project funded 12 pilot sites which carried out a training needs analysis, reviewed existing provision and benchmarked it against national competences. They then used a needs-based approach to develop new training plans. Service users and other partners also contributed to the project. This report highlights the project’s findings, and provides key messages regarding why communication skills need to be improved and how to do it. A set of actions to achieve sustainable change are also listed.
The route to success in end of life care: achieving quality in care homes
- Author:
- NATIONAL HEALTH SERVICE. National End of Life Care Programme
- Publisher:
- National Health Service. National End of Life Care Programme
- Publication year:
- 2010
- Pagination:
- 17p.
- Place of publication:
- Leicester
The Department of Health’s End of Life Care Strategy, published in 2008, emphasised the need to raise the quality of care provided to dying people and their loved ones in a variety of settings, including care homes. Although many care homes are enthusiastic about enhancing the quality of care they provide at the end of life, many of their residents die in hospital after an emergency admission
Beyond barriers: learning together
- Author:
- HENDERSON Jenny
- Journal article citation:
- Journal of Dementia Care, 17(1), January 2009, pp.30-32.
- Publisher:
- Hawker
Beyond Barriers was a two year project that aimed to promote a palliative care approach to the care of people in the later stages of dementia living in care homes across Scotland. The project brought together care home staff and relatives to participate in a three-day education programme so they could learn more about palliative care and dying with dementia. A brief summary of the project
End of life issues in the community: linking professional training and public education
- Authors:
- COURY Joanne, STAMBUK Ana
- Journal article citation:
- Revija Za Socijalnu Politiku Journal of Social Policy, 9(3-4), 2002, pp.245-257.
- Publisher:
- University of Zagreb
Links the private realm of awareness of one's own mortality, dying and death and the public sphere of competent and compassionate end-of-life care that helps individuals manage the process of letting go of life. Hospice and palliative care (HPC) programmes have evolved through this linkage. HPC has taken an active role in shaping communal and personal values about death and dying. Using
End of life care in extra care housing
- Author:
- NATIONAL HEALTH SERVICE. National End of Life Care Programme
- Publisher:
- National Council for Palliative Care
This is an updated version of the End of Life Care Learning Resource Pack, which provides practical information and advice for managers and support staff working in extra care housing schemes. It covers a range of issues relating to the care of residents with a life-limiting or progressive condition. (Publisher abstract)
End of life care in extra care housing: learning resource pack for housing, care and support staff
- Authors:
- NATIONAL HEALTH SERVICE. National End of Life Care Programme, HOUSING LEARNING AND IMPROVEMENT NETWORK, INTERNATIONAL LONGEVITY CENTRE UK
- Publisher:
- National Health Service. National End of Life Care Programme
- Publication year:
- 2012
- Pagination:
- 92
- Place of publication:
- London
Extra care housing generally comprises homely, purpose-built independent housing units that feature common spaces, facilities and flexible care services for older people. This is an updated version of the End of Life Care Learning Resource Pack, first published in 2009 (by Housing 21), which provides practical information (including case studies and "top tips") and advice for managers and support staff working in extra care housing schemes. The pack covers a range of issues relating to the care of residents with a life-limiting or progressive condition. Topics covered include: identifying opportunities to start talking about end of life care; the core end of life path care pathway; diversity issues such as care of the body after death; and people's capacity to make decisions as their condition deteriorates. (Edited publisher abstract)