As the End of Life Care Strategy reaches its third anniversary, this document begins by drawing on the report 'Care and compassion' to highlight recent failures to meet the strategy in NHS care for older people. The National Council for Palliative Care and the Dying Matters coalition then present four key collective actions they believe need to be put into practice if society is to change how society cares for dying people. 1) Build capacity and capability in the community; 2) Support staff and professionals at all levels in changing attitudes; 3) Exercise leadership and equip champions for end of life care; and 4) Campaign and mobilise society.
As the End of Life Care Strategy reaches its third anniversary, this document begins by drawing on the report 'Care and compassion' to highlight recent failures to meet the strategy in NHS care for older people. The National Council for Palliative Care and the Dying Matters coalition then present four key collective actions they believe need to be put into practice if society is to change how society cares for dying people. 1) Build capacity and capability in the community; 2) Support staff and professionals at all levels in changing attitudes; 3) Exercise leadership and equip champions for end of life care; and 4) Campaign and mobilise society.
Subject terms:
social care provision, dying, end of life care, health care;
This film aims to encourage providers and commissioners of end of life care to consider everyone in their community. It focuses on the needs of people who are often invisible, including those who are: homeless; in prison; have learning disabilities; are from black, minority ethnic communities; and who have conditions other than cancer. It describes end of life care needs, how to respond and ways to ask people what they want.
This film aims to encourage providers and commissioners of end of life care to consider everyone in their community. It focuses on the needs of people who are often invisible, including those who are: homeless; in prison; have learning disabilities; are from black, minority ethnic communities; and who have conditions other than cancer. It describes end of life care needs, how to respond and ways to ask people what they want.
Subject terms:
needs, palliative care, social care provision, dying;
This book is about providing good end-of-life care in learning disabilities supported living services. Death and dying are parts of our lives that resonate with meaning and emotion. This account provides is a practical introduction.
This book is about providing good end-of-life care in learning disabilities supported living services. Death and dying are parts of our lives that resonate with meaning and emotion. This account provides is a practical introduction.
Subject terms:
learning disabilities, social care provision, death, dying, end of life care;
The National Council for Palliative Care leads the Dying Matters coalition which aims to support changing knowledge, attitudes and behaviours towards dying, death and bereavement, and through this to make ‘living and dying well’ the norm. In November 2012, NCPC came together with a group of voluntary sector partner organisations to hold what is believed to be the first ever national conference
(Edited publisher abstract)
The National Council for Palliative Care leads the Dying Matters coalition which aims to support changing knowledge, attitudes and behaviours towards dying, death and bereavement, and through this to make ‘living and dying well’ the norm. In November 2012, NCPC came together with a group of voluntary sector partner organisations to hold what is believed to be the first ever national conference completely dedicated to discussing the needs of people caring for those approaching the end of life. This report explores five emerging themes from the conference: 1. Carers have their own needs; 2. Carers are expert partners in care; 3. Carers need support in every setting; 4. Carers need to be acknowledged into bereavement; and 5. Caring shouldn’t be a fight. The report has been produced in partnership with Age UK, Carers Trust, Carers UK, Help the Hospices, Macmillan Cancer Support, Marie Curie Cancer Care and Sue Ryder.
(Edited publisher abstract)
Subject terms:
carers, social care provision, end of life care, needs, bereavement, death, dying;
This document is an introductory guide to user involvement in end of life care. It aims to show why it’s important to involve people, the potential benefits, and how to get started. User involvement is about people with personal experience, such as patients and carers, having a genuine stake in how services are commissioned, developed and provided. It is based on: recognition of people with personal experience’s unique expertise and insight, which comes from firsthand knowledge of conditions and services; and the right of patients, families and carers to have a say in how services are delivered. The document considers various problems in involving users in end of life care, and suggests a number of ways of connecting with people. It concludes by considering the way forward.
This document is an introductory guide to user involvement in end of life care. It aims to show why it’s important to involve people, the potential benefits, and how to get started. User involvement is about people with personal experience, such as patients and carers, having a genuine stake in how services are commissioned, developed and provided. It is based on: recognition of people with personal experience’s unique expertise and insight, which comes from firsthand knowledge of conditions and services; and the right of patients, families and carers to have a say in how services are delivered. The document considers various problems in involving users in end of life care, and suggests a number of ways of connecting with people. It concludes by considering the way forward.
Subject terms:
patients, palliative care, social care provision, user participation, carers, dying, end of life care;
Australian Social Work, 63(3), September 2010, pp.250-265.
Publisher:
Taylor and Francis
A data mining study investigated the circumstances of patients dying in hospital and the scope of social work services with this group. The study involved a retrospective review of final admission notes of a random sample of patients who had died in a large hospital in Australia over a 12 month period. It collected data including circumstances of death, CPR (cardio pulmonary resuscitation)
A data mining study investigated the circumstances of patients dying in hospital and the scope of social work services with this group. The study involved a retrospective review of final admission notes of a random sample of patients who had died in a large hospital in Australia over a 12 month period. It collected data including circumstances of death, CPR (cardio pulmonary resuscitation) notation, the incidence of advanced care directives and documentation of patient and family wishes regarding end of life care and CPR, and social work involvement. The findings indicated that the majority of records included some form of documentation about end of life care, including CPR orders, and that family members were more likely to be consulted than patients about these plans. 36% of patients had a social worker involved in their final admission, and of the patients referred to social work, 72% died 'out of hours' (outside daytime hours, Monday to Friday). This article discusses the study and its findings, including key social work interventions and the increasing complexity of end of life decision making in hospital settings.
Subject terms:
hospital social work, patients, social care provision, social workers, advance decision, dying;
This report set outs the current state of provision in palliative care in care homes. This discussion paper has been written as a starting point for consultation with diverse bodies that have an interest in the living and the dying that older people experience at the end-of-life in care homes. It seeks to map out the current context of care for older people in care homes and outline
This report set outs the current state of provision in palliative care in care homes. This discussion paper has been written as a starting point for consultation with diverse bodies that have an interest in the living and the dying that older people experience at the end-of-life in care homes. It seeks to map out the current context of care for older people in care homes and outline the challenges present in seeking to meet older people's needs during this period of their life.
Subject terms:
hospices, nursing homes, needs, palliative care, person-centred care, social care provision, dying;
The specialty of palliative care has traditionally grown out of oncology and there has been little research into the needs of patients dying from causes other than cancer. Few non-cancer patients receive hospice in-patient, home care or day care although a good proportion of hospices say that their services are available to non-cancer patients. As a result, the importance of palliative care for non-cancer patients is now being increasingly recognized internationally, and in the UK a committee reporting to the Department of Health recommended that palliative care should be accessible to all patients who need such care. This book considers the needs and experiences of patients dying from, for instance, stroke, heart disease or dementia by drawing on a range of disciplines and specialties in medicine. The provision of palliative care for patients dying from causes other than cancer raises a number of important questions for policy makers and purchasers. This book summarises what is known about the needs of and appropriate service provision for people dying of causes other than cancer and begins to set a research agenda.
The specialty of palliative care has traditionally grown out of oncology and there has been little research into the needs of patients dying from causes other than cancer. Few non-cancer patients receive hospice in-patient, home care or day care although a good proportion of hospices say that their services are available to non-cancer patients. As a result, the importance of palliative care for non-cancer patients is now being increasingly recognized internationally, and in the UK a committee reporting to the Department of Health recommended that palliative care should be accessible to all patients who need such care. This book considers the needs and experiences of patients dying from, for instance, stroke, heart disease or dementia by drawing on a range of disciplines and specialties in medicine. The provision of palliative care for patients dying from causes other than cancer raises a number of important questions for policy makers and purchasers. This book summarises what is known about the needs of and appropriate service provision for people dying of causes other than cancer and begins to set a research agenda.
Subject terms:
long term conditions, palliative care, policy formulation, social care provision, terminal illness, children, dying;
Current social work research in the United States is explored with reviews of social work in Japan and Canada. The book also looks at such key areas of gerontological social work as aging and mental health, the provision of services in health related systems, death and dying, special issues related to working with African Americans, and coordination between social workers and political
Current social work research in the United States is explored with reviews of social work in Japan and Canada. The book also looks at such key areas of gerontological social work as aging and mental health, the provision of services in health related systems, death and dying, special issues related to working with African Americans, and coordination between social workers and political activists.
Subject terms:
older people, social work, social care provision, African Caribbean people, death, dying, health care;
... palliative care, primary care and community services. Changing trends, for example in public attitudes, are also considered. Among key findings are that the proportion of people dying at home or in care homes increased from 38 per cent in 2008 to 44 per cent in 2012, reflecting the desires of many people to stay at home to die. There are large variations in the proportion of deaths in hospital by local
(Edited publisher abstract)
Public Health England's National End of Life Care Intelligence Network (NEoLCIN) works with partner organisations to collect, analyse and present end of life care intelligence from a wide variety of sources. This report builds on ‘What do we know now that we didn’t know a year ago?’ (NEoLCIN, 2012), and summarises the key findings of the network and its partners over the last year. Topics covered include: preferences of place of care and place of death; inpatient hospital care in the last year of life; social care in the last year of life; different disease groups; costs of care; quality of care; and end of life care education and training. The report also looks at the influence of factors such as marital status and ethnicity on place of death, patient experience, the roles of specialist palliative care, primary care and community services. Changing trends, for example in public attitudes, are also considered. Among key findings are that the proportion of people dying at home or in care homes increased from 38 per cent in 2008 to 44 per cent in 2012, reflecting the desires of many people to stay at home to die. There are large variations in the proportion of deaths in hospital by local authority area, though the reasons for this are complex.
(Edited publisher abstract)
Subject terms:
older people, end of life care, health care, palliative care, social care provision, death, dying, user views;