Report developed for Sue Ryder by Demos exploring the quality of the patient experience of end of life care services, and what can be done to improve this journey through the different fields of health and social care from the patient's perspective. Many people receive care of varying quality, often characterised by delays, a lack of information and insufficient consideration given to the wishes of the patient and their families. Early diagnosis, a high level of personalisation and ongoing seamless support are crucial to delivering a good service and reducing inequalities in end of life care.
Report developed for Sue Ryder by Demos exploring the quality of the patient experience of end of life care services, and what can be done to improve this journey through the different fields of health and social care from the patient's perspective. Many people receive care of varying quality, often characterised by delays, a lack of information and insufficient consideration given to the wishes of the patient and their families. Early diagnosis, a high level of personalisation and ongoing seamless support are crucial to delivering a good service and reducing inequalities in end of life care.
Subject terms:
end of life care, personalisation, death, dying, integrated services, care pathways, palliative care;
Effective co-ordination of a range of services is a crucial aspect of care for people moving towards the end of life, but achieving it can be difficult. End of life care often involves a number of health and social care services and if these fail to work together successfully, the result is likely to be an unsatisfactory standard of care and distress for the person and their family. This film looks at an innovative pilot scheme run by the South of Tyne and Wear Palliative Care Coordinating Centre from Marie Curie's Newcastle Hospice. The Centre offers people at the end of life a coordinated care package and keeps everyone involved in their care fully informed of the person's changing health and social care needs. So far the results of the scheme are promising and there are plans to extend it to other parts of the country. This film has now been revised and is available under the new title 'End of life care: why it is essential to co-ordinate care.'
(Edited publisher abstract)
Effective co-ordination of a range of services is a crucial aspect of care for people moving towards the end of life, but achieving it can be difficult. End of life care often involves a number of health and social care services and if these fail to work together successfully, the result is likely to be an unsatisfactory standard of care and distress for the person and their family. This film looks at an innovative pilot scheme run by the South of Tyne and Wear Palliative Care Coordinating Centre from Marie Curie's Newcastle Hospice. The Centre offers people at the end of life a coordinated care package and keeps everyone involved in their care fully informed of the person's changing health and social care needs. So far the results of the scheme are promising and there are plans to extend it to other parts of the country. This film has now been revised and is available under the new title 'End of life care: why it is essential to co-ordinate care.'
(Edited publisher abstract)
Subject terms:
hospices, integrated services, needs, care planning, dying, end of life care, health needs, integrated care;
Effective co-ordination of a range of services is a crucial aspect of care for people moving towards the end of life, but achieving it can be difficult. End of life care often involves a number of health and social care services and if these fail to work together successfully, the result is likely to be an unsatisfactory standard of care and distress for the person and their family. This film looks at an innovative pilot scheme run by the South of Tyne and Wear Palliative Care Coordinating Centre from Marie Curie's Newcastle Hospice. The Centre offers people at the end of life a coordinated care package and keeps everyone involved in their care fully informed of the person's changing health and social care needs. So far the results of the scheme are promising and there are plans to extend it to other parts of the country. This film was previously available under the title 'End of life care: coordination of care'.
(Edited publisher abstract)
Effective co-ordination of a range of services is a crucial aspect of care for people moving towards the end of life, but achieving it can be difficult. End of life care often involves a number of health and social care services and if these fail to work together successfully, the result is likely to be an unsatisfactory standard of care and distress for the person and their family. This film looks at an innovative pilot scheme run by the South of Tyne and Wear Palliative Care Coordinating Centre from Marie Curie's Newcastle Hospice. The Centre offers people at the end of life a coordinated care package and keeps everyone involved in their care fully informed of the person's changing health and social care needs. So far the results of the scheme are promising and there are plans to extend it to other parts of the country. This film was previously available under the title 'End of life care: coordination of care'.
(Edited publisher abstract)
Subject terms:
care planning, dying, end of life care, health needs, hospices, integrated services, needs, integrated care;
This guide is about enabling people who want to die at home to do so and improving the quality of care they receive. In the context of this guide, "home‟ means the place where a person usually lives. This includes "extra care‟, sheltered housing accommodation and tenancy-based accomodation such as supported living but not care homes. The guide is aimed at practitioners and managers supporting people with end of life care needs across the health, social care and housing sectors.
(Edited publisher abstract)
This guide is about enabling people who want to die at home to do so and improving the quality of care they receive. In the context of this guide, "home‟ means the place where a person usually lives. This includes "extra care‟, sheltered housing accommodation and tenancy-based accomodation such as supported living but not care homes. The guide is aimed at practitioners and managers supporting people with end of life care needs across the health, social care and housing sectors.
(Edited publisher abstract)
Subject terms:
end of life care, death, integrated services, dying, carers, commissioning, costs, integrated care;
NORFOLK COUNTY COUNCIL. Health Overview and Scrutiny Committee
Publisher:
Norfolk County Council
Publication year:
2005
Pagination:
42p., bibliog.
Place of publication:
Norwich
This report provides the findings of a large-scale consultation in Norfolk and Waveney with members of the general public on attitudes and expectations on the subject of death and dying. The aim of the consultation was to ask those who have experienced palliative care services to highlight what they feel was done well and what could have been done better. The consultation included a survey
This report provides the findings of a large-scale consultation in Norfolk and Waveney with members of the general public on attitudes and expectations on the subject of death and dying. The aim of the consultation was to ask those who have experienced palliative care services to highlight what they feel was done well and what could have been done better. The consultation included a survey completed by 524 members of the public, in-depth interviews held with 46 people, and 5 focus group discussions. It also included 65 in-depth interviews with health and social care providers, including people from voluntary services, funeral directors, chaplains, and bereavement counsellors. The findings show that the level of service provision in Norfolk County and Waveney will need to increase in order to allow a real choice for the majority of people who want to be able to die in their own homes. Specialist palliative care services, social care services, and bereavement services suffer from inadequate staffing levels and levels of funding. In spite of a great deal of work done to implement services equitably across the area, access to appropriate palliative care services is a ‘lottery’ and the final place of care is influenced more by disease, provision and resources than choice. The issues which need to be addressed are discussed under the themes of: integration of health and social services; increasing and improving provision; and communication and information.
Subject terms:
integrated services, palliative care, social care provision, user views, choice, death, dying, health care, good practice;