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In death's waiting room: living and dying with dementia in a multicultural society
- Author:
- THE Anne-Mei
- Publisher:
- Amsterdam University Press
- Publication year:
- 2008
- Pagination:
- 203p.
- Place of publication:
- Amsterdam
The story behind In Death’s Waiting Room is a penetrating human drama that concerns us all - as our “greatest generation” continues to age, more and more families are contending with the onset of dementia in their elderly parents and grandparents, a trend that will only continue as the global population of senior citizens continues to grow with certain speed. For this remarkable volume, Anne-Marie The carried out two years of hands-on ethnographic research in an Amsterdam nursing home for patients with various forms of dementia. In Death’s Waiting Room reveals what usually remains hidden in these modern-day centres of care: the decision to stop treatment, the poverty and voodoo rituals of the black Caribbean nursing staff looking after predominantly white patients, the difficulties faced—and caused—by relatives, and the tensions and aggressions between residents. This immensely readable and moving volume also shares the touching moments of humour and compassion, while at the same time forcing us to consider our own potential confrontation with dementia, in our own or our parents’ lives. From conversations with underpaid nurses to confrontations with family visitors who insist on prolonging treatment against all odds, this searing book is a truly necessary guide to some of the most wrenching aspects of old age.
Conversations to remember
- Authors:
- THE KOSH, (Producer), MERWITZER Michael, WILLIAMS Sian, (Directors)
- Publisher:
- The Kosh
- Publication year:
- 2007
- Pagination:
- (44 mins.), DVD
- Place of publication:
- London
Funded by The City Bridge Trust and Comic Relief, this two year video project began in October 2005. It has been developed in collaboration with the Oxford Befriending Network, the Policy Research Institute for Ageing and Ethnicity, St. Christopher's Hospice and Help the Hospices. Conversations to Remember is an intimate portrayal of how people deal with end-of-life issues. People with life-threatening conditions and carers talk freely about what is important to them, ways of coping and in their words “living with dying”. Conversations to Remember gives a voice to those people who are rarely heard and is based on a series of open-ended video interviews with eleven participants, involving a wide range of respondents in terms of age, gender, terminal illness, ethnic background and location. Conversations to Remember is designed to stimulate discussion, to communicate what people dealing with end-of-life issues really think and want and to help health professionals and policy makers develop appropriate services and responses
From the cradle - to beyond the grave?
- Author:
- GILBERT Peter
- Journal article citation:
- Quality in Ageing and Older Adults, 12(3), October 2011, pp.141-151.
- Publisher:
- Emerald
This paper offers an overview of various views of spirituality in relation to dying and death. The author discusses the content and import of a conference held in partnership between Staffordshire University and The National Spirituality and Mental Health Forum on the importance of considering life in the context of human mortality, and the meaning and purpose of our lives. This was one of a series of conferences on the theme of health and multi-belief systems. The conference and its format, including case studies is placed within current debates concerning the meaning of life in the context of death, what might be beyond “the grave” and the issue of assisted dying. In the light of this the author brings into the paper not just philosophical writings but also examples from novels and “popular culture” to highlight the intensity of the dialogue. He believes that considering the perspectives of a variety of major belief systems assists in relating to and caring for the increasing diversity of older people and their carers. As the discourse around assisted dying, belief systems and dignity come more to the fore, staff in health and social care will need time to discuss what the crucial
The role of ethnicity in end-of-life care in care homes for older people in the UK: a literature review
- Authors:
- BADGER Frances, et al
- Journal article citation:
- Diversity in Health and Care, 6(1), March 2009, pp.23-29.
- Publisher:
- Radcliffe Publishing
Care homes for older people are major providers of end-of-life care. There are over half a million deaths a year in the UK, the vast majority occurring among older people, and one in five members of the population dies in a care home. Ensuring the provision of high quality end-of-life care in care homes for older people is an important healthcare issue, and has recently been scrutinised as part of an overall review of end-of-life care in the UK. It is acknowledged that little is known either about the numbers of people from black and minority ethnic groups who are resident in care homes, or about the extent to which their end-of-life care needs are addressed in line with their specific requirements. This paper summarises the current research evidence on cultural issues relating to ethnicity in end-of-life care in care homes, identifying the need for both monitoring and research data on the experiences and perspectives of residents from black and ethnic minorities, and their family carers.
The experience of dying: an ethnographic nursing home study
- Author:
- KAYSER-JONES Jeanie
- Journal article citation:
- Gerontologist, 42(Special Issue III), October 2002, pp.11-19.
- Publisher:
- Oxford University Press
This article reviews the literature on "The Experience of Dying" and presents data from a larger, ongoing study of an ethnography of dying in nursing homes. The purpose of the ethnographic study was to investigate the process of providing end-of-life care to residents who were dying in nursing homes. The review of the literature disclosed that research on the experience of dying is limited; most of the studies have been conducted in acute care hospitals among people who were dying of cancer. The ethnographic study found that lack of attention to cultural needs, cognitive status, inadequate staffing, and inappropriate and inadequate communication between health care providers and nursing home residents and their families were the predominant factors that influenced the experience of dying.