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Let's talk about death and dying: how to have difficult conversations
- Author:
- CARTER Lesley
- Publishers:
- Age UK, Malnutrition Task Force
- Publication year:
- 2017
- Pagination:
- 32
- Place of publication:
- London
This booklet is designed to help people start positive conversations about death with the people they care about to enable them to be sure that people's worries about dying and death are acknowledged. It looks at why it is important to talk about dying, barrier to having conversations about death, questions to talk about, and the physical changes that happen to people as they come to the end (Edited publisher abstract)
Time to choose: making choice at the end of life a reality
- Author:
- MACMILLAN CANCER SUPPORT
- Publisher:
- Macmillan Cancer Support
- Publication year:
- 2013
- Pagination:
- 28
Macmillan's vision is that people who are nearing the end of life will be supported to make decisions that allow them and their family or carers to be prepared for their death; also that their care will be well coordinated and planned so that they die in the place and in the way that they have chosen. This report examines the importance of choice at the end of life and the barriers to such choice. It suggests solutions, for example having greater access to community services, improving planning and coordination, and providing free social care to people at the end of life. It also recommends that the Care Bill currently going through Parliament should make it clear that health services and local authorities have joint responsibility for identifying and signposting carers to information, advice and support. It concludes that there should be a "national choice offer", to ensure those people who want to die at home get the support they need. (Edited publisher abstract)
No dress rehearsals: four key priorities to ensure we get and of life care right first time
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2011
- Pagination:
- 6p.
- Place of publication:
- London
As the End of Life Care Strategy reaches its third anniversary, this document begins by drawing on the report 'Care and compassion' to highlight recent failures to meet the strategy in NHS care for older people. The National Council for Palliative Care and the Dying Matters coalition then present four key collective actions they believe need to be put into practice if society is to change how society cares for dying people. 1) Build capacity and capability in the community; 2) Support staff and professionals at all levels in changing attitudes; 3) Exercise leadership and equip champions for end of life care; and 4) Campaign and mobilise society.
Difficult conversations: making it easier to talk to people with dementia about the end of life
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2011
- Pagination:
- 22p.
- Place of publication:
- London
This booklet provides advice for those caring for someone with dementia, unpaid or professional, who want to talk about end of life wishes to enhance quality of life. It is based on conversations with approximately fifty people affected by dementia; people with dementia; carers and former carers. The booklet briefly highlights why it is important to talk about end of life wishes, important areas to talk about, the consequences if issues aren't discussed and the best time to talk about end of life. Includes a list of useful resources.
Living well: thinking and planning for the end of your life
- Authors:
- HELEN SANDERSON ASSOCIATES, LANCASHIRE County Council
- Publisher:
- HSA Press
- Publication year:
- 2010
- Pagination:
- 30p.
- Place of publication:
- Stockport
A guide to help older people think about and record what is important to them now, and what they want in the future – i.e. end of your life planning. The whole guide, or just the sections that are relevant to an individual, can be completed either individually or with family, friends or staff. It includes sections on: what is my history… my important memories?; thinking about relationships; what does a good day and a bad day look like for me?; what is important to me now, and how I want to be supported; what is working and not working in my life and what do I want to change?; if I could, I would…; what I want and do not want in the future - my hopes and fears; making changes to my life - my action plan. The guide has been based on the person centred thinking tools developed by The Learning Community for Person Centred Practices.
End of life care strategy: quality markers consultation
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2008
- Pagination:
- 29p.
- Place of publication:
- London
Information on: the End of Life Care Strategy - promoting high quality care for all adults at the end of life; how the Government's commitment on end of life care will be delivered; and other end of life care-related issues and programmes.
(My) dying is fun: a comedy of disabled misadventures
- Author:
- DAY Christopher
- Publisher:
- Trafford
- Publication year:
- 2007
- Pagination:
- 170p.
- Place of publication:
- Victoria, BC
Can terminal illness ever be fun? At the peak of his career as an eco-architect, Christopher Day developed Motor Neurone (Lou Gehrig's) Disease. Initially, the future seemed bleak, but as the illness progressed, his attitude changed. The more things went wrong, the more hilarious life became. He began to appreciate the gifts illness has brought. (my) Dying is Fun is for anyone, or anyone who knows anyone, who might one day die. Especially, it's for anyone who needs to laugh. This book transforms disability and dying into a testament for life.
Palliative and end of life care in Scotland: the case for a cohesive approach
- Author:
- SCOTTISH PARTNERSHIP FOR PALLIATIVE CARE
- Publisher:
- Scottish Partnership for Palliative Care
- Publication year:
- 2007
- Pagination:
- 64p.
- Place of publication:
- Edinburgh
This report provides recommendations to the Scottish Executive for developing a cohesive approach to palliative and end of life care in Scotland. The work was undertaken with the aim of ensuring equity in access to and standards of palliative and end of life care across Scotland on the basis of clinical need not diagnosis. This report focuses on those elements of palliative care which are likely to be delivered in the last 12 months of life, including both general palliative care and specialist palliative care.
Death and dying: a sociological introduction
- Author:
- HOWARTH Glennys
- Publisher:
- Polity
- Publication year:
- 2007
- Pagination:
- 301p., bibliog.
- Place of publication:
- Cambridge
This book provides an introduction to the key issues in the sociology of death and dying. In recent years, the social sciences have seen an upsurge of interest in death and dying. The fascination with death is reflected in popular media such as newspapers, television documentaries, films and soaps, and, moreover, in the multiplying range of professional roles associated with dying and death. Yet despite its ubiquitous significance, the majority of texts in the field have been written primarily for health professionals. This book breaks with that tradition. It provides a comprehensive discussion of the key topics in death and dying and in so doing demonstrates that the study of mortality is germane to all areas of sociology. The book is organized thematically, utilizing empirical material from cross-national and cross-cultural perspectives. It carefully addresses questions about social attitudes to mortality, the social nature of death and dying, explanations for change and diversity in approaches, and traditional, modern and postmodern experiences of death.
Support for people severely affected by MS
- Authors:
- BURMAN Rachel, NEILD Chloe
- Publisher:
- Multiple Sclerosis Society
- Publication year:
- 2006
- Pagination:
- 30p.
- Place of publication:
- London
This publication seeks to answer the kinds of questions and concerns that people living with severe MS may have. These questions may include: What kinds of complex symptoms are associated with severe MS? What care and support is available? What can be done to plan for the future treatment and care? How can users ensure their wishes are respected? What is palliative care and is it appropriate for people with MS? And, questions about the very end of life.