This report is a compilation of key findings and information on end of life care that was produced by NEoLCIN and its partners during 2014. It shows that there is a growing understanding within the health sector of what is important to people at the end of life. Key findings from the report include: the proportion of people dying at home or in care homes continues to increase; patients
(Edited publisher abstract)
This report is a compilation of key findings and information on end of life care that was produced by NEoLCIN and its partners during 2014. It shows that there is a growing understanding within the health sector of what is important to people at the end of life. Key findings from the report include: the proportion of people dying at home or in care homes continues to increase; patients with an Electronic Palliative Care Co-ordination System (EPaCCS) record and those receiving palliative care services such as hospice at home, Gold Standards Framework or Macmillan services are more likely to die in the place of their preference; two in five people with dementia die in hospital, indicating that the trend towards increasing hospital deaths for people living with dementia has reversed; factors most important to people at the end of their life were having pain and other symptoms managed effectively, being surrounded by loved ones and being treated with dignity; and more GPs are having conversations with people about their end of life care wishes but 25 per cent still say they have never initiated such a conversation.
(Edited publisher abstract)
Subject terms:
end of life care, palliative care, dementia, dignity, dying;
DEMENTIA INTELLIGENCE NETWORK, NATIONAL END OF LIFE CARE INTELLIGENCE NETWORK
Publisher:
Public Health England
Publication year:
2016
Pagination:
12
Place of publication:
London
Briefing paper which draws on national data to illustrate key information related to people who died with dementia in 2012-14. It focusses on the setting and circumstances of death, and presents figures on the relationship between deprivation and age for dementia deaths, place of death, and comorbidities for people who have died with dementia. It also provides recommendations to help deliver high-quality palliative care to people with end-of-life dementia, which include focusing on dementia specific palliative services, improving the adoption and quality of advanced care planning and advocating GP led holistic reviews for more co-ordinated care. It reports an increase in mortality rate for deaths with a mention of dementia from 2001 to 2014 and found that over half of dementia deaths for people aged 65 years and above occurred in care homes, compared with a quarter of the general population.
(Edited publisher abstract)
Briefing paper which draws on national data to illustrate key information related to people who died with dementia in 2012-14. It focusses on the setting and circumstances of death, and presents figures on the relationship between deprivation and age for dementia deaths, place of death, and comorbidities for people who have died with dementia. It also provides recommendations to help deliver high-quality palliative care to people with end-of-life dementia, which include focusing on dementia specific palliative services, improving the adoption and quality of advanced care planning and advocating GP led holistic reviews for more co-ordinated care. It reports an increase in mortality rate for deaths with a mention of dementia from 2001 to 2014 and found that over half of dementia deaths for people aged 65 years and above occurred in care homes, compared with a quarter of the general population.
(Edited publisher abstract)
Subject terms:
dementia, death, poverty, comorbidity, end of life care, dying;
DEMENTIA INTELLIGENCE NETWORK, NATIONAL END OF LIFE CARE INTELLIGENCE NETWORK
Publisher:
Public Health England
Publication year:
2016
Pagination:
34
Place of publication:
London
Drawing on an analysis of national data, this report provides information on people who have died with a recorded mention of dementia in England. It covers how trends have changed over time, the geographical distribution of deaths with a mention of dementia, demographics of people who have died with dementia, the place of death and the comorbidities recorded on the death certificate. The report is aimed at health and social care commissioners involved in end of life care services to help improve the quality of end-of-life care for people with dementia. The findings suggest that people who live in more deprived areas die with dementia at a younger age than those with dementia who live in more affluent areas. The also data shows that people with dementia are more likely to die in hospitals and care homes and less likely to die at home or in end of life care settings such as hospices. Limitations of the data are also noted, as the analysis is restricted to deaths where dementia was recorded a significant contributory factor, so likely to be an underestimate.
(Edited publisher abstract)
Drawing on an analysis of national data, this report provides information on people who have died with a recorded mention of dementia in England. It covers how trends have changed over time, the geographical distribution of deaths with a mention of dementia, demographics of people who have died with dementia, the place of death and the comorbidities recorded on the death certificate. The report is aimed at health and social care commissioners involved in end of life care services to help improve the quality of end-of-life care for people with dementia. The findings suggest that people who live in more deprived areas die with dementia at a younger age than those with dementia who live in more affluent areas. The also data shows that people with dementia are more likely to die in hospitals and care homes and less likely to die at home or in end of life care settings such as hospices. Limitations of the data are also noted, as the analysis is restricted to deaths where dementia was recorded a significant contributory factor, so likely to be an underestimate.
(Edited publisher abstract)
Subject terms:
death, dying, dementia, end of life care, poverty, comorbidity;
... palliative care, primary care and community services. Changing trends, for example in public attitudes, are also considered. Among key findings are that the proportion of people dying at home or in care homes increased from 38 per cent in 2008 to 44 per cent in 2012, reflecting the desires of many people to stay at home to die. There are large variations in the proportion of deaths in hospital by local
(Edited publisher abstract)
Public Health England's National End of Life Care Intelligence Network (NEoLCIN) works with partner organisations to collect, analyse and present end of life care intelligence from a wide variety of sources. This report builds on ‘What do we know now that we didn’t know a year ago?’ (NEoLCIN, 2012), and summarises the key findings of the network and its partners over the last year. Topics covered include: preferences of place of care and place of death; inpatient hospital care in the last year of life; social care in the last year of life; different disease groups; costs of care; quality of care; and end of life care education and training. The report also looks at the influence of factors such as marital status and ethnicity on place of death, patient experience, the roles of specialist palliative care, primary care and community services. Changing trends, for example in public attitudes, are also considered. Among key findings are that the proportion of people dying at home or in care homes increased from 38 per cent in 2008 to 44 per cent in 2012, reflecting the desires of many people to stay at home to die. There are large variations in the proportion of deaths in hospital by local authority area, though the reasons for this are complex.
(Edited publisher abstract)
Subject terms:
older people, end of life care, health care, palliative care, social care provision, death, dying, user views;