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No dress rehearsals: four key priorities to ensure we get and of life care right first time
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2011
- Pagination:
- 6p.
- Place of publication:
- London
As the End of Life Care Strategy reaches its third anniversary, this document begins by drawing on the report 'Care and compassion' to highlight recent failures to meet the strategy in NHS care for older people. The National Council for Palliative Care and the Dying Matters coalition then present four key collective actions they believe need to be put into practice if society is to change how society cares for dying people. 1) Build capacity and capability in the community; 2) Support staff and professionals at all levels in changing attitudes; 3) Exercise leadership and equip champions for end of life care; and 4) Campaign and mobilise society.
Difficult conversations: making it easier to talk to people with dementia about the end of life
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2011
- Pagination:
- 22p.
- Place of publication:
- London
This booklet provides advice for those caring for someone with dementia, unpaid or professional, who want to talk about end of life wishes to enhance quality of life. It is based on conversations with approximately fifty people affected by dementia; people with dementia; carers and former carers. The booklet briefly highlights why it is important to talk about end of life wishes, important areas to talk about, the consequences if issues aren't discussed and the best time to talk about end of life. Includes a list of useful resources.
Difficult conversations: making it easier to talk about end of life issues with young adults with life-limiting conditions
- Authors:
- NATIONAL COUNCIL FOR PALLIATIVE CARE, TOGETHER FOR SHORT LIVES
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2015
- Pagination:
- 16
- Place of publication:
- London
A guide to help health professionals' talk to young adults with life-limiting conditions about end of life issues. It aims to support professionals to improve quality of life and provide peace of mind for young people and their families, by sharing insights from young people themselves and their families about discussing the end of life. The guide describes feelings they experience when having conversations on this sensitive subject and gives ideas about how to approach it. It also aims to be a useful prompt that young people can use to broach the subject of end of life planning with family, friends and professionals. (Edited publisher abstract)
Who cares? Support for carers of people approaching the end of life: a discussion based on a conference held on 6th November 2012
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2013
- Pagination:
- 20
- Place of publication:
- London
The National Council for Palliative Care leads the Dying Matters coalition which aims to support changing knowledge, attitudes and behaviours towards dying, death and bereavement, and through this to make ‘living and dying well’ the norm. In November 2012, NCPC came together with a group of voluntary sector partner organisations to hold what is believed to be the first ever national conference (Edited publisher abstract)
Getting started: involving people with personal experience
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2010
- Pagination:
- 10p.
- Place of publication:
- London
This document is an introductory guide to user involvement in end of life care. It aims to show why it’s important to involve people, the potential benefits, and how to get started. User involvement is about people with personal experience, such as patients and carers, having a genuine stake in how services are commissioned, developed and provided. It is based on: recognition of people with personal experience’s unique expertise and insight, which comes from firsthand knowledge of conditions and services; and the right of patients, families and carers to have a say in how services are delivered. The document considers various problems in involving users in end of life care, and suggests a number of ways of connecting with people. It concludes by considering the way forward.
End of life treatment: decisions and attitudes of doctors
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2009
- Pagination:
- 8p.
- Place of publication:
- London
This briefing reports on the initial findings from a survey which asked doctors about decisions they had made about the provision, withdrawing or withholding of treatment at the end of life. It also contained questions about doctors’ attitudes to the legalisation of physician-assisted suicide and euthanasia. The purpose of this briefing is to give an overview of the main findings together with some commentary on some of the significant aspects, including 'double effect', the difference between public and medical opinion, and the use of continuous deep sedation.
Introductory guide to end of life care in care homes
- Authors:
- NATIONAL HEALTH SERVICE. End of Life Care Programme, NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2006
- Pagination:
- 14p.
- Place of publication:
- London
... It also contains signposts and other useful resources such as case studies; information on best practice such as the Liverpool Care Pathway for the Dying Patient which was developed to take the best of hospice care to other settings, such as care homes; and the Gold Standards Framework in Care Homes programme.