Search results for ‘Subject term:"downs syndrome"’ Sort:
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The project: building a brighter future
- Author:
- DAVIS Jill
- Journal article citation:
- Learning Disability Today, 10(1), January 2010, pp.34-36.
- Publisher:
- Pavilion
- Place of publication:
- Hove
The transition to adulthood can be stressful for young people with learning disabilities and their families, due to the lack of co-ordinated planning, information and options. Some years ago, the Foundation for People with Learning Disabilities launched a project called ‘What kind of a future?’ to improve the lives of people with Down’s syndrome. This project produced a booklet featuring stories of young people doing exciting things with their lives after leaving full-time education and can be downloaded at www.learningdisabilities.org.uk/what-kind-of-a-future. The project also ran a series of 10 workshops in 2008 and 2009 in Cardiff, Derby and London to help participants plan for their future and to help turn those plans into reality. The aims of the workshops were to ask participants to select topics linked to transition, invite local professionals to share their knowledge about the topics, offer the young people activities at home to enhance learning about the topic, and allow the families to make links with local professionals and organisations. A number of positive outcomes were achieved from the workshops, such as a family acquiring a direct payment that helped their daughter have a social life.
An exploratory study of the “personality” of adolescents and adults with Down syndrome
- Authors:
- LECAVALIER Luc, TASSE Marc J.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 30(2), June 2005, pp.67-74.
- Publisher:
- Taylor and Francis
The plesant and sociable personality of children with Downs syndrome (DS) has received a fair amount of attention in the literature. This study examined the disposition of adolescents and adults with Down Syndrome (DS), while attempting to control for psychopathology. Individuals with DS were divided into two groups according to the presence or absence of psychopathology, and compared to two groups of individuals with nonspecific ID on the 15 subscales of the Reiss Profile MR/DD. Participants across groups were individually matched on gender, level of ID, CA, and severity of psychopathology. Few differences across groups emerged at the subscale and item levels. No differences were found on the Social Contact subscale. Motivational profiles across groups with and without DS were quite similar when psychopathology was taken into consideration.
Actual leisure participation of Norwegian adolescents with Down syndrome
- Authors:
- DOLVA Anne-Stine, KLEIVEN Jo, KOLLSTAD Marit
- Journal article citation:
- Journal of Intellectual Disabilities, 18(2), 2014, pp.159-175.
- Publisher:
- Sage
- Place of publication:
- London
This article reports the actual participation in leisure activities by a sample of Norwegian adolescents with Down syndrome aged 14. Representing a first generation to grow up in a relatively inclusive context, they live with their families, attend mainstream schools, and are part of common community life. Leisure information was obtained in individual, structured parent interviews, and added to existing longitudinal data from a project following the sample. Generally, the leisure activity may be viewed as varying along a continuum - reaching from formal, organized, and assisted activity participation outside home, to informal, self-organized, and independent participation at home. Formal leisure activities were either organized 'for al' or 'adapted for disabled.' The adolescents’ leisure appears as active and social. However, social participation largely involved parents and family, while socializing with other adolescents mainly took place within formal activities adapted for disabled. Clearly, formal and informal activities provide rather different opportunities for social encounters and assistance. (Edited publisher abstract)
Children and young people with Down syndrome: their awareness of Down syndrome and developing self‐perceptions
- Authors:
- DEAKIN Karen, MOORE Derek G., JAHODA Andrew
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(6), 2018, pp.197-1208.
- Publisher:
- Wiley
Background: Past research suggests children with Down syndrome often lack awareness of their disability despite the visibility of their condition. Method: This study used novel tasks to investigate their insight. Twenty‐eight young people with Down syndrome (aged 8–17 years) were recruited, along with control groups of 67 typically developing young people. Three tasks explored the children's awareness of Down syndrome: (a) choice of partner for social activities, (b) sorting photographs and (c) attributing positive or negative descriptors to photographs. Results: All participants expressed a preference to engage in social activities with typically developing peers. Most participants with Down syndrome identified with the typically developing person. Even though all participants attributed more positive descriptors to the photographs of the typically developing individuals, they remained positive about themselves. Conclusion: The early awareness of difference shown by young people with Down syndrome suggests this may play an important role in their developing identities. (Publisher abstract)
Physical activity engagement in young people with Down Syndrome: investigating parental beliefs
- Authors:
- ALESI Marianna, PEPI Annamaria
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 30(1), 2017, pp.71-83.
- Publisher:
- Wiley
Background: Despite the wide documentation of the physical/psychological benefits derived from regular physical activity (PA), high levels of inactivity are reported among people with Down syndrome. This study aims to explore parental beliefs concerning involvement, facilitators/barriers and benefits of PA in young people. Method: Semi-structured interviews were conducted with 13 parents of young people with Down syndrome. Results: Three facilitation themes were identified: (i) the support derived from family; (ii) the availability of APA (Adapted Physical Activity) expert instructors and coaches; (iii) the challenging nature of sport activities. Three barrier themes were identified: (i) the lack of APA expert coaches and specialized gyms; (ii) the characteristics of Down syndrome; and (iii) the parental beliefs and worries. Conclusions: Family plays a key role, as facilitator and barrier, to the participation of their children with Down syndrome in PA. Crucial is the implementation of evidence-based exercise programmes involving people with Down syndrome and their families. (Publisher abstract)
Identifying the barriers and facilitators to participation in physical activity for children with Down syndrome
- Authors:
- BARR M., SHIELDS N.
- Journal article citation:
- Journal of Intellectual Disability Research, 55(11), November 2011, pp.1020-1033.
- Publisher:
- Wiley
Many children with Down syndrome do not undertake the recommended amount of daily physical activity. The aim of this study was to explore the barriers and facilitators to physical activity for children with Down syndrome living in Victoria, Australia. In-depth interviews were conducted with 20 parents of children with Down syndrome aged between 2-17 years to explore their experiences of their child’s engagement in physical activity and the factors that made this easier or more difficult. The interviews were recorded, transcribed and independently coded and analysed by 2 researchers using thematic analysis. Four themes on facilitators of physical activity were identified: the positive role of the family; opportunity for social interaction with peers; structured accessible programmes that make adaptations for children with Down syndrome; and children who were determined to succeed and physically skilled. Four themes on the barriers to physical activity were also identified: characteristics commonly associated with Down syndrome; competing family responsibilities; reduced physical or behavioural skills; and a lack of accessible programmes. The results highlight the important role of families in encouraging and being involved in physical activity with their children with Down syndrome.
What kind of future? Leading change at transition
- Authors:
- DAVIES Jill, MORGAN Hazel
- Journal article citation:
- Learning Disability Today, 8(2), May 2008, pp.27-30.
- Publisher:
- Pavilion
- Place of publication:
- Hove
'What kind of future' is an action-based project focusing on innovative approaches to enhance social inclusion for young people with Down's Syndrome after school or college. This article reports on findings from the project, drawing on the views of the young people and family carers involved.
What kind of a future?: supporting young people with Down's syndrome to lead full lives after they leave school
- Author:
- MORGAN Hazel
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2007
- Pagination:
- 42p.
- Place of publication:
- London
This booklet was produced by the Foundation for People with Learning Difficulties. It is for young people and their families, friends and supporters to read and talk about together. The booklet tells the stories of young people with Down's syndrome and how they come to lead full lives after they leave school. It is written in plain English and there is an easy read summary. At the end of each section there are ideas for young people and information about some easy read websites and booklets. There is a final section on useful addresses and information for families.
Young people with Down syndrome: a preliminary investigation of health knowledge and associated behaviours
- Authors:
- JOBLING Anne, CUSKELLY Monica
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 31(4), December 2006, pp.210-218.
- Publisher:
- Taylor and Francis
Adults with intellectual disability have a range of significant health problems. If they are to live independently, they need to engage in behaviours that are health promoting, as well as avoiding behaviours that might directly lead to ill health. A group of 38 adolescents with Down syndrome (DS) and their families, all from the Down Syndrome Research Program (University of Queensland) participated in this study. A semi-structured interview and a series of tasks were used to collect data on individuals' health knowledge and behaviour relating to 4 aspects of health: hygiene, substance use, exercise and healthy eating. While the majority of young people demonstrated some awareness of basic hygiene, they were not yet at the level where these behaviours could be guaranteed to occur without parental support. Knowledge about substance use, exercise and healthy food was generally poor. Knowledge of most aspects of health assessed in this study was poor and pointed to a gap in the preparation of these young people for independent living.
Early onset dementia: a case of ill-timing?
- Authors:
- TINDALL Linda, MANTHORPE Jill
- Journal article citation:
- Journal of Mental Health, 6(3), June 1997, pp.237-249.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
The experience of dementia for individuals and families, when it is a younger person which is affected by the illness, is rarely considered. Existing specialist literature in this area is analysed in this article. Most work is rooted in a medical context but the social impact is important, particularly in relation to issues of the life-course. Examines the case for specialist service provision and argues for the development of new research agendas to locate the experience of early onset dementia (EOD) within a more coherent theoretical framework.