Search results for ‘Subject term:"downs syndrome"’ Sort:
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Difficulties of diagnosing and managing dementia in people with Down syndrome
- Authors:
- SMITH David, CHICOINE Brian
- Journal article citation:
- British Journal of Psychiatry, 213(5), 2018, pp.668-669.
- Publisher:
- Cambridge University Press
The authors, practising clinicians who provide care to adults with Down syndrome, whilst appreciating the findings of a study by Eady and colleagues into the treatment of people with Down Syndrome who have dementia, report significant concerns about the potential use of the conclusions in practice. The authors believe that the Eady, et al study (referenced in this article) offers false hope and may result in wasted resources. (Original abstract)
Author's reply to: Difficulties of diagnosing and managing dementia in people with Down syndrome
- Authors:
- EADY Nicole, et al
- Journal article citation:
- British Journal of Psychiatry, 213(5), 2018, p.669.
- Publisher:
- Cambridge University Press
Response to Smith and Chicoine on the comments they made about the authors' research into diagnosis and treatmet of people with Down Syndrome who have dementia. (Original abstract)
To screen or not to screen?
- Author:
- MICKEL Andrew
- Journal article citation:
- Community Care, 19.2.09, 2009, pp.20-21.
- Publisher:
- Reed Business Information
A misreporting of scientific research about prenatal screening for autism has exposed the wider issue of support for parents and children who are found to have a condition. The consequences and implications of having screening tests for a variety of conditions are discussed. It is argued that screening programmes should not be available without a pathway into treatment and support.
Living with the diagnosis and treatment of leukaemia in a child with Down's syndrome: a mother's reflection
- Author:
- SELF Donna
- Journal article citation:
- British Journal of Learning Disabilities, 36(3), September 2008, pp.198-202.
- Publisher:
- Wiley
The author discusses the impact of her 2-year-old son's diagnosis and treatment of leukaemia. The article outlines the background to being told he had leukaemia before describing the family dynamics that emerged during this time for their family. The authors story focuses on managing the practicalities of a long stay in hospital with another child at home, the different roles taken on as a mother and father and the impact on the marital relationship. She then discusses the emotional journey including reflections on feelings of helplessness taking care of a vulnerable child and the wider impact on the family, e.g. guilt regarding her other child and her role in managing the emotions of the extended family. She concludes the article by the transition to normality for her son and the rest of the family.
Perspectives: NHS is bound to fail
- Author:
- WHELAN Robert
- Journal article citation:
- Community Care, 26.8.99, 1999, p.10.
- Publisher:
- Reed Business Information
Argues that the NHS is bound to fail people with Down's Syndrome because of its scarce resources and the prejudice of the medical profession.
Parent's and doctors' attitudes toward plastic facial surgery for persons with Down Syndrome
- Authors:
- KATZ Shlomo, KRAVETZ Shlomo, MARKS Yoval
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 22(4), December 1997, pp.265-273.
- Publisher:
- Taylor and Francis
Describes an Israeli study which dealt with the attitudes of parents of children with Down Syndrome and of family doctors towards reconstructive facial surgery for these children. Questionnaires were used to measure the attitudes towards the surgery and the basis for the decision to have the surgery performed. Describes the findings.
Evaluation of brief group-administered instruction for parents to prevent or minimize sleep problems in young children with Down Syndrome
- Authors:
- STORES Gregory, STORES Rebecca
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 17(1), June 2004, pp.61-70.
- Publisher:
- Wiley
The study concerns the unknown value of group instruction for mothers of young children with Down syndrome (DS) in preventing or minimizing sleep problems. Children with DS were randomly allocated to an Instruction group (given basic information about children's sleep) and a Control group for later comparison including objective sleep measures (actometry). As a secondary exercise, parental reports of sleep problems and objective sleep measures were compared in children with DS and a small sample of unimpaired children (U group) of comparable age and sex distribution. Instruction (shown to have improved mothers' knowledge) was associated with improvement in behavioural sleep problem ratings at 6-month follow up with no change in sleep-related breathing problem ratings or actometry findings. Sleep-related breathing problem symptoms and actometry abnormalities were significantly more common in the DS group than in the U group at baseline, with no obvious differences for behavioural sleep problems. Group instruction offers some benefit regarding behavioural sleep problems but not for sleep-related breathing problems to which more attention should be paid in children with DS, with a view to precise diagnosis and treatment.
Sterilisation
- Author:
- HARRIS Peter
- Journal article citation:
- Mental Health and Learning Disabilities Care, 3(9), May 2000, p.315.
- Publisher:
- Pavilion
A man with learning disabilities cannot be sterilised; a women can. The decision rests on the balance of risk to their physical and mental health. Discusses the law using a case example.
Understanding disability: a lifespan approach
- Author:
- QUINN Peggy
- Publisher:
- Sage
- Publication year:
- 1998
- Pagination:
- 256p.,bibliog
- Place of publication:
- Thousand Oaks, CA
Details expected developmental stages for those without disabilities as well as the impact of disability at each of these periods. Begins with diagnosis in infancy or childhood and goes on to provide specific information on four disabilities: Down's Syndrome, visual impairment, cerebral palsy, and spina bifida. Designed to aid social workers to create treatment and care plans, coordinate with other professionals, and work with users and carers.