Search results for ‘Subject term:"downs syndrome"’ Sort:
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Assessment of mental health problems in people with Down syndrome: key considerations
- Author:
- SPENDELOW Jason S.
- Journal article citation:
- British Journal of Learning Disabilities, 39(4), December 2011, pp.306-313.
- Publisher:
- Wiley
Individuals diagnosed with Down syndrome, the most common genetic cause of intellectual disability, are also vulnerable to numerous medical problems. This research review examined the literature relevant to the assessment of psychiatric and behavioural problems in people with Down syndrome. An electronic search was conducted for English-language article published between 1980 and 2010. Search terms included: Down syndrome; psychiatric; depression; anxiety; cognitive; and dementia. Findings revealed that adequate assessment within this population required knowledge, not only of epidemiological findings with respect to psychiatric and behavioural problems, but also an understanding of other important areas including psychometrics, neurocognitive functioning, dementia and other medical issues. The review concluded that a multi-method approach to assessment, using appropriate psychometric tools, is necessary in the assessment of psychiatric and behavioural problems. Further investigation of the behavioural manifestations of underlying medical conditions would assist clinical formulation.
The scene was set for a TV soap episode
- Author:
- HOPKINS Graham
- Journal article citation:
- Community Care, 8.11.07, 2007, pp.32-33.
- Publisher:
- Reed Business Information
A women of 43 with Down's syndrome was displaying delusions which coincided with the broadcast of some TV shows. The author looks at the case and whether the risk assessment meant she could live at home despite her behaviour.
Family expectations and transition experiences for young adults with severe disabilities: does syndrome matter?
- Authors:
- BLACHER Jan, KRAEMER Bonnie R, HOWELL Erica J.
- Journal article citation:
- Advances in Mental Health and Learning Disabilities, 4(1), March 2010, pp.3-16.
- Publisher:
- Emerald
This study examines the differential impact of young adult diagnosis on families during the period of transition from school to adult life. Two hundred and forty six parents of young adults with severe learning disability, aged 18 to 26 years, participated. The young adults were classified into four diagnostic groups: 30 for autism; 68 for Down's syndrome; 95 for cerebral palsy; and 3 to an undifferentiated learning disability group. The parents were asked questions relating to their expectations of their offspring’s transition to living and working environments post high school, and the parental satisfaction and worries were also assessed. The findings showed that more community expectations of work for young adults with Down's syndrome, and more restrictive expectations for young adults with autism, including more expectations that young adults with autism would move out of the family home into a residential environment. Parents of young adults with autism also worried significantly more about various aspects of transition than other parent groups.
The prevalence and incidence of mental ill-health in adults with Down syndrome
- Authors:
- MANTRY D., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 52(2), February 2008, pp.141-155.
- Publisher:
- Wiley
This article reports on a longitudinal cohort study of adults with Down syndrome who received detailed psychiatric assessment (n = 186 at the first time point; n = 134 at the second time point, 2 years later). The prevalence of Down syndrome for the 16 years and over population was 5.9 per 10,000 general population. Point prevalence of mental ill-health of any type, excluding specific phobias, was 23.7% by clinical, 19.9% by Diagnostic Criteria for Psychiatric Disorders for use with Adults with Learning Disabilities/Mental Retardation (DC-LD), 11.3% by ICD-10 Classification of Mental and Behavioural Disorders: Diagnostic Criteria for Research (DCR-ICD-10) and 10.8% by Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition Revised (DSM-IV-TR) criteria. Two-year incidence of mental ill-health of any type was 14.9% by clinical and DC-LD, 9.0% by DCR-ICD-10 and 3.7% by DSM-IV-TR criteria. The highest incidence was for depressive episode (5.2%) and dementia/delirium (5.2%). Compared with persons with intellectual disabilities (ID) of all causes, the standardized rate for prevalence of mental ill-health was 0.6 or 0.4 if organic disorders are excluded, and the standardized incidence ratio for mental ill-health was 0.9 or 0.7 if organic disorders are excluded. Urinary incontinence was independently associated with mental ill-health, whereas other personal factors, lifestyle and supports, and other types of health needs and disabilities were not. The results suggest that mental ill-health is less prevalent in adults with Down syndrome than for other adults with ID. The pattern of associated factors differs from that is found for other adults with ID, with few associations found. This suggests that the protection against mental ill-health is biologically determined in this population, or that there are other factors protective for mental ill-health yet to be identified for the population with Down syndrome.
Early onset dementia: a case of ill-timing?
- Authors:
- TINDALL Linda, MANTHORPE Jill
- Journal article citation:
- Journal of Mental Health, 6(3), June 1997, pp.237-249.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
The experience of dementia for individuals and families, when it is a younger person which is affected by the illness, is rarely considered. Existing specialist literature in this area is analysed in this article. Most work is rooted in a medical context but the social impact is important, particularly in relation to issues of the life-course. Examines the case for specialist service provision and argues for the development of new research agendas to locate the experience of early onset dementia (EOD) within a more coherent theoretical framework.
A serious case review: James
- Authors:
- FLYNN Margaret, ELEY Ruth
- Publisher:
- Suffolk Safeguarding Adults Board
- Publication year:
- 2015
- Pagination:
- 53
- Place of publication:
- Ipswich
Serous case review of Richard Handley, referred to as ‘James’, a 33 year old adult with Down’s syndrome and a moderate learning disability who was also diagnosed with a mental illness and hypothyroidism. He had lifelong problems with constipation. He lived in a Supported Living scheme, Goshawk Close, run by United Response. On 14 November 2012 he was admitted to Ipswich Hospital and following a surgical procedure under anaesthetic to remove impacted faeces, he died in hospital on 17 November 2012. Failings identified in the review include: poor monitoring of physical health needs; a lack of understanding about the use of the Mental Capacity Act; no specific arrangements for the supported living scheme to obtain support from specialist learning disabilities services; and lack of a multi-disciplinary approach to supporting physical and mental health needs. Recommendations include: named care coordinators for adults with learning disabilities and complex support needs; an annual review of health and social care needs; and ensuring services providing care to people with complex support needs have explicit access arrangements with NHS providers such as Community Learning Disability Teams. (Original abstract)
Diagnostic instruments for dementia in older people with intellectual disability in clinical practice
- Authors:
- STRYDOM A., HASSIOTIS A.
- Journal article citation:
- Aging and Mental Health, 7(6), November 2003, pp.431-437.
- Publisher:
- Taylor and Francis
There is a need for simple and reliable screening instruments for dementia in the intellectual disability (ID) population that can also be used to follow their progress, particularly if they are being treated with anti-dementia drugs. Commonly used tests for the general population such as the Mini Mental State Examination (MMSE) are not appropriate for many people with ID. This paper is a literature review of alternative instruments that have been used in research or recommended by experts since 1991 and have the potential to be used as screening instruments. Two types of tests have been identified: those administered to informants, and those that rely on direct assessment of the individual. The most promising informant rated screening tool in most adults with ID including Down syndrome (DS) diagnosis is the Dementia Questionnaire for Persons with Mental Retardation (DMR). However, sensitivity in single assessments is variable and cut-off scores need further optimisation. In those with DS, the Dementia Scale for Down Syndrome (DSDS) has good specificity but mediocre sensitivity. The Test for Severe Impairment and Severe Impairment Battery are two direct assessment tools that show promise as screening instruments, but need further evaluation.
Crucial diagnosis
- Author:
- KERR Diana
- Journal article citation:
- Community Care, 5.2.98, 1998, pp.30-31.
- Publisher:
- Reed Business Information
Looks at how people with Down's Syndrome are particularly prone to Alzheimer's disease, yet people with a dual diagnosis can fall through the net when services are not equipped to meet their specific needs.
A double challenge: working with people who have both learning difficulties and a mental illness; report of a joint CCETSW/Royal College of Psychiatrists symposium
- Author:
- CENTRAL COUNCIL FOR EDUCATION AND TRAINING IN SOCIAL WORK
- Publisher:
- Central Council for Education and Training in Social Work
- Publication year:
- 1992
- Pagination:
- 32p.,bibliogs.
- Place of publication:
- London
Includes papers on: legal and practical protection issues; the Beverley Lewis case - medico-legal aspects; deficiencies in the Mental Health Act 1983; Down's Syndrome and dementia; and the contribution of training.