Search results for ‘Subject term:"downs syndrome"’ Sort:
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Lucy's treatment
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2011
- Place of publication:
- London
This film is a drama set in an accident and emergency department. Lucy is a woman with Down’s syndrome who is resisting treatment for a dog bite. She is with her mother when the nurse comes to assess her. The nurse does not communicate well with Lucy. She is doing a pressurised job, but this cannot excuse her behaviour towards Lucy. The nurse also makes a common mistake of believing she can’t provide treatment which goes against her patient’s wishes. It is Lucy’s mother who explains that where a person lacks capacity to make a decision about treatment, the decision must be made in the person’s best interests. Lucy is given a tetanus injection using a limited amount of restraint. NB This film is no longer available to view.
The impact of ethical beliefs on decisions about prenatal screening tests: searching for justification
- Authors:
- GARCIA Elisa, TIMMERMANS Danielle R. M., VAN LEEUWEN Evert
- Journal article citation:
- Social Science and Medicine, 66(3), February 2008, pp.753-764.
- Publisher:
- Elsevier
Prenatal screening for Down's syndrome and other chromosomal anomalies has become common obstetrical practice. The purpose of this intervention is to provide women with the information needed to make informed reproductive choices. It is assumed that the ethical beliefs of parents play an important role in decision-making about whether to undergo testing, but little is known about their precise significance. More insight into how women conceptualize their choice of using prenatal screening tests may clarify the impact of personal ethical beliefs. With this aim, we conducted qualitative research consisting of semi-structured interviews with 59 women in the Netherlands who were offered a prenatal screening test. The analysis showed that the ethical views between acceptors and decliners showed similar diversity. In contrast with the currently accepted view, we conclude that ethical beliefs are one of the factors implicated in the decision. Women decide about prenatal testing by balancing the information provided by the test against the risks of further investigation, the emotional burden of a disabled child on their well-being and life perspective, as well as on those of family members. Normative moral principles are introduced once the choice is made, namely as factors in justifying and supporting the decision.
Relinquishment for adoption of babies with down's syndrome: parent's response to the diagnosis and the role of health professionals
- Authors:
- DUMARET Annick-Camille, ROSSET Dominique
- Journal article citation:
- Adoption and Fostering, 25(2), Summer 2001, pp.49-55.
- Publisher:
- Sage
Presents a synthesis of research findings based on a study conducted in France between 1990 and 1996. The project aimed to establish a clearer understanding of what infants with Down's Syndrome were given up for adoption, to evaluate the extent of the phenomenon and its evolution over the long term. It also analysed the impact of the diagnosis on the parents' decision about whether to keep the baby or not and highlighted the determining factors in babies being given up for adoption.
Sterilisation
- Author:
- HARRIS Peter
- Journal article citation:
- Mental Health and Learning Disabilities Care, 3(9), May 2000, p.315.
- Publisher:
- Pavilion
A man with learning disabilities cannot be sterilised; a women can. The decision rests on the balance of risk to their physical and mental health. Discusses the law using a case example.
Not even in the queue
- Author:
- WELLARD Sarah
- Journal article citation:
- Community Care, 26.8.99, 1999, pp.24-25.
- Publisher:
- Reed Business Information
As donor organs become more scarce, doctors are increasingly selective with the result that those with Down's syndrome are not chosen for surgery.