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A randomized controlled trial of group Stepping Stones Triple P: a mixed-disability trial
- Authors:
- ROUX Gemma, SOFRONOFF Kate, SANDERS Matthew
- Journal article citation:
- Family Process, 52(3), 2013, pp.411-424.
- Publisher:
- Wiley
Stepping Stones Triple P (SSTP) is a parenting programme designed for families of a child with a disability. The current study involved a randomised controlled trial of Group Stepping Stones Triple P (GSSTP) for a mixed-disability group. Participants were 52 families of children diagnosed with an Autism Spectrum Disorder, Down syndrome, Cerebral Palsy, or an intellectual disability. The results demonstrated significant improvements in parent-reported child behaviour, parenting styles, parental satisfaction, and conflict about parenting. Results among participants were similar despite children's differing impairments. The intervention effect was maintained at 6-month follow-up. The results indicate that GSSTP is a promising intervention for a mixed-disability group. Limitations of the study, along with areas for future research, are also discussed. (Publisher abstract)
The child with special needs: encouraging intellectual and emotional growth
- Authors:
- GREENSPAN Stanley, WIEDER Serena, SIMONS Robin
- Publisher:
- Perseus
- Publication year:
- 1998
- Pagination:
- 496p.bibliog.
- Place of publication:
- Cambridge, MA
Presents a guide to raising a child with special needs. In this essential work they lay out a complete, step-by-step approach for parents, educators, and others who work with developmental problems. Covering all kinds of disabilities, including autism, PDD, language and speech problems, Down syndrome, cerebral palsy, and ADD - the authors offer a new understanding of the nature of these challenges and also specific ways of helping children extend their intellectual and emotional potential.
Aging and developmental disability: current research, programming and practice implications
- Editors:
- HAMMEL Joy, NOCHAJSKI Susan
- Publisher:
- Haworth Press
- Publication year:
- 2000
- Pagination:
- 100p.,bibliogs.
- Place of publication:
- Binghamton, NY
This book explores research findings and practice implications pertaining to normative and disability-related aging experiences and issues. The book discusses the effectiveness of specific interventions targeted toward aging adults with intellectual disabilities such as Down’s syndrome, cerebral palsy, autism, and epilepsy.
Gap analysis of service needs for adults with neurodevelopmental disorders
- Author:
- BURKE Shanna L.
- Journal article citation:
- Journal of Intellectual Disabilities, 23(1), 2019, pp.97-116.
- Publisher:
- Sage
- Place of publication:
- London
In Florida, the Agency for Persons with Disabilities provides waivers for adults with the following types of disabilities: intellectual disability, autism spectrum disorder, cerebral palsy, spina bifida, Down syndrome, and Prader–Willi syndrome. This review examined the peer-reviewed literature to indicate and assess the common needs for individuals with intellectual and developmental disabilities. Current models of service delivery, the efficacy of these services, and remaining gaps in the need fulfilment of individuals within the six diagnostic categorizations of interest were examined. Severity level within each diagnostic category was plotted on a matrix according to whether the needs of individuals were minimal, moderate, severe, or universal. The study found that sexual health education, socialization, and adult-focused medical care are universal needs among the six conditions. The study indicates that health-care professionals must work toward addressing the many unmet needs in comprehensive life span care services for adult individuals with neurodevelopmental disorders. (Edited publisher abstract)
Comparing differences in support needs as perceived by parents of adult offspring with down syndrome, autism spectrum disorder and cerebral palsy
- Authors:
- LEE Chung eun, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(1), 2019, pp.194-205.
- Publisher:
- Wiley
Background: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS), autism spectrum disorder (ASD) and cerebral palsy (CP) regarding support needs of their offspring with intellectual and developmental disabilities (IDD) and their families. Method: Data were collected via a national survey in the United States with 189 parents of adults with IDD. Results: Across the quantitative and qualitative analyses, parents of adults with DS (versus CP and ASD) reported significantly greater recreational, natural supports, more formal services and less future planning barriers. Conclusion: The results indicate that the DS advantage may persist in adulthood regarding support needs. More research is needed to understand different types of support needs. (Edited publisher abstract)
Developmental disability and ageing
- Editors:
- O'BRIEN Gregory, ROSENBLOOM Lewis, (eds.)
- Publisher:
- Mac Keith
- Publication year:
- 2009
- Pagination:
- 131p., bibliog.
- Place of publication:
- London
Aimed at clinicians and others who are engaged in caring for ageing adults with developmental disabilities, this handbook is intended to inform understanding, promote assessment, assist care planning, and improve everyday living for this group of vulnerable individuals. It provides a brief general overview, discusses dementia in the context of developmental disability, and looks at the patterns of ageing of two of the major groups of developmental disabilities, Down syndrome and cerebral palsy, and at other syndromes and their characteristics with ageing. It covers drug treatment for common problems among elderly people with developmental disabilities (including dementia), and considers issues of psychosocial intervention and life planning for ageing individuals with developmental disability. The book provides brief case examples, cites key evidence, and indicates sources of further reading.
Our family, our future: 30 families with disabled children tell their stories
- Author:
- CONTACT A FAMILY
- Publisher:
- Contact a Family
- Publication year:
- 2009
- Pagination:
- 68p.
- Place of publication:
- London
Thirty families from across the UK whose children are affected by a range of disabilities tell their story. Parents talk about their children's achievements, acknowledge the challenges, reflect on their aspirations and fears for the future.
Development and disability
- Author:
- LEWIS Vicky
- Publisher:
- Blackwell
- Publication year:
- 2003
- Pagination:
- 454p.,bibliog.
- Place of publication:
- Oxford
- Edition:
- 2nd
The author reviews research on the development of blind children, deaf children, and children with spina bifida, cerebral palsy, Down's syndrome and autism. In addition, she includes research on children with developmental co-ordination disorder. For each disability, the author provides background information on the nature of the disability, assessment, incidence, and causal factors. She then summarises what is known about the effect of each disability on the development of motor skills, perception, cognition, communication, emotion and social skills. Finally, the practical and theoretical implications of the experimental findings are examined.
Children in need of special care
- Author:
- WEIHS Thomas J
- Publisher:
- Souvenir Press
- Publication year:
- 2000
- Pagination:
- 152p.,list of orgs.,bibliog.
- Place of publication:
- London
- Edition:
- Rev. ed.
Examines various types of learning and developmental disabilities within the context of a theory of child development. After a general review of developmental disturbance and communication disorders, goes on to discuss the special needs of children with autism, Down's syndrome, epilepsy, fragile X syndrome, emotional deprivation, cerebral palsy, and hyperactivity. Ends with a consideration of the disabled child's needs within the family and social environment.
Understanding disability: a lifespan approach
- Author:
- QUINN Peggy
- Publisher:
- Sage
- Publication year:
- 1998
- Pagination:
- 256p.,bibliog
- Place of publication:
- Thousand Oaks, CA
Details expected developmental stages for those without disabilities as well as the impact of disability at each of these periods. Begins with diagnosis in infancy or childhood and goes on to provide specific information on four disabilities: Down's Syndrome, visual impairment, cerebral palsy, and spina bifida. Designed to aid social workers to create treatment and care plans, coordinate with other professionals, and work with users and carers.