Search results for ‘Subject term:"downs syndrome"’ Sort:
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People with a learning disability and dementia: reducing marginalisation
- Author:
- WATCHMAN Karen
- Journal article citation:
- Journal of Dementia Care, 20(5), September 2012, pp.34-38.
- Publisher:
- Hawker
People with a learning disability, especially Down’s syndrome, are at risk of dementia at a younger age. While the voice of people with learning disability and people with dementia are increasingly included in research and practice, the same cannot be said for people who have both a learning disability and dementia. The aim of this literature review was to identify factors that have contributed to this lack of consideration in health and social care policy and practice. The review starts with providing a historical overview, followed by a discussion of the key issues identified in the literature. A series of deficits are identified that are likely to result in a further increase in the marginalisation experienced by people with a learning disability and dementia. These deficits include the lack of a shared diagnosis, lack of staff training and future planning, lack of adapted communication as dementia progresses, lack of accurate statistics of the numbers affected or predicted, lack of clarity over accommodation options and an increase in isolation. The result is a Cinderella service that reflects the limited knowledge of individual experiences and support needs of this group.
Adults with Down's Syndrome and Alzheimer's Disease
- Author:
- McQUILLAN Sharna
- Journal article citation:
- Tizard Learning Disability Review, 8(4), October 2003, pp.4-13.
- Publisher:
- Emerald
Provides an overview of current research in the area and discusses the implications it raises for individuals, carers and service providers. Information on the link between Down's Syndrome and Alzheimer's disease and prevalence rates are given. The clinical symptoms of Alzheimer's disease and a stage model documenting the progression of the disease are presented. Attention is drawn to the problems inherent in assesing and diagnosing Alzheimer's disease in a person with a pre-existing learning disability. The importance of a thorough assessment procedure and guidelines for assessment methods are highlighted. The paper also discusses the management of Alzheimer's disease and focuses on care management practices and recommendations for service provision. Guidelines for supporting individuals include maintaining skills, adopting a person-centred approach, implementing psychosocial interventions and multi-disciplinary care management. Recommendations for the future include increasing education and awareness, implementing screening services, improving assessment methods and developing appropriate services.
Understanding disability: a lifespan approach
- Author:
- QUINN Peggy
- Publisher:
- Sage
- Publication year:
- 1998
- Pagination:
- 256p.,bibliog
- Place of publication:
- Thousand Oaks, CA
Details expected developmental stages for those without disabilities as well as the impact of disability at each of these periods. Begins with diagnosis in infancy or childhood and goes on to provide specific information on four disabilities: Down's Syndrome, visual impairment, cerebral palsy, and spina bifida. Designed to aid social workers to create treatment and care plans, coordinate with other professionals, and work with users and carers.
Dementia: challenges and new directions
- Editor:
- HUNTER Susan
- Publisher:
- Jessica Kingsley
- Publication year:
- 1997
- Pagination:
- 213p.,tables,bibliogs.
- Place of publication:
- London
Explores some of the challenges and new directions in the field of dementia studies. The text is divided into four sections which cover: the context of dementia; specific aspects of dementia including the early onset of dementia, depression, and dementia in people with Down's Syndrome; the user and carer perspective; and the final section looks at service provision including care management, staffing and therapeutic care, therapeutic design and advocacy.