Search results for ‘Subject term:"downs syndrome"’ Sort:
Results 1 - 8 of 8
Ageing and dementia in a longitudinal study of a cohort with Down syndrome
- Authors:
- CARR Janet, COLLINS Suzanne
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(6), 2014, pp.555-563.
- Publisher:
- Wiley
Background: A population sample of people with Down syndrome has been studied from infancy and has now been followed up again at age 47 years. Methods: Intelligence and language skills were tested and daily living skills assessed. Memory/cognitive deterioration was examined using two test instruments. Results: Scores on verbal tests of intelligence changed little. Those on a non-verbal test, on self-help skills and on both memory tests showed some decline, even when the scores of those already suffering from dementia were discounted. Conclusions: At age 47, scores on most tests of even the majority of the cohort (i.e. those not definitely diagnosed with dementia) showed some decline. While this includes the scores of people who may subsequently develop dementia, it may also reflect the normal ageing process in this population. (Publisher abstract)
50 years with Down syndrome: a longitudinal study
- Authors:
- CARR Janet, COLLINS Suzanne
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(5), 2018, pp.743-750.
- Publisher:
- Wiley
Background: A population sample of people with Down syndrome, studied from infancy, has now been followed up at the age of 50 years. From the original sample of 54, there were 27 still in the study at the age of 50, all but four of the losses resulting from deaths. Methods: Intelligence and language skills were tested and daily living skills assessed. Memory/cognitive deterioration was examined using two test instruments. Other aspects of the people's lives were examined via carers' reports. Results: Scores on verbal tests showed little change. Those on a non‐verbal test, on self‐help skills and on both memory tests showed some decline, even when the scores of those already suffering from dementia were discounted. Conclusions: At the age of 50, those not already diagnosed with dementia showed some decline on most tests. While this may include scores of people who subsequently develop dementia, it may also reflect the normal ageing process in this population. (Edited publisher abstract)
Six weeks to 45 years: a longitudinal study of a population with Down syndrome
- Author:
- CARR Janet
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 25(5), September 2012, pp.414-422.
- Publisher:
- Wiley
A population sample of 30 people with Down syndrome, repeatedly studied since infancy, has now been followed up at the age of 45 years. The paper provides an overview of their abilities over their life span to date, focusing particularly on the most recent 24 years. As at all previous occasions from age 30 onwards, intelligence, language, academic abilities and memory were tested, and self-help skills assessed. The most striking finding is the maintenance of test scores. Mean IQs, both non-verbal and verbal, changed little from age 21 to 45. Disregarding the scores of 2 women severely affected by dementia, the remainder of the cohort lost over the whole period an average of less than 1 point in non-verbal IQ and gained over 5 months in verbal age. Scores on memory tests by some of those not yet diagnosed with Alzheimer’s disease declined, in some cases significantly, suggesting that other members of the cohort too may be showing the early signs of the disease. The article concludes that most of the cohort show few indications of decline in ability. However, at the latest stage, a number now are or may be affected by Alzheimer’s disease, and this may require closer monitoring in the future.
The everyday life of adults with Down Syndrome
- Author:
- CARR Janet
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 21(5), September 2008, pp.389-397.
- Publisher:
- Wiley
Aspects of daily life have been considered in a population of people with Down syndrome, followed repeatedly from infancy to 21-years old, and again at 30-, 35- and 40-years old. A control sample of non-disabled babies were seen at the same ages. Parents (usually the mothers) and/or carers were interviewed about the people's health, independence, occupation, leisure activities and social relationships. The health of the people with Down syndrome continued to be reasonably good though less good than that of the controls. Engagement in further education increased and attendance at social education centres decreased, while a minority were in employment. Over two-thirds participated in at least one sport, and although participation decreased over time the fall-off was no more than is seen in the general population. Fewer than half the people with Down syndrome were thought capable of being left in the house alone for over an hour or to go out alone beyond the garden, and social relationships for the majority were limited.
Intellectual and daily living skills of 30 year old with Down's Syndrome: continuation of longitudinal study
- Author:
- CARR Janet
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 13(1), 2000, pp.1-16.
- Publisher:
- Wiley
A cohort of infants with Down's Syndrome (DS) born in 1964 were followed up again at the age of 30. They were tested on intelligence, language, reading and arithmetic, and their daily living skills were assessed. Comparison with the same tests given 9 years earlier showed almost no change. As before, higher scores were found for the women, those brought up at home, and, for language and reading, for those from social class nonmanual (NM) families but fewer of the differences were now significant. These results, demonstrating considerable stability over the period from age 21-30, are discussed with reference to other relevant research.
Families of 30-35 year olds with Down's Syndrome
- Author:
- CARR Janet
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 18(1), March 2005, pp.75-84.
- Publisher:
- Wiley
The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years. A semi-structured interview schedule was used, including items from the handicaps, behaviour and skills schedule and from Holmes' thesis relating to leisure and social life and experience of services. Most parents, now in their late 60s, reported good health and a satisfactory social life. Mothers' mean stress scores were slightly higher in the Down's syndrome group than in the controls: possible explanations for this are discussed. Only one factor relating to the offspring with Down's syndrome could be shown to influence stress. Few adverse effects on the siblings were identified. The study is in agreement with others in showing families of older people with Down's syndrome to be well-adjusted and not unduly stressed.
Patterns of ageing in 30–35-Year-olds with Down's Syndrome
- Author:
- CARR Janet
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 16(1), March 2003, pp.29-40.
- Publisher:
- Wiley
A population sample with Down's syndrome which had been studied repeatedly since infancy, was then followed up again at age 35 years. Intelligence, language, reading and arithmetic were tested and daily living skills were assessed. Two memory tests, the Rivermead Behaviour Memory Test and Oliver and Crayton's Dementia Battery were given at age 30 years and again at age 35 years. Results from all the tests used showed little change from those found at 21 and/or 30 years.
Down's Syndrome: children growing up
- Author:
- CARR Janet
- Publisher:
- Cambridge University Press
- Publication year:
- 1995
- Pagination:
- 215p.,tables,bibliog.
- Place of publication:
- Cambridge
Follows the lives of a population-based cohort of Down's Syndrome subjects from birth to early adulthood. Investigates a wide range of factors, including; abilities; behaviour; discipline; and independence. Also looks at effects on the family, and provision of services.