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Disabled and confined: using art therapy as a coping strategy during the COVID-19 pandemic
- Authors:
- HOUARI Amel Said, HADJOUI Ghouti
- Journal article citation:
- Disability and Society, 37(1), 2022, pp.22-37.
- Publisher:
- Taylor and Francis
The contemporary universal challenge of COVID-19 pandemic put more restrictions to disabled people's social interaction. This paper reports qualitative findings from a short-term art therapy intervention for a person with West Syndrome to examine how art therapy can be used as a coping strategy with the psychological impact of confinement. The data were analysed using Cathy Malchiodi's theory of 'art in therapy' and Edith Kramer's theory of 'art as therapy'. Findings from this study show that the use of art therapy as a coping strategy during the confinement period has clear benefits as it promotes emotional well-being and helps to reduce the mobility limitations caused by disability. The article concludes that art therapy can be used as an alternative way to cope with disability. It aims to positively impact parents and caregivers through highlighting new spots of action. (Edited publisher abstract)
Housing associations and home adaptations: finding ways to say yes
- Authors:
- MACKINTOSH Sheila, FRONDIGOUN Rachel
- Publisher:
- Foundations
- Publication year:
- 2022
- Pagination:
- 152
- Place of publication:
- Glossop
This study looks in depth at how adaptations are funded and delivered – including minor adaptations and use of the Disabled Facilities Grant (DFG); examines how funding arrangements might be improved and the delivery process made quicker and more effective; explores how the moving process might be improved, when adaptations are not the right solution, to see; and aims to encourage a longer term and more strategic view of home adaptations. The report identifies good practice, particularly in LSVTs that control their own adaptations budgets, those fully engaged with their disabled and older tenants, or where there are effective partnership arrangements. However, there are also issues in funding and delivery including splits in legal responsibility, a confusing pattern of funding, a post code lottery in the type of services provided, complex customer journeys and frustration for staff in local authorities and associations. Rather than saying ‘yes’ to adaptations, barriers are often placed in the way and adaptations may be refused, especially in general needs properties. Furthermore, moving home is not easy if a home is unsuitable or not possible to adapt, including because not enough accessible homes are being built and adapted homes are not recycled effectively. Most associations see adapting homes as a minor operational issue and there is a lack of disabled people working in the sector. The report provides recommendations for associations, local authorities, central government, and the Housing Regulator and provides practical solutions to put disabled and older tenants at the heart of decision-making, an inclusive approach to services, and for home adaptations to be part of the new customer-focused inspection regime. (Edited publisher abstract)
The helpful brain? Translations of neuroscience into social work
- Author:
- GIBSON Margaret F.
- Journal article citation:
- British Journal of Social Work, 51(7), 2021, pp.2665-2679.
- Publisher:
- Oxford University Press
What do the many translations of ‘the brain’ from the domain of neuroscience offer to social work researchers? Drawing upon disability studies and critical social work, this article examines trends and tensions across ‘neuro’ writing in social work journals and summarises some commonly recommended practices. Neuroscientific discourse has undeniable cultural influence and offers distinctive forms of evidence to social workers. Social work scholars have strategically translated neuroscience findings to access greater disciplinary status, to counter neo-liberal onslaughts on public services, to communicate on inter-disciplinary teams and to address calls for ‘new’ scholarship. At the same time, many writers readily acknowledge that they use neuroscience to justify or even revive well-established social work practices and theories. A unidirectional strategy of translation across disciplines comes with inherent risks of reinforcing hierarchy, ignoring social difference and undermining the value of social work research and practice. Neurodiversity discourse offers one example of ‘neuro’ argumentation where social justice and neuroscience have intertwined and may present an opportunity for a different type of social work translation. Social workers should be prepared to engage with neuroscience but must do so in ways that consistently reinforce social justice commitments and include a wide array of perspectives. (Edited publisher abstract)
“Good morning, Twitter! What are you doing today to support the voice of people with #disability?”: disability and digital organizing
- Authors:
- SARKAR Tanushree, et al
- Journal article citation:
- Journal of Community Practice, 29(3), 2021, pp.299-318.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philapelphia, USA
Understanding Twitter by individuals and organizations to raise awareness and give voice to the disability community provides important insight into digital discourse around disability. This study examines #disability tweets shared during National Disability Employment Awareness Month in October 2018. Sourced and cleaned, English language tweets (n = 12,963) were analyzed through a mixed-methods approach. As the title of this paper, a tweet from our dataset, suggests, Twitter discourse reflects disability activism and culture as it exists globally. This work highlights important methodological considerations for differentiating the ways individuals and organizations utilize Twitter and highlights the importance of qualitative analysis in this regard. (Original abstract)
A contribution towards a possible re-invigoration of our understanding of the social model of disability’s potential
- Author:
- IACOVOU Maria
- Journal article citation:
- Disability and Society, 36(7), 2021, pp.1169-1185.
- Publisher:
- Taylor and Francis
There has been published work in Disability & Society showing that the social model of disability may be re-invigorated if its emphasis reflects current social conditions and their specific context and if relevant questions are applied to specific impairment labels by each country. In this paper, I further address the issue of terminologies, concerning the notions of impairment, disability, the social model, as well as some terms with negative connotations surrounding these notions. I argue that, in attempting to detangle part of language’s complexity, it may be important to re-focus on the dynamic nature of relevant chameleon-like terminologies and their impact on attitudes towards disability, which seem to be prolonged. This scope, when coupled to a clearer focus on a materialist approach to disability, may act as a catalyst towards a re-invigoration of our understanding of the social model’s potential. (Edited publisher abstract)
Dental disadvantage for people with disability: a potential solution for a problematic area of care
- Authors:
- MANLEY Maxwell Christopher Graham, LANE H. L, DOSHI M.
- Journal article citation:
- Disability and Society, 36(7), 2021, pp.1197-1202.
- Publisher:
- Taylor and Francis
This paper considers the oral health of people with disability and the disadvantage they experience compared to those who do not have a disability. There are many influencing factors for this including service provision and appropriate training for staff. A potential solution is proposed demonstrating that even advanced dental care is possible for people with complex disability. This meets the principal of equitable care for people with disability. The example concerns the provision of a lower anterior bridge for a gentleman with mid to end stage Huntington’s disease and significant uncontrolled choreic movements. Intravenous conscious sedation is used to facilitate complex treatment and to demonstrate a clinical skill which can open doors for the treatment of adults with disability (Edited publisher abstract)
The lack of Care Act 2014: service users’ perspectives of a failing adult social care system
- Author:
- O'NEAL Donald
- Publication year:
- 2021
- Pagination:
- 222
With a focus on people with physical and sensory impairments, this book shows how adult social care users and many disabled people are being failed by the adult social care system. The book requests that social workers practise their profession in compliance with the legislation – the Care Act 2014 – and provide disabled people with the care and support needs they are entitled to. It shows that empathy and honesty is not always at the heart of all actions of some social workers and that disabled people are worthy of respect and that their opinion should be taken seriously, especially with regard to what is best for them. The book includes a collection of case studies illustrating how some disabled people are living in a state of fear and left to struggle without the information and care they need to live a happy life. The case studies provide insight into the alarming and disturbing treatment of some disabled people at the hands of social workers and the adult social care system. (Edited publisher abstract)
‘Your face freezes and so does your life’: a qualitative exploration of adults’ psychosocial experiences of living with acquired facial palsy
- Authors:
- HAMLET Claire, et al
- Journal article citation:
- British Journal of Health Psychology, 26(3), 2021, pp.977-994.
- Publisher:
- Wiley
Objectives: Facial palsy (FP) is a highly visible appearance-affecting condition and can have a significant impact on facial function. Qualitative research focussing on adults’ experiences of living with acquired FP is limited. This study aimed to explore the psychosocial impact of acquired FP and to gain a greater understanding of patients’ experiences of treatment and care in the United Kingdom. Design: A qualitative interview study with individuals living with acquired FP. Methods: Ten adults with acquired FP were recruited. Their experiences were explored using semi-structured telephone interviews. Data were analysed using thematic analysis. Results: Five master themes were identified through the thematic analysis: 1) grappling with a new identity, 2) the psychosocial impact of living with facial palsy, 3) isolation: dealing with ‘one hell of a problem on your own’, 4) a life on hold, 5) coping strategies. Findings indicated high levels of distress and significant challenges in managing the functional and psychosocial changes associated with acquiring FP. Participants expressed grief for their former appearance and identity, with photographs and mirrors acting as agonizing reminders. Many reported a sense of abandonment due to uncoordinated care and, as a result, engaged in an endless and often fruitless pursuit to gain control over FP by experimenting with their own treatment. Many reported the negative impact of their altered facial expressions on social interactions and a fear of being negatively evaluated. Conclusions: This study highlights a pressing need to review how FP is managed in the UK. To improve patient well-being, health care professionals could benefit from FP education, and patients from timely access to psychological support and clearer standards of care following diagnosis. (Edited publisher abstract)
Constructions of childhood: the assessment of respite care for children with disabilities in Sweden
- Authors:
- ENGWALL Kristina, HULTMAN Lill
- Journal article citation:
- European Journal of Social Work, 24(4), 2021, pp.617-628.
- Publisher:
- Taylor and Francis
This study examines how childhoods are constructed within the assessment process concerning respite care for children with disabilities in Sweden. The social workers need to take into consideration the needs of the child with disabilities as well as those of the parents and siblings. The application for respite care compels the social worker to prioritise needs, evaluate children’s development and define what constitutes a good childhood. One of the results of such a process is a construction of childhood for children with disabilities which contains a strong focus on practising and developing, whereas their siblings are perceived as needing relaxation and quality time with their parents. It matches the childhood sociological concepts of ‘becomings’ and ‘beings’, where children with disabilities
Families of children with disabilities helping inform early childhood education
- Authors:
- SWART Katie, et al
- Journal article citation:
- Journal of Children's Services, 16(2), 2021, pp.117-131.
- Publisher:
- Emerald
Purpose: This paper aims to survey and interview parents of young children with disabilities to document their perspectives on what professionals working with their children need to know. Rather than comparing opinions over time or as part of an outcome study, this paper met with participants at a single point in time for a conversation addressing two questions with implications for training, program development and continuing research, namely, to what extent do families believe the Advancing Community College Efforts in Paraprofessional Training (ACCEPT) standards and topics are important to include in educational programs preparing professionals to work with young children with disabilities in inclusive settings (survey)? How satisfied or dissatisfied are families with the practices of early childhood educators working with their children with disabilities in inclusive and other settings (focus group)? What knowledge and skills do families recommend are important for the preparation of early childhood educators working with children with disabilities in inclusive and other settings (focus group)? Design/methodology/approach: An exploratory design was used to gather information to prepare teachers and others to work with children with disabilities in inclusive settings. Parents/caregivers were asked to complete a brief survey prioritizing the importance of the eight ACCEPT standards and topics when preparing early childhood educators for working with children with disabilities in inclusive settings. They all (n = 21) rated each standard and topic as “very important” (4) and provided 184 comments during follow-up interviews that represented positive examples, negative examples and recommendations distributed across the eight focusing standards. Originality/value: This research identified the need for educators to understand the high value and importance of communication with parents of children with disabilities. This study further suggests the need for teachers to value (Edited publisher abstract)