Journal of Integrated Care, 29(3), 2021, pp.295-305.
Publisher:
Emerald
... with disabilities, caregivers, providers and administrators.
(Edited publisher abstract)
Purpose: Self-direction–also known as participant direction, personalization and self-directed care–is a service delivery model that enables people to manage their personal budget and purchase services and supports tailored to their needs based on a person-centered plan. This paper, the outcome of an international learning exchange on self-direction, describes approaches across four countries’ successful strategies, unresolved questions and recommendations to enhance self-direction globally. Design/methodology/approach: The findings are a product of discussions at the 2019 International Initiative for Mental Health Leadership and International Initiative for Disability Leadership Exchange on Advances in Self-Direction. Participants included people who are self-directing, providers and caregivers who support people who are self-directing, advocates, fiscal agents and public managers who administer self-direction from the United States, England, Australia and New Zealand. Findings: In all four countries, people who self-direct exercise high levels of choice and control and are able to individualize their services and supports to promote a good life in the community. The exchange also revealed challenges and possible solutions to improve and expand self-direction. Practical implications: The results of the meeting provide guidance for public managers, providers and advocates for initiating and expanding self-direction. Originality/value: This international meeting was a unique opportunity to compare self-direction across four different countries and across multiple perspectives, including people with disabilities, caregivers, providers and administrators.
(Edited publisher abstract)
Subject terms:
disabilities, self-directed support, personalisation, long term care;
National disability strategy implementation is challenging. Competing needs and interests of government and different stakeholders mean that implementation is rarely straightforward. This study undertakes a critical framing analysis of publically available responses to the draft implementation plan for Australia’s National Disability Strategy (2010–2014) provided by five peak disability organisations. The authors seek to understand the frames that peak bodies advocate in order to further the interests of people experiencing disability while mapping these against the broader Australian disability policy context and good policy practice more generally. The research reveals that the peak bodies promote frames which focus on consistency, responsibility, resourcing, inclusivity, co-production, innovation, leadership, accountability and language. In relation to these frames, the final government implementation plan demonstrates a shift in which process-related frames of resourcing and innovation are incorporated into the plan while the other predominantly actor-oriented frames are excluded and thus represented as natural and incontestable.
(Edited publisher abstract)
National disability strategy implementation is challenging. Competing needs and interests of government and different stakeholders mean that implementation is rarely straightforward. This study undertakes a critical framing analysis of publically available responses to the draft implementation plan for Australia’s National Disability Strategy (2010–2014) provided by five peak disability organisations. The authors seek to understand the frames that peak bodies advocate in order to further the interests of people experiencing disability while mapping these against the broader Australian disability policy context and good policy practice more generally. The research reveals that the peak bodies promote frames which focus on consistency, responsibility, resourcing, inclusivity, co-production, innovation, leadership, accountability and language. In relation to these frames, the final government implementation plan demonstrates a shift in which process-related frames of resourcing and innovation are incorporated into the plan while the other predominantly actor-oriented frames are excluded and thus represented as natural and incontestable.
(Edited publisher abstract)
Purpose: The purpose of this paper is to understand the difficulties in implementing models of housing, and to help address the lack of accessible and affordable private housing for people with disability in Australia. In responding to this aim, the study formulated an ecological map of housing models, which are examined in this paper in terms of their underlying assumptions of vulnerability. Design/methodology/approach: The study involved explanation building, using a multiple case study approach, informed theoretically by an ecological framework. It included organisations, families and individuals with disability. Findings: For the purpose of this paper, the study revealed a direct relationship between the nature of the housing models proposed, and assumptions of vulnerability. In the context of the study findings, the paper suggests that attempts to address individual housing needs are more likely to achieve a positive outcome when they are person driven, from a premise of ability rather than disability. Overall, it invites a “universalistic” way of conceptualising housing issues for people with disability that has international relevance. Practical implications: This paper highlights how assumptions of vulnerability shape environmental responses, such as housing, for people with disability. Originality/value: This paper is based on a study that reconciled a person-centred philosophy with an ecological appreciation of the external and internal factors impacting housing choice for people with disability.
(Publisher abstract)
Purpose: The purpose of this paper is to understand the difficulties in implementing models of housing, and to help address the lack of accessible and affordable private housing for people with disability in Australia. In responding to this aim, the study formulated an ecological map of housing models, which are examined in this paper in terms of their underlying assumptions of vulnerability. Design/methodology/approach: The study involved explanation building, using a multiple case study approach, informed theoretically by an ecological framework. It included organisations, families and individuals with disability. Findings: For the purpose of this paper, the study revealed a direct relationship between the nature of the housing models proposed, and assumptions of vulnerability. In the context of the study findings, the paper suggests that attempts to address individual housing needs are more likely to achieve a positive outcome when they are person driven, from a premise of ability rather than disability. Overall, it invites a “universalistic” way of conceptualising housing issues for people with disability that has international relevance. Practical implications: This paper highlights how assumptions of vulnerability shape environmental responses, such as housing, for people with disability. Originality/value: This paper is based on a study that reconciled a person-centred philosophy with an ecological appreciation of the external and internal factors impacting housing choice for people with disability.
(Publisher abstract)
Disability among Indigenous Australians lies at a nexus between the ongoing impact of European settlement from 1788 and the social effects of living with a disability. Colonisation, with its political, social, economic and cultural concomitants, continues to impact on Indigenous experience, extending to the institutions and services concerned with disability. There is little attention paid to Indigenous Australian disability in general, and the need to decolonise disability has recently been emphasised. Ethnographic research in Brisbane, Australia among Indigenous people with a disability (mostly related to diabetes) confirms the ongoing impact of colonisation. While this experience pervades all aspects of their lives, it also moderates their experience of living with a disability in positive ways. However, while individuals can negotiate their personal experience of disability, the decolonisation of disability services presents challenges that need to be addressed
(Publisher abstract)
Disability among Indigenous Australians lies at a nexus between the ongoing impact of European settlement from 1788 and the social effects of living with a disability. Colonisation, with its political, social, economic and cultural concomitants, continues to impact on Indigenous experience, extending to the institutions and services concerned with disability. There is little attention paid to Indigenous Australian disability in general, and the need to decolonise disability has recently been emphasised. Ethnographic research in Brisbane, Australia among Indigenous people with a disability (mostly related to diabetes) confirms the ongoing impact of colonisation. While this experience pervades all aspects of their lives, it also moderates their experience of living with a disability in positive ways. However, while individuals can negotiate their personal experience of disability, the decolonisation of disability services presents challenges that need to be addressed
(Publisher abstract)
Social Work Education (The International Journal), 31(2), March 2012, pp.246-252.
Publisher:
Taylor and Francis
Place of publication:
Philadelphia, USA
Social work education in Australia, until recently, has either marginalised or neglected disability by omission. With the increasing number of disabled people in the community, the teaching of social work within a disability studies emancipatory paradigm as an essential part of the curriculum is long overdue. As many social work educators have suggested, Australia is at a critical moment in where the policy environment in which social work is embedded has largely been reframed in line with neoliberal trends. For disabled people, this has meant an ongoing state campaign to diminish disability entitlements, from decreasing disability social security regimes through to the rationalisation of adult disability support and care schemes. This article suggests that emerging discourses within the realm of affective equality can provide one possible avenue to expand social workers’ practice to encourage enabling practices under Australian neoliberal welfare-to-work regimes.
Social work education in Australia, until recently, has either marginalised or neglected disability by omission. With the increasing number of disabled people in the community, the teaching of social work within a disability studies emancipatory paradigm as an essential part of the curriculum is long overdue. As many social work educators have suggested, Australia is at a critical moment in where the policy environment in which social work is embedded has largely been reframed in line with neoliberal trends. For disabled people, this has meant an ongoing state campaign to diminish disability entitlements, from decreasing disability social security regimes through to the rationalisation of adult disability support and care schemes. This article suggests that emerging discourses within the realm of affective equality can provide one possible avenue to expand social workers’ practice to encourage enabling practices under Australian neoliberal welfare-to-work regimes.
Subject terms:
social work education, teaching methods, disabilities, ethics;
This article looks in detail at the importance of creative collaboration between disabled and non-disabled people in the production of film and television programmes about disability. There has long been an ‘us’ and ‘them’ mentality driven by an assumption that non-disabled people cannot accurately interpret the disabled experience. Given the history of representations by non-disabled filmmakers, it is easy to understand why many academics and members of the disability community favour the complete control of disability content by disabled people. But this approach has failed the many compelling ‘disabled voices’ that go unheard because they do not reach audiences. The most practical solution is to forge new models of creative collaboration between disabled and non-disabled people, something the author attempted to do with his PhD film, a comedy feature entitled Down Under Mystery Tour. He discovered that the most important tool in such collaborations is the utilisation and management of manipulation, one that prioritises skill and experience and best expresses the unique perspective of intellectually-disabled collaborators.
This article looks in detail at the importance of creative collaboration between disabled and non-disabled people in the production of film and television programmes about disability. There has long been an ‘us’ and ‘them’ mentality driven by an assumption that non-disabled people cannot accurately interpret the disabled experience. Given the history of representations by non-disabled filmmakers, it is easy to understand why many academics and members of the disability community favour the complete control of disability content by disabled people. But this approach has failed the many compelling ‘disabled voices’ that go unheard because they do not reach audiences. The most practical solution is to forge new models of creative collaboration between disabled and non-disabled people, something the author attempted to do with his PhD film, a comedy feature entitled Down Under Mystery Tour. He discovered that the most important tool in such collaborations is the utilisation and management of manipulation, one that prioritises skill and experience and best expresses the unique perspective of intellectually-disabled collaborators.
People with disabilities in the United States, Australia and the United Kingdom experience high unemployment rates. In a recent OECD high-level policy forum on Sickness, Disability and Work, the main policy message was the need for a culture of inclusion; with a dual focus on short-term active policy interventions and long-term structural reform. However, disability rights are hard to put policy. It then provides 3 national examples, from the US, the UK and Australia, of active labour market policy interventions for transitioning people with disabilities from welfare to work. The policy examples are analysed in the context of human rights and neoliberalism. The paper explores to what extent new approaches to activation policies are facilitating parity of participation for people with disabilities and factors that prevent these policies from being more effective.
People with disabilities in the United States, Australia and the United Kingdom experience high unemployment rates. In a recent OECD high-level policy forum on Sickness, Disability and Work, the main policy message was the need for a culture of inclusion; with a dual focus on short-term active policy interventions and long-term structural reform. However, disability rights are hard to put into action because national disability policy focuses on neoliberalism. This paper examines the policies in liberal welfare states that encourage people receiving disability benefits to participate in the labour market. The first part of the article introduces human rights discourse, and applies it to workfare reforms in OECD countries, specifically liberal welfare states, in the context of neoliberal policy. It then provides 3 national examples, from the US, the UK and Australia, of active labour market policy interventions for transitioning people with disabilities from welfare to work. The policy examples are analysed in the context of human rights and neoliberalism. The paper explores to what extent new approaches to activation policies are facilitating parity of participation for people with disabilities and factors that prevent these policies from being more effective.
Subject terms:
human rights, social policy, disabilities, employment;
Children and Society, 26(1), January 2012, pp.37-50.
Publisher:
Wiley
The impact of disability on sibling relationships has been a popular research topic, with previous studies focusing on the experiences of the sibling without the disability. This qualitative study investigated the experience of being an older sibling, from the perspective of children with disabilities. A phenomenological approach was used to investigate the experiences of 10 Australian children with varying disabilities. Two major themes emerged from the data, each with three sub-themes: ‘terms of engagement’ described how the participants performed older sibling roles; and ‘influences on engagement’ focused on factors influencing this performance. The participants described engagement in older sibling roles that they perceived to positively influence their sense of self. In most instances participants perceived family dynamics, gender and personality to be more influential on this engagement than their impairment. Children with disabilities engaged in a diversity of roles as an older sibling. These roles need to be respected and built upon in family centred-practice to enable children to fully contribute to family life.
The impact of disability on sibling relationships has been a popular research topic, with previous studies focusing on the experiences of the sibling without the disability. This qualitative study investigated the experience of being an older sibling, from the perspective of children with disabilities. A phenomenological approach was used to investigate the experiences of 10 Australian children with varying disabilities. Two major themes emerged from the data, each with three sub-themes: ‘terms of engagement’ described how the participants performed older sibling roles; and ‘influences on engagement’ focused on factors influencing this performance. The participants described engagement in older sibling roles that they perceived to positively influence their sense of self. In most instances participants perceived family dynamics, gender and personality to be more influential on this engagement than their impairment. Children with disabilities engaged in a diversity of roles as an older sibling. These roles need to be respected and built upon in family centred-practice to enable children to fully contribute to family life.
ORGANISATION FOR ECONOMIC CO-OPERATION AND DEVELOPMENT
Publisher:
Organisation for Economic Co-operation and Development
Publication year:
2007
Pagination:
176p., bibliog.
Place of publication:
Paris
This book describes key trends and outcomes, evaluates recent and ongoing reforms and discusses absence monitoring and assessment of disability, financial incentives and disincentives for people with disability, and new challenges and directions in employment policy in the countries named in the title.
This book describes key trends and outcomes, evaluates recent and ongoing reforms and discusses absence monitoring and assessment of disability, financial incentives and disincentives for people with disability, and new challenges and directions in employment policy in the countries named in the title.
Subject terms:
physical illness, conditions of employment, disabilities, employment;
Social Policy Research Centre Newsletter, 99, July 2008, pp.6-7.
Publisher:
University of New South Wales. Social Policy Research Centre
In disability policy, researchers and government are increasingly attempting to give primacy to the voice of people with disability through using participatory research methods. This article examines how participatory evaluation techniques can help to manage conflicting interests during policy implementation. It uses the evaluation of the Resident Support Program in Queensland, Australia as a case study.
In disability policy, researchers and government are increasingly attempting to give primacy to the voice of people with disability through using participatory research methods. This article examines how participatory evaluation techniques can help to manage conflicting interests during policy implementation. It uses the evaluation of the Resident Support Program in Queensland, Australia as a case study.
Subject terms:
policy formulation, user participation, disabilities;