One of three briefing papers prepared to help voluntary sector providers of children's palliative care care services, including children's hospices, prepare for the introduction of personal budgets in September 2014. The briefing provides an introduction to personal budgets and looks at how they have worked already in other settings, such as adult social care. It also includes real-life case studies and links to other resources and best practice examples.
(Edited publisher abstract)
One of three briefing papers prepared to help voluntary sector providers of children's palliative care care services, including children's hospices, prepare for the introduction of personal budgets in September 2014. The briefing provides an introduction to personal budgets and looks at how they have worked already in other settings, such as adult social care. It also includes real-life case studies and links to other resources and best practice examples.
(Edited publisher abstract)
Subject terms:
personal budgets, children, families, palliative care, hospices, disabilities, voluntary sector;
One of three briefing papers prepared to help voluntary sector providers of children's palliative care care services, including children's hospices, prepare for the introduction of personal budgets in September 2014. This briefing provides advice to families of children with life-threatening and life-limiting conditions wishing to use a personal budget, and outlines seven steps for them to consider. Brief case studies and links to other resources and best practice examples are also included.
(Edited publisher abstract)
One of three briefing papers prepared to help voluntary sector providers of children's palliative care care services, including children's hospices, prepare for the introduction of personal budgets in September 2014. This briefing provides advice to families of children with life-threatening and life-limiting conditions wishing to use a personal budget, and outlines seven steps for them to consider. Brief case studies and links to other resources and best practice examples are also included.
(Edited publisher abstract)
Subject terms:
children, families, personal budgets, hospices, palliative care, disabilities, voluntary sector;
One of three briefing papers prepared to help voluntary sector providers of children's palliative care care services, including children's hospices, prepare for the introduction of personal budgets in September 2014. This briefing advises children's palliative care services on the action they need to take and explores the opportunities and challenges personal budgets may bring. Brief case studies and links to other resources and best practice examples are also included.
(Edited publisher abstract)
One of three briefing papers prepared to help voluntary sector providers of children's palliative care care services, including children's hospices, prepare for the introduction of personal budgets in September 2014. This briefing advises children's palliative care services on the action they need to take and explores the opportunities and challenges personal budgets may bring. Brief case studies and links to other resources and best practice examples are also included.
(Edited publisher abstract)
Subject terms:
children, families, palliative care, personal budgets, disabilities, voluntary sector;
Reports on a project which set out to make improvements to the lives and support received by children and young people with complex needs by moving to a single 'whole life, whole family' approach. Six local authorities and their partners participated in the project. Using the life experience of the children, young people and their families' and their experiences of support to date, a new plan of support which centred on thinking whole life and whole family was developed. The report highlights the importance of thinking how to engage the important 'non-professionals' in a family's life and using the strengths and assets that already exist. It also provides a simple framework, which helps people working with children to recognise the need to be flexible, make the base use of skills and knowledge in the local workforce, and to be child and family centred. The report is available in both a printed and online version. The online version contains links to audio files containing the reflections and learning from those involved in the project.
(Edited publisher abstract)
Reports on a project which set out to make improvements to the lives and support received by children and young people with complex needs by moving to a single 'whole life, whole family' approach. Six local authorities and their partners participated in the project. Using the life experience of the children, young people and their families' and their experiences of support to date, a new plan of support which centred on thinking whole life and whole family was developed. The report highlights the importance of thinking how to engage the important 'non-professionals' in a family's life and using the strengths and assets that already exist. It also provides a simple framework, which helps people working with children to recognise the need to be flexible, make the base use of skills and knowledge in the local workforce, and to be child and family centred. The report is available in both a printed and online version. The online version contains links to audio files containing the reflections and learning from those involved in the project.
(Edited publisher abstract)
Subject terms:
children, young people, person-centred care, family-centred approach, care planning, families, complex needs, learning disabilities, disabilities;
This briefing focuses on how personal budgets can play a part in supporting a child or young person during the school day. It provides examples to illustrate how personal budgets can work, and the benefits they can bring, as a basis for people to explore how personal budgets can be used to support other children and young people. Written in partnership with NASEN, this paper highlights specific issues with regard to the introduction of personal budgets as part of the wider SEND reforms. It has been produced to complement the 'Support and Aspiration: introducing personal Budgets' implementation guidance co-written by In Control and SQW with the support of the Department for Education.
(Publisher abstract)
This briefing focuses on how personal budgets can play a part in supporting a child or young person during the school day. It provides examples to illustrate how personal budgets can work, and the benefits they can bring, as a basis for people to explore how personal budgets can be used to support other children and young people. Written in partnership with NASEN, this paper highlights specific issues with regard to the introduction of personal budgets as part of the wider SEND reforms. It has been produced to complement the 'Support and Aspiration: introducing personal Budgets' implementation guidance co-written by In Control and SQW with the support of the Department for Education.
(Publisher abstract)
Subject terms:
personal budgets, schools, special educational needs, children, young people, school children, education, disabilities;
This document sets out a planning framework to help with the implementation of personal budgets for children, young people with special educational needs (SEN) and disabilities and their families. It has been developed with support from the Department of Education and draws on the draft Code of Practice for Special Educational Needs, the draft Special Educational Needs regulations, and learning
(Original abstract)
This document sets out a planning framework to help with the implementation of personal budgets for children, young people with special educational needs (SEN) and disabilities and their families. It has been developed with support from the Department of Education and draws on the draft Code of Practice for Special Educational Needs, the draft Special Educational Needs regulations, and learning gathered as part of the individual budget pilot evaluations. Part one looks at personal budgets as one element of a larger system change, including aligning personal SEN budgets with school and college funding and integrating budgets from more than source. Part two sets out the Common Delivery Model which can be used to inform the planning and delivery of individual/ personal budgets. The model is made up for four areas: organisational engagement and cultural change; engaging and involving families; setting up and scaling up the infrastructure; and safeguarding and risk assessment. The planning framework is aimed at those charged with the responsibility of rolling out personal budgets across SEN, health and social care.
(Original abstract)
Subject terms:
special educational needs, models, personal budgets, children, young people, disabilities, childrens social care, commissioning, planning;
WATERS John, IN CONTROL, INDEPENDENT LIVING STRATEGY GROUP
Publisher:
Disability Rights UK
Publication year:
2018
Pagination:
28
Place of publication:
London
This report presents the findings of a study carried out by the Independent Living Strategy Group, which considers the value and impact of charging for community based adult social care support. The research examines some key features of the way local authorities implement charges, and by gathering evidence on the impact of charges on disabled people. In particular it explores whether and to what extent the practice of charging is undermining people’s well-being, the primary purpose of social care services as set out in the Care Act 2014. The study comprised of two parts: an online survey of more than 600 people who had received a community care assessment; and a Freedom of Information request to 152 English local authorities. Key findings from the survey of disabled people’s experiences found that four out of ten people said they had experienced a substantial increase in the level of charging over the past 2 years, with just over a third reporting that they had struggled to pay for care and support. The results relating to local authorities found that all but one local authority exercise their powers to make a charge for social care services to people who need support. The research found wide variations across local authorities in terms of the amount raised from charging and how many people are charged. It concludes that local authority eligibility criteria for social care have been significantly tightened in recent years, which can result in support being limited to the most essential needs and with disabled and older people sometimes being charged for basic personal care support. The study concludes that charging for support undermines the purpose of the Care Act by having a negative impact on people’s wellbeing, placing unnecessary restrictions on people’s lives, and undermining national eligibility criteria.
(Edited publisher abstract)
This report presents the findings of a study carried out by the Independent Living Strategy Group, which considers the value and impact of charging for community based adult social care support. The research examines some key features of the way local authorities implement charges, and by gathering evidence on the impact of charges on disabled people. In particular it explores whether and to what extent the practice of charging is undermining people’s well-being, the primary purpose of social care services as set out in the Care Act 2014. The study comprised of two parts: an online survey of more than 600 people who had received a community care assessment; and a Freedom of Information request to 152 English local authorities. Key findings from the survey of disabled people’s experiences found that four out of ten people said they had experienced a substantial increase in the level of charging over the past 2 years, with just over a third reporting that they had struggled to pay for care and support. The results relating to local authorities found that all but one local authority exercise their powers to make a charge for social care services to people who need support. The research found wide variations across local authorities in terms of the amount raised from charging and how many people are charged. It concludes that local authority eligibility criteria for social care have been significantly tightened in recent years, which can result in support being limited to the most essential needs and with disabled and older people sometimes being charged for basic personal care support. The study concludes that charging for support undermines the purpose of the Care Act by having a negative impact on people’s wellbeing, placing unnecessary restrictions on people’s lives, and undermining national eligibility criteria.
(Edited publisher abstract)
Subject terms:
local authorities, charges, social care provision, disabilities, community care, eligibility criteria, older people, needs assessment, service users, policy, Care Act 2014;
Reports on results from the Personal Outcomes Evaluation Tool (POET) survey, which aims to measure the experience and impact of Education Health and Care Plans (EHCPs) and personal budgets for young people with special educational needs and their families. The survey involved 70 local authority children’s services across England, providing a total of 2,989 responses from practitioners across health, social care and education; 1,879 responses from parents/carers; and 906 from children and young people who had experience of EHCPs. The survey looks at how the three groups have experienced the introduction of EHCPs and the impact it is having on their lives. The report outlines the findings for each group separately. Issues discussed include the participation of children, young people and their parents in the care planning and decision making process; collaboration between practitioners; identifying and meeting needs; and choice and control over support. Respondents were generally positive about the process and involvement. Two thirds of practitioners also reported that EHCPs had helped them to work in partnership with colleagues. However parents were less happy about the levels of support and choice they received, with only 47 per cent of parents/carers and 51 per cent of children and young people feel the degree of choice and control over support was good or very good. Appendices provide a table detailing factors associated with support, processes and outcomes for children and young people according to parents/carers, practitioners, and children and young people themselves.
(Edited publisher abstract)
Reports on results from the Personal Outcomes Evaluation Tool (POET) survey, which aims to measure the experience and impact of Education Health and Care Plans (EHCPs) and personal budgets for young people with special educational needs and their families. The survey involved 70 local authority children’s services across England, providing a total of 2,989 responses from practitioners across health, social care and education; 1,879 responses from parents/carers; and 906 from children and young people who had experience of EHCPs. The survey looks at how the three groups have experienced the introduction of EHCPs and the impact it is having on their lives. The report outlines the findings for each group separately. Issues discussed include the participation of children, young people and their parents in the care planning and decision making process; collaboration between practitioners; identifying and meeting needs; and choice and control over support. Respondents were generally positive about the process and involvement. Two thirds of practitioners also reported that EHCPs had helped them to work in partnership with colleagues. However parents were less happy about the levels of support and choice they received, with only 47 per cent of parents/carers and 51 per cent of children and young people feel the degree of choice and control over support was good or very good. Appendices provide a table detailing factors associated with support, processes and outcomes for children and young people according to parents/carers, practitioners, and children and young people themselves.
(Edited publisher abstract)
Subject terms:
surveys, outcomes, children, young people, disabilities, special educational needs, care planning, local authorities, health care, user views, evaluation, parents;
This document is designed to support local authorities and other commissioners to develop information, advice and guidance for families under the new SEND (Special Educational Needs and Disability) reforms. The SEND reforms include new joined up assessments and education, health and care plans for children and young people with SEND, these should also include agreeing the information that should be provided, how it should be provided and by whom. This document includes 10 key principles which information should be based. These are: impartiality, accessibility, co-production, geographical specificity, multiple formats and languages, cultural sensitivity, speed, diversity of need, signposting and advice, guidance and support. Recommendations to help in the implementation of localised action plans to support families in making decisions are also included.
(Edited publisher abstract)
This document is designed to support local authorities and other commissioners to develop information, advice and guidance for families under the new SEND (Special Educational Needs and Disability) reforms. The SEND reforms include new joined up assessments and education, health and care plans for children and young people with SEND, these should also include agreeing the information that should be provided, how it should be provided and by whom. This document includes 10 key principles which information should be based. These are: impartiality, accessibility, co-production, geographical specificity, multiple formats and languages, cultural sensitivity, speed, diversity of need, signposting and advice, guidance and support. Recommendations to help in the implementation of localised action plans to support families in making decisions are also included.
(Edited publisher abstract)
Subject terms:
special educational needs, local authorities, advice services, families, information needs, access to information, children, young people, interagency cooperation, disabilities, information services;
This report presents findings from the limited initial testing of a new version of POET, a personal outcomes evaluation tool, designed to measure the process and impact of education health and care (EHC) plans and personal budgets for children and young people with special educational needs and/or disabilities (SEND). In total 133 people completed the POET surveys, commenting on their experience
(Edited publisher abstract)
This report presents findings from the limited initial testing of a new version of POET, a personal outcomes evaluation tool, designed to measure the process and impact of education health and care (EHC) plans and personal budgets for children and young people with special educational needs and/or disabilities (SEND). In total 133 people completed the POET surveys, commenting on their experience of either EHC plans (and in some cases personal budgets), or just personal budgets. Sixty-one of these were practitioners working to implement EHC plans or personal budgets, and 72 were parents/carers who have had experience of them. Both parents/carers and practitioners were broadly positive about the process of EHC plans or personal budgets with parents/carers being more positive than practitioners and both were clear about the areas that needed to improve. Both groups identified working in partnership and keeping the process simple as key priorities. These findings demonstrate the potential capacity of POET to become a user-friendly evaluation mechanism for local authorities and families, able to provide clear evidence about the impact of introducing EHC plans and personal budgets. Following further testing, a refined tool is expected to be made available from spring 2015 for use nationally.
(Edited publisher abstract)
Subject terms:
planning, education, health care, social care, personal budgets, children, young people, disabilities, special educational needs, outcomes, evaluation, care planning;