... which decided not to participate in this extraction, the extract cohort available for collection was 7,477 practices. Of the extract cohort, data for 7,300 practices were collected, representing 97.6 per cent coverage of cohort practices. The data shows that in September 2016 426,000 patients had a record of dementia diagnosis on their clinical record.
(Edited publisher abstract)
Provides key data on recorded dementia diagnoses. Recorded dementia prevalence at 30 September 2016 was 0.771 per cent (1 person in 130). When considered alongside monthly data collected in 2014/15, this indicates a progressive increase in recorded prevalence from March 2015 (0.738) to September 2016 (0.771). After adjustments to remove spurious, ‘non-GP’ practices, shared practices and practices which decided not to participate in this extraction, the extract cohort available for collection was 7,477 practices. Of the extract cohort, data for 7,300 practices were collected, representing 97.6 per cent coverage of cohort practices. The data shows that in September 2016 426,000 patients had a record of dementia diagnosis on their clinical record.
(Edited publisher abstract)
Looks at the different types of dementia and how they can be recognised. Looks at vascular dementia, frontotemporal dementia, dementia with Lewy bodies, Huntington's disease and secondary dementias.
Looks at the different types of dementia and how they can be recognised. Looks at vascular dementia, frontotemporal dementia, dementia with Lewy bodies, Huntington's disease and secondary dementias.
Objectives: Personal experiences of receiving a diagnosis of young onset dementia (YOD) are often overlooked in a complex assessment process requiring substantial investigation. A thematic synthesis of published until November 2018 qualitative studies was completed to understand the lived experiences of younger people. This informed a Delphi study to learn how diagnostic processes could be improved, identify the strengths and weaknesses of current approaches, and help educate professionals concerning key issues. Method: Systematic searches of bibliographic databases were conducted involving self-reported experiences of diagnosis of YOD. Eight out of 47 papers identified were quality assessed using Walsh & Browne's criteria for methodological appraisal. Results: The review emphasises that delays in diagnosis can often be attributed to (1) delays in accessing help, and (2) misattribution of symptoms by the clinician. The impact of diagnosis is influenced by the clinician's use of language; and reactions to diagnosis varied from feelings of reassurance (in that their symptoms are now explained), to shock and destabilisation. Conclusion: This review suggests that improving the recognition of presenting symptoms, reducing diagnostic errors, and identifying the emotional needs arising from diagnosis are required to improve the diagnostic experience for younger adults, and to promote future engagement with services.
(Edited publisher abstract)
Objectives: Personal experiences of receiving a diagnosis of young onset dementia (YOD) are often overlooked in a complex assessment process requiring substantial investigation. A thematic synthesis of published until November 2018 qualitative studies was completed to understand the lived experiences of younger people. This informed a Delphi study to learn how diagnostic processes could be improved, identify the strengths and weaknesses of current approaches, and help educate professionals concerning key issues. Method: Systematic searches of bibliographic databases were conducted involving self-reported experiences of diagnosis of YOD. Eight out of 47 papers identified were quality assessed using Walsh & Browne's criteria for methodological appraisal. Results: The review emphasises that delays in diagnosis can often be attributed to (1) delays in accessing help, and (2) misattribution of symptoms by the clinician. The impact of diagnosis is influenced by the clinician's use of language; and reactions to diagnosis varied from feelings of reassurance (in that their symptoms are now explained), to shock and destabilisation. Conclusion: This review suggests that improving the recognition of presenting symptoms, reducing diagnostic errors, and identifying the emotional needs arising from diagnosis are required to improve the diagnostic experience for younger adults, and to promote future engagement with services.
(Edited publisher abstract)
Subject terms:
dementia, young onset dementia, diagnosis, user views;
A toolkit providing information and advice for Deaf people living with dementia and those who support them, including family members and care staff. The toolkit covers: the onset (pre-diagnosis) of dementia; a diagnosis of dementia and what you can do; living well with dementia and making plans for the future. It and includes the personal experiences of families living with dementia and provides
(Edited publisher abstract)
A toolkit providing information and advice for Deaf people living with dementia and those who support them, including family members and care staff. The toolkit covers: the onset (pre-diagnosis) of dementia; a diagnosis of dementia and what you can do; living well with dementia and making plans for the future. It and includes the personal experiences of families living with dementia and provides links to additional information. The toolkit has been developed with involvement from a Stakeholder Group, which included 9 Deaf people who use British Sign Language. It is written in plain English and includes links to videos in British Sign Language.
(Edited publisher abstract)
A short publication providing information on getting a timely diagnosis of dementia for people with learning disabilities. It covers understanding what Timely Diagnosis means, knowing how to prepare for the assessment process; being familiar with the dementia diagnosis pathway and your role in supporting the person; advocating for the person when the outcome of assessment(s) is known; and understanding the importance of baseline screening and monitoring to facilitate Timely Diagnosis in the future. It is part of the Wellbeing for Life toolkit created for the MacIntyre Dementia project in order to promote understanding about getting older with a learning disability and living well with dementia.
(Edited publisher abstract)
A short publication providing information on getting a timely diagnosis of dementia for people with learning disabilities. It covers understanding what Timely Diagnosis means, knowing how to prepare for the assessment process; being familiar with the dementia diagnosis pathway and your role in supporting the person; advocating for the person when the outcome of assessment(s) is known; and understanding the importance of baseline screening and monitoring to facilitate Timely Diagnosis in the future. It is part of the Wellbeing for Life toolkit created for the MacIntyre Dementia project in order to promote understanding about getting older with a learning disability and living well with dementia.
(Edited publisher abstract)
The findings of a study conducted by Alzheimer Europe and Bangor University, to better understand the experiences of informal carers of receiving a diagnosis of dementia across five European countries: France, Germany, Poland, Spain and the UK (Scotland). The questionnaire included 57 questions addressing; demographics of the carer and person with dementia; the symptoms that were experienced and prompted help-seeking; the pathway through the diagnostic process; the experience of the diagnostic process; support and information offered at the time of diagnosis; emotions experienced immediately after the diagnosis and subsequently; and the carers’ experience of their community as 'dementia friendly'. A total of 1,409 carers participated in the study, with just over 200 from Scotland. Carers across Europe reported that diagnosis took an average of 2.1 years from the time of problems being first noticed. Delays to diagnosis included the first professional they saw did not consider anything was wrong and the person with dementia not wanting to seek help. Post-diagnostic support was found to be still a major issue across Europe, with the need for information on coping and living well with dementia
(Edited publisher abstract)
The findings of a study conducted by Alzheimer Europe and Bangor University, to better understand the experiences of informal carers of receiving a diagnosis of dementia across five European countries: France, Germany, Poland, Spain and the UK (Scotland). The questionnaire included 57 questions addressing; demographics of the carer and person with dementia; the symptoms that were experienced and prompted help-seeking; the pathway through the diagnostic process; the experience of the diagnostic process; support and information offered at the time of diagnosis; emotions experienced immediately after the diagnosis and subsequently; and the carers’ experience of their community as 'dementia friendly'. A total of 1,409 carers participated in the study, with just over 200 from Scotland. Carers across Europe reported that diagnosis took an average of 2.1 years from the time of problems being first noticed. Delays to diagnosis included the first professional they saw did not consider anything was wrong and the person with dementia not wanting to seek help. Post-diagnostic support was found to be still a major issue across Europe, with the need for information on coping and living well with dementia and on available services particularly high at 51.1 per cent and 46 per cent respectively.
(Edited publisher abstract)
Objectives: To identify factors that may increase intentions to seek help for an early dementia diagnosis. Early dementia diagnosis in Ireland is low, reducing the opportunity for intervention, which can delay progression, reduce psychological distress and increase social supports.
Method: Using the theory of planned behaviour (TPB), and a mixed methods approach, three focus groups were conducted (N = 22) to illicit attitudes and beliefs about help seeking for an early dementia diagnosis. The findings informed the development of the Help Seeking Intentions for Early Dementia Diagnosis (HSIEDD) questionnaire which was piloted and then administered to a sample of community dwelling adults from Dublin and Kildare (N = 95).
Results: Content analysis revealed participants held knowledge of the symptoms of dementia but not about available interventions. Facilitators of help seeking were family, friends and peers alongside well informed health professionals. Barriers to seeking help were a lack of knowledge, fear, loss, stigma and inaccessible services. The quantitative findings suggest the TPB constructs account for almost 28% of the variance in intentions to seek help for an early diagnosis
(Publisher abstract)
Objectives: To identify factors that may increase intentions to seek help for an early dementia diagnosis. Early dementia diagnosis in Ireland is low, reducing the opportunity for intervention, which can delay progression, reduce psychological distress and increase social supports.
Method: Using the theory of planned behaviour (TPB), and a mixed methods approach, three focus groups were conducted (N = 22) to illicit attitudes and beliefs about help seeking for an early dementia diagnosis. The findings informed the development of the Help Seeking Intentions for Early Dementia Diagnosis (HSIEDD) questionnaire which was piloted and then administered to a sample of community dwelling adults from Dublin and Kildare (N = 95).
Results: Content analysis revealed participants held knowledge of the symptoms of dementia but not about available interventions. Facilitators of help seeking were family, friends and peers alongside well informed health professionals. Barriers to seeking help were a lack of knowledge, fear, loss, stigma and inaccessible services. The quantitative findings suggest the TPB constructs account for almost 28% of the variance in intentions to seek help for an early diagnosis of dementia, after controlling for sociodemographic variables and knowledge of dementia. In the final step of the regression analysis, the main predictors of help seeking were knowledge of dementia and subjective norm, accounting for 6% and 8% of the variance, respectively.
Conclusion: Future interventions should aim to increase awareness of the support available to those experiencing early memory problems, and should highlight the supportive role that family, friends, peers and health professionals could provide.
(Publisher abstract)
Subject terms:
dementia, diagnosis, early intervention, attitudes;
... and India (vs Europe and North America), in the community setting (vs residential/nursing care), age of <70 years, male gender and diagnosis by general practitioner. However, it was lower in the studies using Mini-Mental State Examination (MMSE) diagnosis criteria.
Conclusions: The prevalence of undetected dementia is high globally. Wide variations in detecting dementia need to be urgently examined, particularly in populations with low socioeconomic status. Efforts are required to reduce diagnostic inequality and to improve early diagnosis in the community.
(Edited publisher abstract)
Objectives: Detection of dementia is essential for improving the lives of patients but the extent of underdetection worldwide and its causes are not known. This study aimed to quantify the prevalence of undetected dementia and to examine its correlates.
Methods/setting/participants: A systematic search was conducted until October 2016 for studies reporting the proportion of undetected dementia and/or its determinants in either the community or in residential care settings worldwide. Random-effects models calculated the pooled rate of undetected dementia and subgroup analyses were conducted to identify determinants of the variation.
Results: 23 studies were eligible for inclusion in this review. The pooled rate of undetected dementia was 61.7%. The rate of underdetection was higher in China and India (vs Europe and North America), in the community setting (vs residential/nursing care), age of <70 years, male gender and diagnosis by general practitioner. However, it was lower in the studies using Mini-Mental State Examination (MMSE) diagnosis criteria.
Conclusions: The prevalence of undetected dementia is high globally. Wide variations in detecting dementia need to be urgently examined, particularly in populations with low socioeconomic status. Efforts are required to reduce diagnostic inequality and to improve early diagnosis in the community.
(Edited publisher abstract)
International Journal of Geriatric Psychiatry, 31(3), 2016, p.309–315.
Publisher:
Wiley
Objective: This study aimed to examine the validity of the Naturalistic Action Test in differentiating Mild Cognitive Impairment from early dementia compared to clinical diagnosis and ascertain Naturalistic Action Test cut-off points.
Methods: This was a cross-sectional study of 70 consecutive patients diagnosed with Mild Cognitive Impairment attending the memory clinic in St James's Hospital, Dublin, Ireland. Patients with a diagnosis of Mild Cognitive Impairment who attended for routine annual assessment were asked to participate in the study. The Naturalistic Action Test was carried out after the patient had completed their routine assessment in the clinic.
Results: The Area under the Curve, AUC ± SE was 0.808 ± 0.058, p < 0.001 with 95% CI (0.695–0.922). There was concordance in 40 and discrepancy in 30 patients between the NAT and the gold standard consensus diagnosis (PPV 38%, NPV 96%, sensitivity 94%, specificity 46% and accuracy 59%) using cut-off point of ≥14 for normal function on Naturalistic Action Test. The difference was not related to age, sex, level of education or informant. Using the Youden index, we determined a Naturalistic Action Test cut-off score of ≥11 for Mild
(Publisher abstract)
Objective: This study aimed to examine the validity of the Naturalistic Action Test in differentiating Mild Cognitive Impairment from early dementia compared to clinical diagnosis and ascertain Naturalistic Action Test cut-off points.
Methods: This was a cross-sectional study of 70 consecutive patients diagnosed with Mild Cognitive Impairment attending the memory clinic in St James's Hospital, Dublin, Ireland. Patients with a diagnosis of Mild Cognitive Impairment who attended for routine annual assessment were asked to participate in the study. The Naturalistic Action Test was carried out after the patient had completed their routine assessment in the clinic.
Results: The Area under the Curve, AUC ± SE was 0.808 ± 0.058, p < 0.001 with 95% CI (0.695–0.922). There was concordance in 40 and discrepancy in 30 patients between the NAT and the gold standard consensus diagnosis (PPV 38%, NPV 96%, sensitivity 94%, specificity 46% and accuracy 59%) using cut-off point of ≥14 for normal function on Naturalistic Action Test. The difference was not related to age, sex, level of education or informant. Using the Youden index, we determined a Naturalistic Action Test cut-off score of ≥11 for Mild Cognitive Impairment in our study (PPV 50%, NPV 91%, sensitivity 78%, specificity 73% and accuracy of 74%). There was discrepancy in 18 patients using the new cut-off point (≥11 for Mild Cognitive Impairment vs ≤10 for dementia).
Conclusion: The Naturalistic Action Test is a useful tool that can increase diagnostic accuracy in differentiating Mild Cognitive Impairment from early dementia.
(Publisher abstract)
A brief introduction to the signs and symptoms of dementia, highlighting the reasons why it is important that people with dementia receive a diagnosis and explaining what to do if suspecting that someone may have dementia.
(Edited publisher abstract)
A brief introduction to the signs and symptoms of dementia, highlighting the reasons why it is important that people with dementia receive a diagnosis and explaining what to do if suspecting that someone may have dementia.
(Edited publisher abstract)