A toolkit providing information and advice for Deaf people living with dementia and those who support them, including family members and care staff. The toolkit covers: the onset (pre-diagnosis) of dementia; a diagnosis of dementia and what you can do; living well with dementia and making plans for the future. It and includes the personal experiences of families living with dementia and provides
(Edited publisher abstract)
A toolkit providing information and advice for Deaf people living with dementia and those who support them, including family members and care staff. The toolkit covers: the onset (pre-diagnosis) of dementia; a diagnosis of dementia and what you can do; living well with dementia and making plans for the future. It and includes the personal experiences of families living with dementia and provides links to additional information. The toolkit has been developed with involvement from a Stakeholder Group, which included 9 Deaf people who use British Sign Language. It is written in plain English and includes links to videos in British Sign Language.
(Edited publisher abstract)
The findings of a study conducted by Alzheimer Europe and Bangor University, to better understand the experiences of informal carers of receiving a diagnosis of dementia across five European countries: France, Germany, Poland, Spain and the UK (Scotland). The questionnaire included 57 questions addressing; demographics of the carer and person with dementia; the symptoms that were experienced and prompted help-seeking; the pathway through the diagnostic process; the experience of the diagnostic process; support and information offered at the time of diagnosis; emotions experienced immediately after the diagnosis and subsequently; and the carers’ experience of their community as 'dementia friendly'. A total of 1,409 carers participated in the study, with just over 200 from Scotland. Carers across Europe reported that diagnosis took an average of 2.1 years from the time of problems being first noticed. Delays to diagnosis included the first professional they saw did not consider anything was wrong and the person with dementia not wanting to seek help. Post-diagnostic support was found to be still a major issue across Europe, with the need for information on coping and living well with dementia
(Edited publisher abstract)
The findings of a study conducted by Alzheimer Europe and Bangor University, to better understand the experiences of informal carers of receiving a diagnosis of dementia across five European countries: France, Germany, Poland, Spain and the UK (Scotland). The questionnaire included 57 questions addressing; demographics of the carer and person with dementia; the symptoms that were experienced and prompted help-seeking; the pathway through the diagnostic process; the experience of the diagnostic process; support and information offered at the time of diagnosis; emotions experienced immediately after the diagnosis and subsequently; and the carers’ experience of their community as 'dementia friendly'. A total of 1,409 carers participated in the study, with just over 200 from Scotland. Carers across Europe reported that diagnosis took an average of 2.1 years from the time of problems being first noticed. Delays to diagnosis included the first professional they saw did not consider anything was wrong and the person with dementia not wanting to seek help. Post-diagnostic support was found to be still a major issue across Europe, with the need for information on coping and living well with dementia and on available services particularly high at 51.1 per cent and 46 per cent respectively.
(Edited publisher abstract)
Journal of Dementia Care, 20(2), March 2012, pp.37-39.
Publisher:
Hawker
In 2009, NHS Highland developed a Knowledge Transfer Partnership designed to support it in meeting its targets related to the early diagnosis of dementia, provision of early interventions and promoting the quality of care and life for people with dementia, and their carers. This article reports on the diagnosis pathways that are in place across the region, and the development of specialist
In 2009, NHS Highland developed a Knowledge Transfer Partnership designed to support it in meeting its targets related to the early diagnosis of dementia, provision of early interventions and promoting the quality of care and life for people with dementia, and their carers. This article reports on the diagnosis pathways that are in place across the region, and the development of specialist services. It shows how policy objectives can be achieved, taking into consideration staff ideas and the evidence that is available. Data were captured throughout the area to explore how the initiative was being implemented. There were different models of diagnosing dementia in place, the effectiveness of which was dependant on how they used local resources to address the needs of the local population. The models described in this article demonstrate different ways to achieve policy objectives.
Journal of Applied Research in Intellectual Disabilities, 20(6), November 2007, pp.493-501.
Publisher:
Wiley
In this population-based prospective cohort study, adults with profound intellectual disabilities underwent psychiatric assessment (n = 184), with further assessment after 2 years (n = 131). Point prevalence of mental ill-health was 52.2% by clinical, 45.1% by Diagnostic Criteria for Psychiatric Disorders for use with Adults with Learning Disabilities (DC-LD), 10.9% by the ICD-10 Classification of Mental and Behavioural Disorders Diagnostic Criteria for Research (1993) (DCR-ICD-10) and 11.4% by Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision (2004) (DSM-IV-TR) criteria. The highest 2-year incidence rates were for affective disorders (6.1%) and problem behaviours (6.1%). Type of accommodation/support, and the number of preceding life events were predictive of incidents of mental ill-health, but age, gender, living in areas of greatest deprivation, and having special communication needs were not. It is concluded that mental ill-health is more commonly experienced by adults with profound intellectual disabilities than the general population, or other adults with intellectual disabilities, warranting proactive supports/interventions. Predictive factors differ, compared with the general population.
In this population-based prospective cohort study, adults with profound intellectual disabilities underwent psychiatric assessment (n = 184), with further assessment after 2 years (n = 131). Point prevalence of mental ill-health was 52.2% by clinical, 45.1% by Diagnostic Criteria for Psychiatric Disorders for use with Adults with Learning Disabilities (DC-LD), 10.9% by the ICD-10 Classification of Mental and Behavioural Disorders Diagnostic Criteria for Research (1993) (DCR-ICD-10) and 11.4% by Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision (2004) (DSM-IV-TR) criteria. The highest 2-year incidence rates were for affective disorders (6.1%) and problem behaviours (6.1%). Type of accommodation/support, and the number of preceding life events were predictive of incidents of mental ill-health, but age, gender, living in areas of greatest deprivation, and having special communication needs were not. It is concluded that mental ill-health is more commonly experienced by adults with profound intellectual disabilities than the general population, or other adults with intellectual disabilities, warranting proactive supports/interventions. Predictive factors differ, compared with the general population.
Subject terms:
mental health problems, population, severe learning disabilities, diagnosis;
A booklet for those who are either worried about dementia or who have been diagnosed. It provides reassurance and suggests practical steps to improve or maintain dignity and the quality of life as far as possible.
A booklet for those who are either worried about dementia or who have been diagnosed. It provides reassurance and suggests practical steps to improve or maintain dignity and the quality of life as far as possible.
Disability and Society, 20(4), June 2005, pp.359-373.
Publisher:
Taylor and Francis
This paper presents findings from a study exploring the views of people with personality disorder diagnoses and various professionals working with them. The research was funded by Greater Glasgow Health Board Primary Care Trust and conducted by a team at the University of Stirling. After outlining the policy context and the study’s conceptual framework, the aims and methods are described. Interviews were conducted with 12 service providers and 10 users. The main findings are then discussed, including user and provider perspectives on the meaning of ‘personality disorder’ and the strategies and support people use to address their difficulties. Finally, the theoretical implications of the findings are discussed.
This paper presents findings from a study exploring the views of people with personality disorder diagnoses and various professionals working with them. The research was funded by Greater Glasgow Health Board Primary Care Trust and conducted by a team at the University of Stirling. After outlining the policy context and the study’s conceptual framework, the aims and methods are described. Interviews were conducted with 12 service providers and 10 users. The main findings are then discussed, including user and provider perspectives on the meaning of ‘personality disorder’ and the strategies and support people use to address their difficulties. Finally, the theoretical implications of the findings are discussed.
Subject terms:
mental health services, personality disorders, risk, user views, diagnosis;
International Journal of Geriatric Psychiatry, 14(5), May 1999, pp.362-367.
Publisher:
Wiley
The aim of the case ascertainment for the study was to identify a population of patients with presenile dementia who had been identified by hospital contact within a defined period of time, and who were currently alive, in the Lothian area. It did not aim to establish epidemiological figures. The criteria used for inclusion and exclusion of cases in this study are thus directed towards achieving the aims of the study, and the findings would have to be modified to reach an estimate of all cases of early-onset dementia in the Lothian area.
The aim of the case ascertainment for the study was to identify a population of patients with presenile dementia who had been identified by hospital contact within a defined period of time, and who were currently alive, in the Lothian area. It did not aim to establish epidemiological figures. The criteria used for inclusion and exclusion of cases in this study are thus directed towards achieving the aims of the study, and the findings would have to be modified to reach an estimate of all cases of early-onset dementia in the Lothian area.
Subject terms:
population, assessment, dementia, diagnosis, young onset dementia;
This qualitative study reports the views of 29 women attending an antenatal clinic in a large maternity hospital in Scotland where a trial of different ways of offering HIV testing on a universal, voluntary basis occurred. Women were in favour of a test offer, although they did not necessarily wish to accept testing for themselves. There was a commonly held view that routine testing would cause less anxiety because it would eliminate the stigma of saying yes to testing. Concludes that a move towards the HIV test being recommended to pregnant women as opposed to merely offered is likely to be acceptable, would probably increase uptake rates and should therefore be assessed.
This qualitative study reports the views of 29 women attending an antenatal clinic in a large maternity hospital in Scotland where a trial of different ways of offering HIV testing on a universal, voluntary basis occurred. Women were in favour of a test offer, although they did not necessarily wish to accept testing for themselves. There was a commonly held view that routine testing would cause less anxiety because it would eliminate the stigma of saying yes to testing. Concludes that a move towards the HIV test being recommended to pregnant women as opposed to merely offered is likely to be acceptable, would probably increase uptake rates and should therefore be assessed.
Subject terms:
HIV AIDS, pregnancy, user views, women, diagnosis;
SCOTLAND. Scottish Government. Scottish Children and Young People's Palliative Care Executive Group
Publisher:
Scotland. Scottish Government
Publication year:
2012
Pagination:
55p.
Place of publication:
Edinburgh
This framework sets out a safe, effective and person centred approach to palliative care for children and young people. It is supported by guidance for services and provides a self-assessment tool. The framework aims to ensure that there are recognised pathways for palliative care within and between Health Boards for every child and young person from the point of diagnosis of a life limiting
This framework sets out a safe, effective and person centred approach to palliative care for children and young people. It is supported by guidance for services and provides a self-assessment tool. The framework aims to ensure that there are recognised pathways for palliative care within and between Health Boards for every child and young person from the point of diagnosis of a life limiting condition or life threatening condition through to living with their conditions until the end of their life. Theses pathways should be equitable, sustainable, age appropriate and independent of geography. The following outcomes and objectives should underpin any palliative care service for children and young people in Scotland, no matter where or how it is provided. Outcome 1 - each Health Board should clearly identify lead professionals with overall responsibility for delivering children and young people’s palliative care services. Outcome 2 - children and young people’s palliative care services should be planned and developed on the basis of incidence and prevalence in each Health Board area. Outcome 3 - all children and young people should have equitable access to palliative care which is flexible, planned and person-centred and takes account of their physical, emotional and spiritual needs. Outcome 4 - all children and young people with palliative care needs should be cared for and die in their preferred place. Outcome 5 - all children and young people with palliative care needs will receive safe, effective and person-centred care delivered efficiently and on time by a trained and competent workforce adopting a GIRFEC (Getting it Right for Every Child) approach.
Subject terms:
long term conditions, palliative care, standards, young people, children, diagnosis, good practice;