Journal of Dementia Care, 20(2), March 2012, pp.37-39.
Publisher:
Hawker
In 2009, NHS Highland developed a Knowledge Transfer Partnership designed to support it in meeting its targets related to the early diagnosis of dementia, provision of early interventions and promoting the quality of care and life for people with dementia, and their carers. This article reports on the diagnosis pathways that are in place across the region, and the development of specialist
In 2009, NHS Highland developed a Knowledge Transfer Partnership designed to support it in meeting its targets related to the early diagnosis of dementia, provision of early interventions and promoting the quality of care and life for people with dementia, and their carers. This article reports on the diagnosis pathways that are in place across the region, and the development of specialist services. It shows how policy objectives can be achieved, taking into consideration staff ideas and the evidence that is available. Data were captured throughout the area to explore how the initiative was being implemented. There were different models of diagnosing dementia in place, the effectiveness of which was dependant on how they used local resources to address the needs of the local population. The models described in this article demonstrate different ways to achieve policy objectives.
Dementia: the International Journal of Social Research and Practice, 15(2), 2016, pp.162-180.
Publisher:
Sage
Providing support in the form of information, advice and access to services or social events is promoted as beneficial for people newly diagnosed with dementia and their families. This paper reports on key findings from an evaluation of a post-diagnostic support pilot project in Scotland addressing local service gaps, namely information provision, emotional and practical support and maintaining community links. Twenty-seven participants (14 people newly diagnosed with dementia and 13 family carers) were interviewed at two time points: T1 shortly after joining the pilot project and T2 approximately six months later, to ascertain their views on existing services and the support offered by the pilot project. A comparative thematic analysis revealed that the project facilitated increased independence (associated with increased motivation and self-confidence) of people with dementia. The project illustrates what can be achieved if resources are targeted at providing individualised post-diagnostic support, particularly where there are service delivery gaps.
(Edited publisher abstract)
Providing support in the form of information, advice and access to services or social events is promoted as beneficial for people newly diagnosed with dementia and their families. This paper reports on key findings from an evaluation of a post-diagnostic support pilot project in Scotland addressing local service gaps, namely information provision, emotional and practical support and maintaining community links. Twenty-seven participants (14 people newly diagnosed with dementia and 13 family carers) were interviewed at two time points: T1 shortly after joining the pilot project and T2 approximately six months later, to ascertain their views on existing services and the support offered by the pilot project. A comparative thematic analysis revealed that the project facilitated increased independence (associated with increased motivation and self-confidence) of people with dementia. The project illustrates what can be achieved if resources are targeted at providing individualised post-diagnostic support, particularly where there are service delivery gaps.
(Edited publisher abstract)
Subject terms:
independence, diagnosis, access to services, access to information, service provision, service users, user views, dementia, evaluation;
Dementia: the International Journal of Social Research and Practice, 13(2), 2014, pp.233-247.
Publisher:
Sage
... points in the diagnostic process were explored: events and experiences pre-diagnosis; the experience of the diagnostic process; and post-diagnostic support. Experiences of people with dementia and their carers varied at all three points in the diagnostic process. Participant experiences in this study suggest greater efforts are required to meet Government diagnosis targets and that post-diagnostic support needs to be developed and monitored to ensure that once a diagnosis is given people are well-supported. Without post-diagnostic provision Government targets for diagnosis are just that, quota targets, rather than a means to improve service experiences.
(Publisher abstract)
This paper explores the reported difficulties and satisfactions with diagnostic processes and post-diagnostic support offered to people with dementia and their families living in the largest remote and rural region in Scotland. A consultation with 18 participants, six people with dementia and 12 family members, was held using semi-structured interviews between September and November 2010. Three points in the diagnostic process were explored: events and experiences pre-diagnosis; the experience of the diagnostic process; and post-diagnostic support. Experiences of people with dementia and their carers varied at all three points in the diagnostic process. Participant experiences in this study suggest greater efforts are required to meet Government diagnosis targets and that post-diagnostic support needs to be developed and monitored to ensure that once a diagnosis is given people are well-supported. Without post-diagnostic provision Government targets for diagnosis are just that, quota targets, rather than a means to improve service experiences.
(Publisher abstract)
Subject terms:
user views, dementia, diagnosis, rural areas, needs, service users, families, carers, policy;