Dementia: the International Journal of Social Research and Practice, 16(1), 2017, pp.67-78.
Publisher:
Sage
Previous literature reveals a high prevalence of grief in dementia caregivers before physical death of the person with dementia that is associated with stress, burden, and depression. To date, theoretical models and therapeutic interventions with grief in caregivers have not adequately considered the grief process, but instead have focused on grief as a symptom that manifests within the process...
(Edited publisher abstract)
Previous literature reveals a high prevalence of grief in dementia caregivers before physical death of the person with dementia that is associated with stress, burden, and depression. To date, theoretical models and therapeutic interventions with grief in caregivers have not adequately considered the grief process, but instead have focused on grief as a symptom that manifests within the process of caregiving. The Dementia Grief Model explicates the unique process of pre-death grief in dementia caregivers. In this paper we introduce the Dementia Grief Model, describe the unique characteristics of dementia grief, and present the psychological states associated with the process of dementia grief. The model explicates an iterative grief process involving three states—separation, liminality, and re-emergence—each with a dynamic mechanism that facilitates or hinders movement through the dementia grief process. Finally, the authors offer potential applied research questions informed by the model.
(Edited publisher abstract)
Dementia: the International Journal of Social Research and Practice, 12(5), 2013, pp.551-568.
Publisher:
Sage
This study explains the reasons why dementia patients become unable to successfully perform activities of daily living (ADL) with advancement of dementia, using a model developed by the authors. Dementia inpatients of a geriatric health services facility were classified into four stages, using the model of self-awareness ability (consisting of ‘theory of mind’, ‘self-evaluation’ and ‘self
(Edited publisher abstract)
This study explains the reasons why dementia patients become unable to successfully perform activities of daily living (ADL) with advancement of dementia, using a model developed by the authors. Dementia inpatients of a geriatric health services facility were classified into four stages, using the model of self-awareness ability (consisting of ‘theory of mind’, ‘self-evaluation’ and ‘self-consciousness’) that was constructed by combining ‘theory of mind’ and Lewis’s developmental model of cognition and emotion. Scenes from daily life were also observed and documented, and the reasons why patients become unable to seek assistance from others for ADL, were interpreted based on the model. Patients could not seek assistance from others, because the patients who failed in the task of ‘theory of mind’ were unable to self-assess their own mind and the minds of others, and those having failed in the task of ‘self-evaluation’ could not evaluate their own situation.
(Edited publisher abstract)
Subject terms:
dementia, activities of daily living, self-concept, models;
Dementia: the International Journal of Social Research and Practice, 12(6), 2013, pp.682-696.
Publisher:
Sage
This paper discusses three broad theoretical models which underpin dementia care policy (as well as practice and research): biomedical, psycho-social and social-gerontological. The models are critically assessed and discussed in relation to illustrative examples of dementia policy across three policy regions of the devolved UK. The contribution and implications of theoretical models of dementia...
(Edited publisher abstract)
This paper discusses three broad theoretical models which underpin dementia care policy (as well as practice and research): biomedical, psycho-social and social-gerontological. The models are critically assessed and discussed in relation to illustrative examples of dementia policy across three policy regions of the devolved UK. The contribution and implications of theoretical models of dementia policy highlight the importance of recognising how different theoretical understandings of dementia influence dementia policy. The development and improvement of policy and practice in the area of dementia care require an understanding of the often implicit theoretical approaches to dementia.
(Edited publisher abstract)
The author introduces the concept of 'mattering' and argues that to achieve positive cultural change in dementia care the primary emphasis of workforce development must be on developing emotional intelligence. The author looks at the main areas that make up 'mattering' - feeling important, attached, missed, interesting and depended on - and discusses how this approach fits in with the Dementia...
(Original abstract)
The author introduces the concept of 'mattering' and argues that to achieve positive cultural change in dementia care the primary emphasis of workforce development must be on developing emotional intelligence. The author looks at the main areas that make up 'mattering' - feeling important, attached, missed, interesting and depended on - and discusses how this approach fits in with the Dementia Care Matters model and other models of dementia care.
(Original abstract)
Dementia: the International Journal of Social Research and Practice, 12(2), 2013, pp.192-209.
Publisher:
Sage
The impact of dementia on the self has become the subject of much research over the last few years, mainly due to the implications for support and care for people with dementia. However, there are a number of limitations of this research that make it difficult to integrate the existing evidence and to draw any firm conclusions regarding the persistence of self. This highlights the need...
(Publisher abstract)
The impact of dementia on the self has become the subject of much research over the last few years, mainly due to the implications for support and care for people with dementia. However, there are a number of limitations of this research that make it difficult to integrate the existing evidence and to draw any firm conclusions regarding the persistence of self. This highlights the need for a different approach to studying the self in people with dementia in order to obtain more robust evidence from future studies. This paper attempts to integrate current research using an existing systematic and comprehensive framework of the self, and outlines the advantages and limitations of using such a framework as the basis for future studies.
(Publisher abstract)
Dementia throws up a number of particular clinical, ethical, and conceptual problems, which mostly reflect complicated evaluative decisions, for instance about diagnosis and the distinction between normal and abnormal ageing. This book explores the complex philosophical issues regarding our understanding and treatment of this disorder. Different disciplines approach dementia in different ways...
Dementia throws up a number of particular clinical, ethical, and conceptual problems, which mostly reflect complicated evaluative decisions, for instance about diagnosis and the distinction between normal and abnormal ageing. This book explores the complex philosophical issues regarding our understanding and treatment of this disorder. Different disciplines approach dementia in different ways; this book offers a critique of the main biomedical, neuropsychological, and social constructionist models used to understand dementia. Underlying these models and approaches are various and differing conceptual commitments which carry ethical implications concerning how people suffering from dementia ought to be treated. The book discusses both clinical issues and cases, together with philosophical work that might help better understanding and treatment of this illness. It is of interest to psychiatrists, philosophers, psychologists, and anyone involved in the care and management of those with dementia.
In an attempt to more thoroughly describe aggressive behaviour in nursing home residents with dementia, background and proximal factors as guided by the Need-Driven Dementia-Compromised Behavior model were examined. Methods used were multivariate cross-sectional survey with repeated measures; participants resided in nine randomly selected nursing homes within four midwestern counties...
In an attempt to more thoroughly describe aggressive behaviour in nursing home residents with dementia, background and proximal factors as guided by the Need-Driven Dementia-Compromised Behavior model were examined. Methods used were multivariate cross-sectional survey with repeated measures; participants resided in nine randomly selected nursing homes within four midwestern counties. The Minimum Data Set (with verification by caregivers) identified participants. A disproportionate probability sample of 107 participants (51% with a history of aggressive behaviour) was used to ensure variability. Videotaped care events included four of direct care (shower baths, meals, dressing, and undressing) and two of nondirect care (two randomly selected 20-minute time periods in the afternoon and evening). The majority of participants (75%) received three shower baths, for a total of 282 videotaped baths. Because the shower bath was the only care event significantly related to aggressive behaviour, only those data are presented. Multilevel statistical modelling identified background factors (gender, mental status score, and lifelong history of less agreeableness) and a proximal factor (amount of night-time sleep) as significant predictors of aggressive behaviour during the shower bath. Significant correlations were found between aggressive behaviour and negative subject affect during the bath, and aggressive behaviour and lifetime agreeableness level. Significant correlations were also found between mental status and the amount of education, and between negative caregiver affect and negative participant affect. Three background and one proximal factor were identified as significant risk factors for aggressive behaviour in dementia. Data identify not only those persons most at risk for aggressive behaviour during care, but also the care event most associated with aggressive behaviour. Together these data inform both caregiving for persons with dementia as well as the design of intervention studies for aggressive behaviour in dementia.
International Journal of Geriatric Psychiatry, 21(8), August 2006, pp.784-791.
Publisher:
Wiley
The authors investigated the influence of demented people's function and caregiver burden on caregivers' psychological distress. Based on a modified model of Pearlin and colleagues (1990), we assessed the stress of demented people's caregivers in Korea. A total of 122 demented people and their caregivers participated in this study. We evaluated dementia severity by the Clinical Dementia Rating...
The authors investigated the influence of demented people's function and caregiver burden on caregivers' psychological distress. Based on a modified model of Pearlin and colleagues (1990), we assessed the stress of demented people's caregivers in Korea. A total of 122 demented people and their caregivers participated in this study. We evaluated dementia severity by the Clinical Dementia Rating (CDR), and caregivers reported their objective and subjective stressors. Objective stressors are the demented people's functional deterioration and behavioral problems, and subjective stressors are caregivers' reaction to objective stressors and the subjective burden in caregiving. The overall psychological distress of caregivers was evaluated by the Beck Depression Inventory (BDI) and the Spielberger Trait Anxiety Inventory-State (STAI-S). There were significant differences in both objective and subjective stressors according to the severity of dementia, but there was no significant difference in caregivers' psychological distress. The goodness-of-fit evaluation model showed the coping and social support variables affected the psychological distress as mediator variables. The model suggests that psychological distress of caregivers is related to diverse variables, such as objective and subjective stressors, coping, and social support. This study provides verification of the modified model of Pearlin and coworkers in Koreans, and lays a foundation for practical use and further study.
Dementia: the International Journal of Social Research and Practice, 14(4), 2015, pp.513-527.
Publisher:
Sage
Despite the highly developed social services in Austria, the County of Upper Austria, one of the nine counties of Austria had only very limited specialized services for persons with dementia and their caregivers in 2001. Support groups existed in which the desire for more specialized services was voiced. In response to this situation, funding was received to develop a new structure for early...
(Publisher abstract)
Despite the highly developed social services in Austria, the County of Upper Austria, one of the nine counties of Austria had only very limited specialized services for persons with dementia and their caregivers in 2001. Support groups existed in which the desire for more specialized services was voiced. In response to this situation, funding was received to develop a new structure for early disease detection and long term support for both the person with dementia and their caregivers. This article describes the development of the model of the Dementia Service Centres (DSCs) and the successes and difficulties encountered in the process of implementing the model in six different rural regions of Upper Austria. The DSC was described in the First Austrian Dementia Report as one of the potential service models for the future.
(Publisher abstract)
Subject terms:
dementia, carers, integrated care, models, diagnosis;