Journal of Social Welfare and Family Law, 43(2), 2021, pp.143-152.
Publisher:
Taylor and Francis
Place of publication:
Philadelphia, USA
By analysing the 2016 Japanese Supreme Court case concerning family caregivers’ liability for damages caused by a person with dementia who was killed by a train while wandering, this article suggests how to address similar cases in the future, considering the rights of persons with dementia to live in the community. The Court absolved the deceased’s wife and son from liability and defined four...
(Edited publisher abstract)
By analysing the 2016 Japanese Supreme Court case concerning family caregivers’ liability for damages caused by a person with dementia who was killed by a train while wandering, this article suggests how to address similar cases in the future, considering the rights of persons with dementia to live in the community. The Court absolved the deceased’s wife and son from liability and defined four criteria to find a person liable for damages: (a) the caregiver’s living, mental, and physical conditions; (b) the conditions of the caregiver’s involvement with a person with a mental disability; (c) the nature and incidence of the problematic behaviours of the person with a mental disability; and (d) the circumstances surrounding their supervision and care. This was the Supreme Court’s first presentation of the criteria for establishing liability for a ‘Person Equivalent to a Supervisor’. To guarantee the rights of a person with dementia to live in the community, the burden on family caregivers must be reduced, and the range of caregivers broadened to include non-family providers. The Court sought to reduce the caregivers’ burden, and if these criteria are applied appropriately, the human rights of dementia patients and caregivers will be protected.
(Edited publisher abstract)
Dementia: the International Journal of Social Research and Practice, 20(1), 2021, pp.231-246.
Publisher:
Sage
Objectives: Few studies have captured the experiences of family carers who manage the nutritional needs of family members living with dementia at home. The identification and management of symptoms that may affect nutritional status is often reliant upon the family carer. This interpretative phenomenological study aimed to explore the experiences and perceptions of the nutritional care of people...
(Edited publisher abstract)
Objectives: Few studies have captured the experiences of family carers who manage the nutritional needs of family members living with dementia at home. The identification and management of symptoms that may affect nutritional status is often reliant upon the family carer. This interpretative phenomenological study aimed to explore the experiences and perceptions of the nutritional care of people living with dementia at home from the perspectives of the family members who support them. Method: Semi-structured interviews were conducted between October 2017 and February 2018. Participants were also asked to keep a diary of experiences for two weeks before the interview. An Interpretative Phenomenological Analysis approach was used throughout. Findings: Eight participants, with a mean age of 69.6 years residing in South West England were recruited and represented a range of familial roles. Following analysis, three superordinate themes were identified: ‘becoming carer and cook’, ‘changing role and relationships’ and ‘emotional eating’. Conclusion: Family carers make food and drink decisions daily, and feel a duty to take on the responsibility for food shopping and cooking. They are conscious about ‘doing the right thing’ when it comes to providing nutritional care, and some feel uncertain about the food choices they are making, particularly regarding a reliance on convenience foods. Changes in appetite, food preferences and mealtime habits related to dementia can lead to disruption affecting the dyad. It is important that family carers and people living at home with dementia are provided with adequate support regarding identifying nutritional risks, making appropriate food and drink choices and preventing the risk of malnutrition in the dyad.
(Edited publisher abstract)
Objectives: Family responsibilities and social expectations often prompt conflict in caregivers’ decision-making processes. Janis and Mann's (1977) conflict model describes vigilance as high-quality decision-making resulting in optimal outcomes. The purpose of our research was threefold: (1) to describe decision styles in a population of family caregivers of persons with dementia; (2) to examine
(Edited publisher abstract)
Objectives: Family responsibilities and social expectations often prompt conflict in caregivers’ decision-making processes. Janis and Mann's (1977) conflict model describes vigilance as high-quality decision-making resulting in optimal outcomes. The purpose of our research was threefold: (1) to describe decision styles in a population of family caregivers of persons with dementia; (2) to examine the socio-economic characteristics associated with caregivers who are more likely to be vigilant decision-makers; and (3) to assess differences in caregiving experiences between vigilant and non-vigilant caregivers. Method: Our analysis was based on 639 survey respondents recruited from a university-affiliated memory disorders clinic. Results: Our typical caregiver was Caucasian non-Hispanic, was currently married, and had two children. Approximately half of our sample used a ‘pure vigilant’ decision style. Vigilance was associated with more positive and fewer negative caregiving outcomes. Conclusion: Supporting caregivers to become vigilant decision-makers is a functionally viable intervention that could significantly improve the caregiving experience.
(Edited publisher abstract)
A practical guide offering advice and practical tips on how to deliver person centred care to people whose lives have been affected by dementia. Sections of the guide cover: getting a diagnosis; communicating well; advice on using assistive technology; using creative therapies, such as music and art therapy; and staying active, eating well and keeping healthy. It also includes information...
(Edited publisher abstract)
A practical guide offering advice and practical tips on how to deliver person centred care to people whose lives have been affected by dementia. Sections of the guide cover: getting a diagnosis; communicating well; advice on using assistive technology; using creative therapies, such as music and art therapy; and staying active, eating well and keeping healthy. It also includes information on funding and bringing carers into the home. The guide is aimed at family members or people caring for someone living with dementia, to help them remain in the familiarity of their own home for as long as possible.
(Edited publisher abstract)
Dementia: the International Journal of Social Research and Practice, 12(6), 2013, pp.821-839.
Publisher:
Sage
To review the effects of dyadic interventions on caregivers and care recipients in the early stages of dementia searches were carried out on four databases (AgeLine, Medline, EBSCO, and PyscINFO) and relevant literature from 2000 onwards reviewed. The twelve studies identified used a variety of intervention approaches including support group, counseling, cognitive stimulation, skill training...
(Edited publisher abstract)
To review the effects of dyadic interventions on caregivers and care recipients in the early stages of dementia searches were carried out on four databases (AgeLine, Medline, EBSCO, and PyscINFO) and relevant literature from 2000 onwards reviewed. The twelve studies identified used a variety of intervention approaches including support group, counseling, cognitive stimulation, skill training, and notebook-keeping. This review suggests that intervention programs for early-stage dementia caregiving dyads were feasible and well accepted by participants. The reviewed studies provided rich evidence of the significance of mutual understanding and communication to partners’ well-being and relationship quality within the caregiving process. The findings suggest that these intervention approaches improved cognitive function of the care recipients, social relations, and the relationship between the primary caregivers and the care recipients, although evidence of long-term effectiveness is lacking.
(Edited publisher abstract)
British Journal of Psychiatry, 199(5), November 2011, pp.417-422.
Publisher:
Cambridge University Press
There is evidence to suggest that people with dementia and their families often receive poorer quality end of life care compared to those who are cognitively intact. This study aimed to define good end-of-life care for people with dementia and to identify how it can be delivered across care settings in the UK. In-depth interviews were conducted with 27 bereaved family carers and 23 care...
There is evidence to suggest that people with dementia and their families often receive poorer quality end of life care compared to those who are cognitively intact. This study aimed to define good end-of-life care for people with dementia and to identify how it can be delivered across care settings in the UK. In-depth interviews were conducted with 27 bereaved family carers and 23 care professionals recruited from the community, care homes, general hospitals and continuing care units. Data were analysed using the constant comparison method. The responses highlighted the challenge and imperative of ‘dementia-proofing’ end-of-life care for people with dementia. This requires using dementia expertise to meet physical care needs, going beyond task-focused care and prioritising planning and communication with families. The authors conclude that the quality of end-of-life care exists on a continuum across care settings. Together, the data reveal key elements of good end-of-life care and that staff education, supervision and specialist input can enable its provision.
Generations, 33(1), Spring 2009, pp.24-29. Published online.
Publisher:
American Society on Aging
As the symptoms and care needs of the person with the condition change throughout the course of dementia, family dynamics manifest themselves and are affected in a number of ways. It is during the early and middle stages that families often realize that they can no longer care for their family member without assistance, and some families recognize the need for support for themselves as well...
As the symptoms and care needs of the person with the condition change throughout the course of dementia, family dynamics manifest themselves and are affected in a number of ways. It is during the early and middle stages that families often realize that they can no longer care for their family member without assistance, and some families recognize the need for support for themselves as well. Examples of dilemmas and controversies are given and illustrated with case studies. Despite the gaps in understanding of family relationships across the long course of dementia, it is clear that families demonstrate strong bonds of attachment and a high degree of resilience as they cope with this devastating condition. It appears that the strength of family ties prior to the onset of dementia and the family member’s motivation for providing care are two of the most powerful predictors of outcomes for both the person with dementia and the caregiver.
As part of Community Care's dementia campaign, the author looks at the often hidden impact of dementia on children in a family. The case of a seventeen year old young carer and a four year old whose grandmother has Alzheimer's disease are described to highlight some issues.
As part of Community Care's dementia campaign, the author looks at the often hidden impact of dementia on children in a family. The case of a seventeen year old young carer and a four year old whose grandmother has Alzheimer's disease are described to highlight some issues.
British Medical Journal, 7.3.09, 2009, pp.583-586.
Publisher:
British Medical Association
This study used a representative cross sectional survey to determine the prevalence of abusive behaviours by family carers of people with dementia. Participants were 220 family carers of people newly referred to secondary psychiatric services with dementia who were living at home. Participants were selected from community mental health teams in Essex and London. The main outcome measure used were...
This study used a representative cross sectional survey to determine the prevalence of abusive behaviours by family carers of people with dementia. Participants were 220 family carers of people newly referred to secondary psychiatric services with dementia who were living at home. Participants were selected from community mental health teams in Essex and London. The main outcome measure used were psychological and physical abuse (revised modified conflict tactics scale). 115 carers reported some abusive behaviour and 74 reported important levels of abuse. Verbal abuse was most commonly reported. Only three carers reported occasional physical abuse. Abusive behaviour by family carers towards people with dementia is common, with a third reporting important levels of abuse and half some abusive behaviour. Results found few cases of physical or frequent abuse, although those with the most abusive behaviour may have been reluctant to report it.
This book looks at the role nurses play when working with people who have dementia, and their relatives. It builds on person-centered and relationship-centered approaches to develop a systemic guide for practice that focuses on the family. "Dementia Care Nursing" is an insight into the field, which outlines approaches that may be used by nurses within practice and provides advice on how dementia
This book looks at the role nurses play when working with people who have dementia, and their relatives. It builds on person-centered and relationship-centered approaches to develop a systemic guide for practice that focuses on the family. "Dementia Care Nursing" is an insight into the field, which outlines approaches that may be used by nurses within practice and provides advice on how dementia care may be developed and enhanced.