In the capacity of her work as a researcher the author visited many people with dementia and their families in their own homes to interview them and discuss their experience of living with dementia. In this reflective account the author discuses the everyday experience of sharing a cup of tea. This practice experience is integrated with literature about cultural practices around tea-drinking
(Edited publisher abstract)
In the capacity of her work as a researcher the author visited many people with dementia and their families in their own homes to interview them and discuss their experience of living with dementia. In this reflective account the author discuses the everyday experience of sharing a cup of tea. This practice experience is integrated with literature about cultural practices around tea-drinking. The author argues that incorporating everyday practices such as tea-drinking should become a feature of interactions with research participants, particularly where building relationships is essential in gathering information, such as when interviewing people.
(Edited publisher abstract)
Subject terms:
dementia, interviewing, interpersonal relationships, activities of daily living;
A speech and language therapist and a clinical psychologist explain how they use Intensive Interaction in their work with people living with dementia and care staff. The approach was originally developed for children and adults with severe learning difficulties, and its primary aims are to help with communication skills, participatory social inclusion and provide therapeutic support. The approach...
(Original abstract)
A speech and language therapist and a clinical psychologist explain how they use Intensive Interaction in their work with people living with dementia and care staff. The approach was originally developed for children and adults with severe learning difficulties, and its primary aims are to help with communication skills, participatory social inclusion and provide therapeutic support. The approach involves observing the person, picking up their key behaviours and using them to start a dialogue using the other persons movement and gestures. The article explains how to carry out Intensive Interaction, looks at authors experiences work working with Intensive Interaction, and their reflections on teaching the approach to staff and using it with people with dementia and their families.
(Original abstract)
Subject terms:
communication, dementia, therapy and treatment, interpersonal relationships;
This article describes how the EDUCATE (Early Dementia Users Cooperative Aiming to Educate) group in Stockport has evolved since it was set up in December 2009. The group is made up of people with a diagnosis of dementia (currently aged from 56 years to 80 years of age) who are committed to educating others about how to live well with dementia. It outlines how they run their monthly meetings
(Original abstract)
This article describes how the EDUCATE (Early Dementia Users Cooperative Aiming to Educate) group in Stockport has evolved since it was set up in December 2009. The group is made up of people with a diagnosis of dementia (currently aged from 56 years to 80 years of age) who are committed to educating others about how to live well with dementia. It outlines how they run their monthly meetings, leadership of the group, and how their Coming Together project has helped people in other areas to set up their own groups.
(Original abstract)
International Journal of Geriatric Psychiatry, 29(12), 2014, pp.1242-1248.
Publisher:
Wiley
Objectives: Physical exercise may modulate neuropathology and symptoms of Alzheimer's disease (AD). This pilot study assessed the feasibility of conducting a study of moderate-to-high intensity aerobic exercise in home-dwelling patients with mild AD.
Methods: An uncontrolled pre-intervention - post-intervention test design with a single group receiving the same intervention. A total of eight patients with mild to moderate AD from the Copenhagen Memory clinic were included in the study. The intervention lasted for 14 weeks and consisted of supervised, 1-h sessions of aerobic exercise three times per week (50-60% of heart rate reserve for a two-week adaptation period and 70-80 % of heart rate reserve for the remaining 12 weeks) Feasibility was assessed based on acceptability, including attendance and drop-out, safety, and patients' and caregivers' attitudes towards the intervention as well as other relevant parameters.
Results: Attendance (mean, range: 90 %, 70-100 %) and retention (seven out of eight) rates were very high. No serious adverse events were observed. In general, patients and caregivers were positive towards the intervention.
Conclusion: This study shows that it is feasible to conduct moderate-to-high intensity aerobic exercise in community-dwelling patients with mild AD. The findings indicate that aspects such as a longer adaptation period, information about injury prevention, and need for involvement and support from caregivers should be addressed when planning an exercise intervention in an AD population.
(Edited publisher abstract)
Objectives: Physical exercise may modulate neuropathology and symptoms of Alzheimer's disease (AD). This pilot study assessed the feasibility of conducting a study of moderate-to-high intensity aerobic exercise in home-dwelling patients with mild AD.
Methods: An uncontrolled pre-intervention - post-intervention test design with a single group receiving the same intervention. A total of eight patients with mild to moderate AD from the Copenhagen Memory clinic were included in the study. The intervention lasted for 14 weeks and consisted of supervised, 1-h sessions of aerobic exercise three times per week (50-60% of heart rate reserve for a two-week adaptation period and 70-80 % of heart rate reserve for the remaining 12 weeks) Feasibility was assessed based on acceptability, including attendance and drop-out, safety, and patients' and caregivers' attitudes towards the intervention as well as other relevant parameters.
Results: Attendance (mean, range: 90 %, 70-100 %) and retention (seven out of eight) rates were very high. No serious adverse events were observed. In general, patients and caregivers were positive towards the intervention.
Conclusion: This study shows that it is feasible to conduct moderate-to-high intensity aerobic exercise in community-dwelling patients with mild AD. The findings indicate that aspects such as a longer adaptation period, information about injury prevention, and need for involvement and support from caregivers should be addressed when planning an exercise intervention in an AD population.
(Edited publisher abstract)
This guide, written by people with dementia, identifies words and descriptors that should be avoided when referring to dementia and people with dementia and suggests alternatives terms that are accurate, balanced and respectful. It recommends that words should be chosen with intent and careful consideration of the message that will actually be received – and the impact it may have on how people...
(Edited publisher abstract)
This guide, written by people with dementia, identifies words and descriptors that should be avoided when referring to dementia and people with dementia and suggests alternatives terms that are accurate, balanced and respectful. It recommends that words should be chosen with intent and careful consideration of the message that will actually be received – and the impact it may have on how people with dementia are viewed and how they feel about themselves. This guidance is aimed at journalists, organisations and communications departments.
(Edited publisher abstract)
Subject terms:
dementia, communication, stereotyped attitudes, mass media;
Journal of Applied Research in Intellectual Disabilities, 27(6), 2014, pp.555-563.
Publisher:
Wiley
...on self-help skills and on both memory tests showed some decline, even when the scores of those already suffering from dementia were discounted.
Conclusions: At age 47, scores on most tests of even the majority of the cohort (i.e. those not definitely diagnosed with dementia) showed some decline. While this includes the scores of people who may subsequently develop dementia, it may also reflect
(Publisher abstract)
Background: A population sample of people with Down syndrome has been studied from infancy and has now been followed up again at age 47 years.
Methods: Intelligence and language skills were tested and daily living skills assessed. Memory/cognitive deterioration was examined using two test instruments.
Results: Scores on verbal tests of intelligence changed little. Those on a non-verbal test, on self-help skills and on both memory tests showed some decline, even when the scores of those already suffering from dementia were discounted.
Conclusions: At age 47, scores on most tests of even the majority of the cohort (i.e. those not definitely diagnosed with dementia) showed some decline. While this includes the scores of people who may subsequently develop dementia, it may also reflect the normal ageing process in this population.
(Publisher abstract)
This report briefly describes an audit that was developed to find available food-related care and dementia written material. It aimed to address what accessible resources focused on food-related information that helps to inform people with dementia and their caregivers. Written information was collected through visiting, calling and emailing target locations over a period of three months mainly...
(Edited publisher abstract)
This report briefly describes an audit that was developed to find available food-related care and dementia written material. It aimed to address what accessible resources focused on food-related information that helps to inform people with dementia and their caregivers. Written information was collected through visiting, calling and emailing target locations over a period of three months mainly around London and the UK. A total of 13 written materials were found. Five main themes emerged after analysis: changes in appetite, changes in food preparation, methods of eating, eating out and dental care and swallowing difficulties. The authors call for further research to assess the impact written material in the area of food has on people with dementia and their caregivers.
(Edited publisher abstract)
Subject terms:
dementia, nutrition, carers, information resources;
Quality in Ageing and Older Adults, 15(3), 2014, pp.151-161.
Publisher:
Emerald
Purpose: Life story work has a relatively long tradition in the caring sciences and is recognised as an important component of dementia care and practice. However, to date, there has not been a review of accessible life story resources. The paper aims to discuss these issues.
Design/methodology/approach: Following a systematic approach to identification and inclusion, 11 life story resources...
(Publisher abstract)
Purpose: Life story work has a relatively long tradition in the caring sciences and is recognised as an important component of dementia care and practice. However, to date, there has not been a review of accessible life story resources. The paper aims to discuss these issues.
Design/methodology/approach: Following a systematic approach to identification and inclusion, 11 life story resources were reviewed to ascertain areas of commonality and divergence between the materials.
Findings: The authors were able to group the analysis under eight areas and at the end of this process, it was uncertain if life story work is a formal staff intervention or an informal activity that people with dementia and their families could engage in. Resources also varied in terms of whether the life story information was organised in a chronological way, or with topics of interest/discussion or with a combination of both. Life story evaluation and its impact on the life of the person with dementia is in need of development.
Practical implications: Across the resources the authors identified four reasons to do life story work which the authors have named as: emotional connections; interactional connections; building new connections and practical care connections.
Social implications: There was limited guidance aimed at helping people with dementia to develop and compile their own life story.
Originality/value: This paper provides new insights into the usefulness, future directions and content of life story resources in dementia care. It will be of interest to those in health and social care as well as people living with dementia.
(Publisher abstract)
Subject terms:
life story work, dementia, older people, literature reviews;
Aim: Place of death is an important component of the quality of a person's death. The aim of this study was to undertake a systematic review and narrative synthesis of the literature concerning place of death of people with dementia and the preferences for location of death of people with dementia as well as family carers and healthcare providers preferred location of death for patients...
(Publisher abstract)
Aim: Place of death is an important component of the quality of a person's death. The aim of this study was to undertake a systematic review and narrative synthesis of the literature concerning place of death of people with dementia and the preferences for location of death of people with dementia as well as family carers and healthcare providers preferred location of death for patients with dementia.
Methods and results: Studies relying on death certificate data show that patients with dementia die more commonly in care homes than other locations contrasting with prospective studies which show that death is more common in own residence and hospital. Age (older), gender (male), availability of hospital and nursing home beds and enrolment in hospice, influence place of death. There is very limited evidence of patients, family carers and healthcare providers' views on preferred location of death for patients with dementia and the only study included reported that, family carers views are more agreed to rather than patients own views regarding place of death.
Conclusion: This study on place of death raises exploratory questions on end-of-life care for patients with dementia which has implications on health and social care policies related to dementia.
(Publisher abstract)
Subject terms:
dementia, death, systematic reviews, end of life care;
Hope and Doodle are a self-advocacy group for people with dementia in South London. The group was developed to give people with dementia the chance to meet others in a similar situation and to access information that is important to them. The article reports on the process of setting up the group, the content of their meetings, and how the group is able to provide support to its members.
(Edited publisher abstract)
Hope and Doodle are a self-advocacy group for people with dementia in South London. The group was developed to give people with dementia the chance to meet others in a similar situation and to access information that is important to them. The article reports on the process of setting up the group, the content of their meetings, and how the group is able to provide support to its members.
(Edited publisher abstract)