Dementia: the International Journal of Social Research and Practice, 20(6), 2021, pp.2133-2151.
Publisher:
Sage
Promoting access to heritage settings has been acknowledged as a way to promote well-being in the United Kingdom for people living with dementia and their care partners. Yet there is a lack of information available internationally on the contribution of heritage sites to promote well-being and social inclusion for those living with dementia. This study addresses this gap by reporting...
(Edited publisher abstract)
Promoting access to heritage settings has been acknowledged as a way to promote well-being in the United Kingdom for people living with dementia and their care partners. Yet there is a lack of information available internationally on the contribution of heritage sites to promote well-being and social inclusion for those living with dementia. This study addresses this gap by reporting on the impact for 48 people of participating in the ‘Sensory Palaces’ (SP) programme run by Historic Royal Palaces at Hampton Court and Kew Palaces in the United Kingdom. Two primary data sources were used; post-session interviews involving 30 participants (the person living with dementia and/or their care partners), and 131 sets of self-complete pre- and post-session mood questionnaires administered directly before and after SP session attendance. Analysis of the data sets is presented under three themes: enjoyment and engagement; connecting and learning and place, space and time. The findings demonstrate that participants highly valued the heritage sessions and reported positively on the impact this had for their individual well-being and their relationships with one another. This study highlights the opportunity for heritage sites to contribute to promoting well-being for people living with dementia.
(Edited publisher abstract)
Dementia: the International Journal of Social Research and Practice, 12(6), 2013, pp.682-696.
Publisher:
Sage
This paper discusses three broad theoretical models which underpin dementia care policy (as well as practice and research): biomedical, psycho-social and social-gerontological. The models are critically assessed and discussed in relation to illustrative examples of dementia policy across three policy regions of the devolved UK. The contribution and implications of theoretical models of dementia...
(Edited publisher abstract)
This paper discusses three broad theoretical models which underpin dementia care policy (as well as practice and research): biomedical, psycho-social and social-gerontological. The models are critically assessed and discussed in relation to illustrative examples of dementia policy across three policy regions of the devolved UK. The contribution and implications of theoretical models of dementia policy highlight the importance of recognising how different theoretical understandings of dementia influence dementia policy. The development and improvement of policy and practice in the area of dementia care require an understanding of the often implicit theoretical approaches to dementia.
(Edited publisher abstract)
Journal of Dementia Care, 20(2), March 2012, pp.37-39.
Publisher:
Hawker
In 2009, NHS Highland developed a Knowledge Transfer Partnership designed to support it in meeting its targets related to the early diagnosis of dementia, provision of early interventions and promoting the quality of care and life for people with dementia, and their carers. This article reports on the diagnosis pathways that are in place across the region, and the development of specialist...
In 2009, NHS Highland developed a Knowledge Transfer Partnership designed to support it in meeting its targets related to the early diagnosis of dementia, provision of early interventions and promoting the quality of care and life for people with dementia, and their carers. This article reports on the diagnosis pathways that are in place across the region, and the development of specialist services. It shows how policy objectives can be achieved, taking into consideration staff ideas and the evidence that is available. Data were captured throughout the area to explore how the initiative was being implemented. There were different models of diagnosing dementia in place, the effectiveness of which was dependant on how they used local resources to address the needs of the local population. The models described in this article demonstrate different ways to achieve policy objectives.
There has been a tendency in dementia studies to focus on individual psychosocial dynamics. Here the author takes a wider view and approaches the subject from a social science perspective. The book critically examines the main approaches to understanding dementia (bio-medical, social-psychological and socio-gerontological) and the main principles and ideologies of care, drawing widely...
There has been a tendency in dementia studies to focus on individual psychosocial dynamics. Here the author takes a wider view and approaches the subject from a social science perspective. The book critically examines the main approaches to understanding dementia (bio-medical, social-psychological and socio-gerontological) and the main principles and ideologies of care, drawing widely on the research literature in these and related fields, such as disability studies and politics. The author provides an historical and critical evaluation of where and why the study of dementia began, how it has developed in the areas of research, practice, and policy and what needs to be done with this knowledge in order to create social change that improves the lives of people with dementia and their families. The gap between the utopian aspirations of care and the reality of care are discussed, opening up a series of questions about knowledge and treatment of dementia. The book argues for a transition from an emphasis upon the individual or particular care services to the wider social, cultural and economic context. It is expected to be of value to students of nursing, sociology of health and illness, social work and social gerontology, as well as academics and those personally affected by the dementia.
Subject terms:
social policy, social care provision, sociology, dementia;
Dementia: the International Journal of Social Research and Practice, 20(2), 2021, pp.444-463.
Publisher:
Sage
Current international dementia care policies focus on creating ‘dementia-friendly’ communities that aim to support the social inclusion of people with dementia. Although it is known that the geo-socio-cultural rural environment can impact on the experiences of people living with dementia, this can be overlooked when exploring and implementing social inclusion policies. This paper addresses...
(Edited publisher abstract)
Current international dementia care policies focus on creating ‘dementia-friendly’ communities that aim to support the social inclusion of people with dementia. Although it is known that the geo-socio-cultural rural environment can impact on the experiences of people living with dementia, this can be overlooked when exploring and implementing social inclusion policies. This paper addresses an important gap in the literature by exploring the perceptions of daily life for older men (65+ years) living with dementia in three rural areas of England. Open interviews were conducted with 17 rural-dwelling older men with dementia and the data elicited were analysed thematically to construct two higher order themes. The first focussed on ‘Cracking on with life in a rural idyll’ and highlighted the benefits of rural living including the pleasant, natural environment, supportive informal networks and some accessible formal dementia support. The second presented ‘A challenge to the idyll’ and outlined difficulties the men faced including a lack of dementia awareness amongst their family and the wider rural community as well as the physical and internal motivational barriers associated with the rural landscape and their dementia. The findings were interpreted through a lens of social inclusion and demonstrated how the geo-socio-cultural rural environment both enabled and inhibited facets of the men’s experiences of life in their communities. Based on these findings, the paper offers recommendations for practitioners, researchers and policy makers wishing to promote social inclusion in rural-dwelling older men living with dementia.
(Edited publisher abstract)
Subject terms:
rural areas, older people, men, dementia, social inclusion;
This book focuses on theoretical, policy and practice issues which are predicted to become fundamental priorities in the near future, and how dementia care works across the globe. It explores the theory underpinning dementia care, the applications of theory in dementia care research, and how this research is influencing and shaping practice. The contributors are practitioners, policy influencers...
This book focuses on theoretical, policy and practice issues which are predicted to become fundamental priorities in the near future, and how dementia care works across the globe. It explores the theory underpinning dementia care, the applications of theory in dementia care research, and how this research is influencing and shaping practice. The contributors are practitioners, policy influencers and researchers who analyse case studies from the UK, the USA, Canada, Australia, India, France and Malta with the aim of encouraging a dialogue and exchange of interdisciplinary initiatives and ideas. Their insights into how policy and national dementia strategies are developed, and the range of approaches that can be taken in practice, will provide a positive step towards ensuring that the needs of those with dementia are met, both now and in the future. This book is designed for practitioners, researchers, policy makers and students in the field of dementia care.
Subject terms:
older people, policy, social care provision, dementia, health care;
Dementia: the International Journal of Social Research and Practice, 10(2), May 2011, pp.165-184.
Publisher:
Sage
Demographic changes have led to an increase in the number of people with dementia at a time when there are less carers available to provide care. This paper specifically examines the experiences of dementia family caregivers in Malta. The study design was essentially exploratory as this is the first funded social research on dementia on the island. Semi-structured interviews were conducted...
Demographic changes have led to an increase in the number of people with dementia at a time when there are less carers available to provide care. This paper specifically examines the experiences of dementia family caregivers in Malta. The study design was essentially exploratory as this is the first funded social research on dementia on the island. Semi-structured interviews were conducted in 2008 with 17 caregivers sourced from an outpatient memory clinic. A thematic analysis was guided by the questions – what are the experiences of family caregiving in Malta, and what impact does caregiving have for individual/family life? Three key findings are discussed, namely: the organisation of family care in Malta; the use of formal services; and the dislocation of dementia caregiving experiences from wider community life. This paper raises questions about support mechanisms currently available in Malta while presenting cross-national learning opportunities to apply established knowledge to Malta.
Subject terms:
social care provision, user views, carers, dementia, families;
University of Stirling. Dementia Services Development Centre
Publication year:
2010
Pagination:
47p., bibliog.
Place of publication:
Stirling
This guide highlights the contribution staff can make in ensuring that the palliative and end of life care of people with dementia fits their needs and preferences. The resource begins by setting the scene, discussing the principles of palliative care and making the distinction between generalist and specialist palliative care. It tackles issues such as the discomfort people may feel when talking...
This guide highlights the contribution staff can make in ensuring that the palliative and end of life care of people with dementia fits their needs and preferences. The resource begins by setting the scene, discussing the principles of palliative care and making the distinction between generalist and specialist palliative care. It tackles issues such as the discomfort people may feel when talking about death and dying. The writers then turn to the different care contexts looking at; the issues for people with dementia and family carers at home, transition between care settings, and care in residential or nursing homes, pain control, the concept of a good death and support for staff following the death of a resident. The final section considers specific issues such as cultural diversity, spiritual care, decision making, dilemmas in care, artificial nutrition, and advance directives. The resource includes practice examples, practitioner tips, references to research literature, a summary of policy developments and web links.
Subject terms:
palliative care, decision making, dementia, end of life care, good practice;
Journal of Dementia Care, 11(5), September 2003, pp.37-38.
Publisher:
Hawker
Reports on research which sought views of people with dementia themselves on provision of services for them in remote and rural areas of Scotland. Face-to-face, semi-structured interviews were carried out with 17 people with dementia. The study found that people with dementia were willing and able to give evaluations of the services they received. Highlights that services could be further...
Reports on research which sought views of people with dementia themselves on provision of services for them in remote and rural areas of Scotland. Face-to-face, semi-structured interviews were carried out with 17 people with dementia. The study found that people with dementia were willing and able to give evaluations of the services they received. Highlights that services could be further developed by consulting with people with dementia themselves.
Subject terms:
older people, rural areas, social care provision, user views, dementia;
Offering practical advice for arts therapists and health care professionals, this book emphasises the importance of putting the individual before the illness to provide holistic, person centred support for people with dementia. Contains contributions from music, dance and visual arts therapists.
Offering practical advice for arts therapists and health care professionals, this book emphasises the importance of putting the individual before the illness to provide holistic, person centred support for people with dementia. Contains contributions from music, dance and visual arts therapists.
Subject terms:
music therapy, older people, art therapy, dance therapy, dementia;