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Assessment of agreement between parents and children on health-related quality of life in children with cystic fibrosis
- Authors:
- HAVERMANS T., et al
- Journal article citation:
- Child: Care, Health and Development, 32(1), January 2006, pp.1-7.
- Publisher:
- Wiley
Cystic fibrosis (CF) is the most common life-shortening autosomal-recessive condition, affecting approximately 1500 persons in Belgium. CF affects the functions of many organs, with its greatest effects on the lungs and on pancreatic exocrine function. Treatment of the disease involves a multi-component regimen, including airway clearance techniques, aerosol medications, inhalers, antibiotics, pancreatic enzymes and increased caloric intake. Doctors and healthcare workers need to obtain a lot of information about medical and psychosocial aspects in order to provide the patient with the best possible and most suitable care. In the past 15 years, health-related quality of life (HRQOL) has become of major interest in health psychology, and HRQOL measures have enabled healthcare workers to obtain a better understanding of the impact of the illness and its treatment on patients' lives. The purpose of the present study was to evaluate parent–child concordance on assessing HRQOL in children with CF using the validated cystic fibrosis questionnaire (CFQ).