Search results for ‘Subject term:"cerebral palsy"’ Sort:
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Understanding cerebral palsy: a guide for parents and professionals
- Author:
- STANTON Marion
- Publisher:
- Jessica Kingsley
- Publication year:
- 2012
- Pagination:
- 224p.
- Place of publication:
- London
This book is designed as an invaluable starting point for anyone encountering cerebral palsy for the first time, and provides essential background information on causes, types and symptoms, as well as vital advice about the treatments, therapies and sources of support available. Practical tips on everyday considerations such as communication, diet and education will help parents achieve the best quality of life for their child. It explores options after compulsory education and how best to support a young person making the transition to independent adulthood. Using personal experience and case studies as sources of inspiration, as well as a comprehensive list of resources to signpost readers to further information, this handbook will help parents and professionals better understand cerebral palsy and the different options available to people with the condition. Chapters include: an introduction to cerebral palsy; should therapy and treatment be your first priority?; the early stages; management of cerebral palsy; special considerations; alternatives to verbal communication; day to day life; complementary therapy; informal support, social factors and disadvantage; education; after school - what next?; and useful addresses and contacts.
Systematic review of the efficacy of parenting interventions for children with cerebral palsy
- Authors:
- WHITTINGHAM K., WEE D., BOYD R.
- Journal article citation:
- Child: Care, Health and Development, 37(4), July 2011, pp.475-483.
- Publisher:
- Wiley
This review assessed the effectiveness of parenting interventions for parents of children with cerebral palsy (CP) on child behavioural outcomes and parenting skill outcomes. No randomised clinical trials of parenting interventions with parents of children with CP were identified. Three studies were identified that involved the examination of a targeted parenting intervention via a pre-post design. Interventions included the implementation of parenting interventions in conjunction with behavioural intervention and oral motor exercises for children with CP and feeding difficulties. All studies found changes in relevant child behavioural outcomes. The studies reviewed suggest that parenting interventions may be an effective intervention for parents of children with CP. However, the current research is limited to pre-post designs of targeted parenting interventions focused upon communication. The authors concluded that a randomised controlled trial of parenting interventions for families of children with CP is urgently needed to address this lack of literature and provide families of children with CP with an evidence-based intervention to address behavioural and emotional problems in their children.
Maternal parenting stress and its correlates in families with a young child with cerebral palsy
- Authors:
- GLENN S., et al
- Journal article citation:
- Child: Care, Health and Development, 35(1), January 2009, pp.71-78.
- Publisher:
- Wiley
Eighty mothers and children participated in this study to investigate factors predicting parenting stress in mothers of pre-school children with cerebral palsy. Mothers completed the Parenting Stress Index (PSI) and the following measures of family functioning: family support, family cohesion and adaptability, coping strategies, family needs and locus of control. Children were assessed using the Griffiths Scales and the Gross Motor Function measure. The child's home environment was assessed using Home Observation for Measuring the Environment. Mothers had higher mean total PSI scores than the means for the typical sample; 43% had total PSI scores above the threshold for clinical assessment. Cluster analysis demonstrated five distinct clusters of families, more than half of whom were coping well. High stress items were role restriction, isolation and poor spouse support, and having a child who was perceived as less adaptable and more demanding. Lower stress items indicated that this sample of mothers found their children emotionally reinforcing and had close emotional bonds. Regression analysis showed that the factors most strongly related to parenting stress levels were high family needs, low family adaptability and cognitive impairment in the child. The results confirmed the individuality of families, and that individual characteristics of coping and feeling in control, together with family support and cohesion, are associated with variation in amount of stress experienced in parenting a child with cerebral palsy.
I am who I need to be: reflections on parental identity development from a father of a child with disabilities
- Author:
- SINGH Shailen
- Journal article citation:
- Disability and Society, 34(5), 2019, pp.837-841.
- Publisher:
- Taylor and Francis
This article, is a personal reflection by the father of a child diagnosed with cerebral palsy. The article describes the process of internalized disability as a construct of self identity. This process was focused on the skillsets needed to develop to navigate structures associated with disability on behalf of the child. In doing so, an identity focused on negotiating/maintaining the borders between the father's own perspective as an able-bodied individual and the needs of my disabled son emerged. (Edited publisher abstract)
A randomized controlled trial of group Stepping Stones Triple P: a mixed-disability trial
- Authors:
- ROUX Gemma, SOFRONOFF Kate, SANDERS Matthew
- Journal article citation:
- Family Process, 52(3), 2013, pp.411-424.
- Publisher:
- Wiley
Stepping Stones Triple P (SSTP) is a parenting programme designed for families of a child with a disability. The current study involved a randomised controlled trial of Group Stepping Stones Triple P (GSSTP) for a mixed-disability group. Participants were 52 families of children diagnosed with an Autism Spectrum Disorder, Down syndrome, Cerebral Palsy, or an intellectual disability. The results demonstrated significant improvements in parent-reported child behaviour, parenting styles, parental satisfaction, and conflict about parenting. Results among participants were similar despite children's differing impairments. The intervention effect was maintained at 6-month follow-up. The results indicate that GSSTP is a promising intervention for a mixed-disability group. Limitations of the study, along with areas for future research, are also discussed. (Publisher abstract)