Search results for ‘Subject term:"cerebral palsy"’ Sort:
Results 1 - 3 of 3
Our family, our future: 30 families with disabled children tell their stories
- Author:
- CONTACT A FAMILY
- Publisher:
- Contact a Family
- Publication year:
- 2009
- Pagination:
- 68p.
- Place of publication:
- London
Thirty families from across the UK whose children are affected by a range of disabilities tell their story. Parents talk about their children's achievements, acknowledge the challenges, reflect on their aspirations and fears for the future.
Asian carers' experiences of medical and social care: the case of cerebral palsy
- Authors:
- MIR Ghazala, TOVEY Philip
- Journal article citation:
- British Journal of Social Work, 33(4), June 2003, pp.465-479.
- Publisher:
- Oxford University Press
This paper discusses the experience of South Asian carers of a person with cerebral palsy. Previous research in this area has failed to explore carers' perceptions of causation or their views on the quality of service support. Qualitative interviews were carried out with twenty carers in two localities in the north of England with the aim of providing in-depth contextualized data on their experiences over time, their attitudes towards cerebral palsy and their interactions with service provision. Results show that parents' views on causation differ markedly from explanations based on a medical, genetic model of cause. Parental attitudes towards cerebral palsy are shown to be influenced both by interactions with service professionals and by parents' ability to manage their situation. The absence of adequate material and emotional resources may foster a negative construction of disability by parents that, in turn, has detrimental effects on the individual with cerebral palsy. Parents' religious beliefs can act as a source of emotional support that helps them develop a constructive perspective on disability and deal with future uncertainty. The authors This paper discusses the experience of South Asian carers of a person with cerebral palsy. Previous research in this area has failed to explore carers' perceptions of causation or their views on the quality of service support. Qualitative interviews were carried out with twenty carers in two localities in the north of England with the aim of providing in-depth contextualized data on their experiences over time, their attitudes towards cerebral palsy and their interactions with service provision. Results show that parents' views on causation differ markedly from explanations based on a medical, genetic model of cause. Parental attitudes towards cerebral palsy are shown to be influenced both by interactions with service professionals and by parents' ability to manage their situation. The absence of adequate material and emotional resources may foster a negative construction of disability by parents that, in turn, has detrimental effects on the individual with cerebral palsy. Parents' religious beliefs can act as a source of emotional support that helps them develop a constructive perspective on disability and deal with future uncertainty.
Children in need of special care
- Author:
- WEIHS Thomas J
- Publisher:
- Souvenir Press
- Publication year:
- 2000
- Pagination:
- 152p.,list of orgs.,bibliog.
- Place of publication:
- London
- Edition:
- Rev. ed.
Examines various types of learning and developmental disabilities within the context of a theory of child development. After a general review of developmental disturbance and communication disorders, goes on to discuss the special needs of children with autism, Down's syndrome, epilepsy, fragile X syndrome, emotional deprivation, cerebral palsy, and hyperactivity. Ends with a consideration of the disabled child's needs within the family and social environment.