Search results for ‘Subject term:"cerebral palsy"’ Sort:
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Stand up the real Glynn Vernon
- Authors:
- SCOPE, (Producer)
- Publisher:
- SCOPE
- Publication year:
- 1988
- Pagination:
- (25 mins.), videocassette
- Place of publication:
- London
Stand up the real Glynn Vernon is the story of one man’s views, opinions, beliefs and plans for the future from someone who happens to have Cerebral Palsy.
Exploring trends: tracking evaluations data over several months by therapists and parents of children with cerebral palsy
- Authors:
- HAYASHI Reiko, FROST Caren J.
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 6(4), 2007, pp.1-14.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This pilot study was designed to compare the perceptions of parents and therapists of the performance trends of 53 children with cerebral palsy, based on a performance goal jointly set for each child by his/her therapist and parent(s). The underlying motivation was the understanding that improvements detected in an outpatient therapeutic session may not necessarily be transferred to everyday settings, and thus children may be receiving interventions that have little or no impact on their quality of life. Data were collected from parents over six months, and the children were assessed by their therapists at each therapy session. Both sets of evaluations showed a statistically significant upward trend in performance. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Physical activity in the life of a woman with cerebral palsy: physiotherapy, social exclusion, competence, and intimacy
- Authors:
- GASKIN Cadeyrn J., ANDERSON Mark B., MORRIS Tony
- Journal article citation:
- Disability and Society, 27(2), March 2012, pp.205-218.
- Publisher:
- Taylor and Francis
People with cerebral palsy often lead sedentary lives which can compromise their health and functional well-being. This case study aimed to understand the impact of inactivity in depth at an individual level. A 29-year-old minimally active woman with cerebral palsy (Alana) was interviewed about the meanings and experiences of physical activity throughout her life. Her responses suggested that she had adverse childhood experiences with physical activity, including: having to perform difficult, and sometimes painful, physiotherapy; wearing callipers to assist her walking; demonstrating limited competence at physical activity; being excluded from physical education and other organised physical activity at school; and feeling socially isolated from her classmates. These experiences appear to have contribute to feelings of difference/inferiority and Alana’s subsequent avoidance of physical activity, which, in turn, might have contributed to premature functional decline. It is suggested that physical activity levels in people with cerebral palsy might be increased through focusing on enhancing childhood experiences. Strong social motives seemed to underlie decisions to be physically active. Parents, teachers, and other caregivers need to assist children with cerebral palsy to integrate into the physical (and, therefore, social) worlds of their peers.
Active citizens or passive recipients: how Australian young adults with cerebral palsy define citizenship
- Authors:
- YEUNG Polly H.Y., PASSMORE Anne E., PACKER Tanya L.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 33(1), March 2008, pp.65-75.
- Publisher:
- Taylor and Francis
Citizenship participation by young adults has reciprocal benefits both for the individual and for society. This paper provides an insight into the ways young people with cerebral palsy (CP) perceive their citizenship experiences, and also examines factors which may influence citizenship participation for this group. Qualitative methodology was used to explore perceptions of citizenship experiences in young people with CP. Nine participants (aged 18-30 years), were interviewed using a semi-structured interview format. Four themes emerged: (i) contribution, (ii) inclusion, (iii) equal opportunity, and (iv) a barrier-free context. The nine participants indicated that they aspired to make a contribution to society, play an active role, be accepted by others, and live with dignity and respect, as well as pursue their dreams and passions.
Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment
- Authors:
- McMANUS V., et al
- Journal article citation:
- Child: Care, Health and Development, 32(2), March 2006, pp.185-192.
- Publisher:
- Wiley
An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries. The objective was to inform the content of a questionnaire relevant to the environment of children with cerebral palsy (CP) living in Europe. Participants Parents of 28 children with CP from five countries; Denmark, France, Italy, Ireland and Sweden. One discussion group was held in each country with an average of seven parents per group. The four themes identified in the preliminary work done in England were strongly confirmed across Europe – namely: Mobility, Transport, Support by and to parents, and Attitudes of individuals and institutions towards children. Two new themes identified in the discussion groups were Bureaucracy and Access to information about rights and entitlements.The environmental factors that cause concern to parents of children with CP are similar across Europe. A prototype environmental questionnaire has been developed based on these findings. The environmental questionnaire is in use in a study in nine European centres.