Search results for ‘Subject term:"cerebral palsy"’ Sort:
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Social outcomes of young adults with cerebral palsy
- Authors:
- REDDIIHOUGH Dinah S., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 38(3), 2013, pp.215-222.
- Publisher:
- Taylor and Francis
Background: Functional abilities and social outcomes of young adults with cerebral palsy (CP) are relatively underresearched. Improvements in paediatric care have extended the expectation of achieving adulthood to 90%. Method :Young adults aged 20–30 years with CP (n = 335) were compared to a population-based control group (n = 2,152) of the same age. Motor function, self-care abilities, educational level, and social outcomes were determined by questionnaire. Results: Half the study group walked independently, but only 35.5% were independent in self-care. In comparison to their peers without disability, the study group's highest educational level was lower (p < .0001), as were rates of employment (36.3% compared with 80%), they were more likely to be living with parents (80% compared with 21%), to be single, and to have limited financial resources. Conclusion: Young adults with CP are functionally and socially disadvantaged in contrast with their peers without disability. Self-care dependence, intellectual disability, and communication impairments contribute to these outcomes but are not solely responsible. (Publisher abstract)
The impact of switching on family caregivers of children with cerebral palsy
- Authors:
- NICOLSON Amy, MOIR LOIS, MILSTEED Jeannine
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 8(2), 2013, pp.169-175.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: This study aimed to enhance our knowledge and understanding of switching, as assistive technology, and how it impacts on family caregivers of children with cerebral palsy with GMFCS levels four or five. Methods: A qualitative method using a constructivist approach was adopted. Purposive sampling was used to recruit five caregivers to participants in this study. Framework analysis was applied to the data collection of semistructured interviews conducted with each caregiver. Findings: The three main themes identified were an investment in the future, resulting in joy and hope. The learning process of switching is resource intensive, time consuming and effortful for caregivers. If caregivers do not perceive this as an investment, then they may not experience the joy switching can bring to their child, and in turn the joy, hope, and caregiver satisfaction it can offer for the future. Conclusion: This research indicates that caregivers often have the greatest impact on whether switching will be adopted in the home. The greatest impact on caregivers is related to their perception on the competence of therapists and coordination of services provided. (Publisher abstract)
Experiences of participation in a Swedish society among adults with cerebral palsy or spina bifida: involvement and challenges
- Authors:
- TORNBOM Karin, TORNBOM Marie, SUNNERHAGEN Stibrant
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 12(4), 2013, pp.256-271.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Participation in society is vital to mental health and is beneficial to individuals and society. The goal of this study was to provide insight into how people with cerebral palsy and spina bifida view their experiences of participation and to examine factors that might influence this issue. The results show that participants emphasised the importance of being accepted and treated equally. Living independently and being able to play an active and leading role in their lives was also essential. Participation was described as a process of interaction between a person and society, with mutual responsibility in respect to integration. (Publisher abstract)
Journeys back into work
- Authors:
- IRISS, SUSE (SCOTTISH UNION OF SUPPORTED EMPLOYMENT)
- Publisher:
- IRISS
- Publication year:
- 2013
- Place of publication:
- Glasgow
Four video case studies on supported employment which explain how four individuals were supported by different agencies to find permanent employment. Cornerstone helped Julie, who has systematic lupus erthymatosis, regain her self confidence through a new career as a catering assistant in a care home. Fraktul, a web design and marketing company, found helpful advice and support from Capability Scotland on making adaptations to the workplace when they employed Victoria, who lives with cerebral palsy. Elizabeth found her way back into employment after a long period of severe depression, with the help of the Scottish Association for Mental Health (SAMH). Lyndsay and the RNIB demonstrate that visual impairment need not be a barrier to working in and managing a cafe. Their stories provide a picture of the outcomes that supported employment can achieve. The transcripts and videos can be downloaded. (Edited publisher abstract)
A randomized controlled trial of group Stepping Stones Triple P: a mixed-disability trial
- Authors:
- ROUX Gemma, SOFRONOFF Kate, SANDERS Matthew
- Journal article citation:
- Family Process, 52(3), 2013, pp.411-424.
- Publisher:
- Wiley
Stepping Stones Triple P (SSTP) is a parenting programme designed for families of a child with a disability. The current study involved a randomised controlled trial of Group Stepping Stones Triple P (GSSTP) for a mixed-disability group. Participants were 52 families of children diagnosed with an Autism Spectrum Disorder, Down syndrome, Cerebral Palsy, or an intellectual disability. The results demonstrated significant improvements in parent-reported child behaviour, parenting styles, parental satisfaction, and conflict about parenting. Results among participants were similar despite children's differing impairments. The intervention effect was maintained at 6-month follow-up. The results indicate that GSSTP is a promising intervention for a mixed-disability group. Limitations of the study, along with areas for future research, are also discussed. (Publisher abstract)
Adapted bikes – what children and young people with cerebral palsy told us about their participation in adapted dynamic cycling
- Authors:
- PICKERING Dawn M., et al
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 8(1), 2013, pp.30-37.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: Children and young people with Cerebral Palsy have limited opportunities for participation and there has been limited research to explore this concept. Adapted dynamic cycling (ADC) is one activity that can enable them to participate in the community. The aim of this paper is to report the views and experiences of children and young people with CP and their families regarding their participation in ADC. Methods: This was part of a mixed methods study of which the qualitative findings are reported here. Iterative creative methods were developed which involved semi-structured interviews and diaries about the ADC experience. Results: The themes that emerged were the staff and the environment at the cycling hire project, the facilitators and barriers to ADC, the technical set up of the bike and the impact on the child and family in terms of developments over time, future aspirations, learning cycling skills, social participation and health benefits. Conclusions: The data showed that children’s experiences of ADC were fun and enjoyable. This fun exercise should be incorporated into a physiotherapy programme as part of the child or young person with CP’s rehabilitation. Policy makers and parents may find the information useful to increase the child’s participation.