Search results for ‘Subject term:"cerebral palsy"’ Sort:
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Conductors at the crossroads
- Author:
- REDDING Don
- Journal article citation:
- Community Care, 16.11.89, 1989, pp.15-18.
- Publisher:
- Reed Business Information
Economic and political pressures are threatening to undermine the work of Hungary's Peto Institute, which has become a victim of its own success.
Conductors and the team approach
- Author:
- STEWART J.
- Journal article citation:
- Social Work Today, 17.11.88, 1988, p.20.
- Publisher:
- British Association of Social Workers
The multidisciplinary team approach to conductive education.
Assistive devices and cerebral palsy: factors influencing the use of assistive devices at home by children with cerebral palsy
- Authors:
- HUANG I- C., SUGDEN D., BEVERIDGE S.
- Journal article citation:
- Child: Care, Health and Development, 35(1), January 2009, pp.130-139.
- Publisher:
- Wiley
This study aimed to explore the usability of assistive devices at home by children with cerebral palsy and consider the underlying factors related to the device usage in this setting mainly from the children's perspectives. Semi-structured interviews were adopted as the main data collection instrument. A total of 30 participants were involved in the study, including 15 Taiwanese children with cerebral palsy and 15 mothers. The results showed a low frequency of device use at home by the participating children. Four factors leading to low device use at home were identified, including children's reluctance, mothers' perspectives, physical environmental barriers and device-related barriers. The results highlight the need, when considering the usability of assistive devices, to take into account three interactive factors, namely, the personal, device and environmental factors. They also demonstrate the importance of taking children's different developmental stages and unique personal experiences into consideration in understanding the influence of assistive device intervention for children with cerebral palsy.
Stress in parents of children with cerebral palsy: what sources of stress are we talking about?
- Authors:
- KETELAAR M., et al
- Journal article citation:
- Child: Care, Health and Development, 34(6), November 2008, pp.825-829.
- Publisher:
- Wiley
Parents of children with cerebral palsy (CP) often experience high levels of stress. Little is known however on the different sources of stress parents experience. This study aimed to explore the relation between aspects of parental distress in the parenting role and the child's limitations in functional skills and the child's behavioural difficulties, in parents of children with CP. A cross-sectional study among 42 parents of ambulatory children with CP (age 3–8 years; GMFCS levels I–III) was performed, using the Parenting Stress Index (PSI), the Paediatric Evaluation of Disability Inventory (PEDI) and the Vineland Adaptive Behaviour Scales (VABS). Regression analysis revealed that the PEDI Functional Skills and VABS Maladaptive behaviour scores explained 27% of the total variance in the PSI Parent domain total stress score. Maladaptive behaviour did significantly contribute to parental stress scores for the Parent domain subscales Attachment, Relationship with spouse, Depression, and, in particular, Sense of competence. Parents' functioning can be affected by behavioural aspects of the child with CP, and sense of competence could be an important variable in this relation. This emphasizes the importance of the development of specific interventions that support the family as a whole.
A pilot study to compare the use of prototypes of multipositional paediatric walking sticks and tripods with conventional sticks and tripods by children with cerebral palsy
- Authors:
- TOMS B., HARRISON B., BOWER E.
- Journal article citation:
- Child: Care, Health and Development, 33(1), January 2007, pp.96-106.
- Publisher:
- Wiley
The researchers designed prototypes of a walking stick and a tripod termed Multipositional Paediatric Walking Aids for children with cerebral palsy (CP). The design won the 'Jenx Award for Innovation in Paediatric Physiotherapy'. The object of this study was to ascertain whether the prototypes had any benefit over conventional designs in children with CP.A small case series within-subject comparison design was used. There were four periods, AABA, each 4 weeks in length. Prototypes were used during period B. Eight children with CP between 4 and 11 years were recruited, four used sticks and four used tripods. Following an orthopaedic assessment, each child had assessments at the Commencement of the study and every 4 weeks thereafter: (1) Energy used while walking using Physiological Cost Index (PCI). (2) Motor abilities using (a) Gross Motor Function Measure (GMFM-88) and (b) Gross Motor Performance Measure (GMPM). (3) Hand/forearm position recorded on a visual analogue. (4) Parent/child questionnaire. Results Physiological Cost Index improved overall when the prototypes were used suggesting the amount of energy used when walking with the prototypes was less than with conventional sticks/tripods. GMFM-88 and GMPM results improved for some but not all children. Results for PCI, GMFM and GMPM were not statistically significant. The hand/forearm position of stick users consistently improved at assessment 4. Questionnaire results indicated that stick users preferred the prototypes. Multipositional sticks/tripods may have benefits over conventional sticks/tripods. Children using sticks rather than tripods preferred the prototypes. The study demonstrates the need to undertake scientifically controlled trials before marketing new equipment.
A qualitative study, using focused interviews, of the information needs of families whose children's names are on a cerebral palsy register
- Authors:
- MILLER J., COLLIGAN J., COLVER A.
- Journal article citation:
- Child: Care, Health and Development, 29(6), November 2003, pp.465-471.
- Publisher:
- Wiley
Focused interviews with 13 families selected by purposive sampling were used to investigate concern that information held on a register of children with cerebral palsy was not being made available to contributing families and that its existence and purpose were not sufficiently understood. Results showed that many parents would like more information about data on registers including their child, and to be more involved in the design of the register and its reports, but there are practical difficulties in making time available. Although parents were surprised they had not already been given more information about the register's existence and purpose, none were resentful that their child's name was on once reassured about confidentiality and database security. Parents also had general concerns, unrelated to the register, about their need to be treated as equals by professionals, to have more information about equipment and to have earlier and clearer diagnoses. Registers of children with uncommon conditions have well-established roles in epidemiology, planning and research. By fully involving parents in ways suggested by this study, registers can also empower parents. It should also provide reassurance to those who hold such registers without explicit consent that the requirement to now obtain consent should not create resentment or jeopardise completeness.
Expectations and realisations: the employment story of a young man with cerebral palsy
- Author:
- CRITTEN Val
- Journal article citation:
- Disability and Society, 31(4), 2016, pp.573-576.
- Publisher:
- Taylor and Francis
Britain has laws and a range of policies which promote the employment of disabled people. The lack of progress to get disabled people into paid work has resulted in huge dissatisfaction for some. Evidence of disability and employment problems is often expressed as hard data, but what of the personal experiences of trying to find employment? This article is based on interviews with ‘Nick’, a young man with cerebral palsy who wanted to recount his preparation for work, including work experience, through school, the Connexions service and the local Employment Office. He explained how he felt his voluntary work and work experiences were not fully planned and ultimately unsatisfactory. Nick found paid employment, but soon discovered that there were too many problems for him to continue. He reflected on his experiences, including his own initial confidence, his despair at the ending of his paid employment and the realities of what employment means for him. (Publisher abstract)
Social outcomes of young adults with cerebral palsy
- Authors:
- REDDIIHOUGH Dinah S., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 38(3), 2013, pp.215-222.
- Publisher:
- Taylor and Francis
Background: Functional abilities and social outcomes of young adults with cerebral palsy (CP) are relatively underresearched. Improvements in paediatric care have extended the expectation of achieving adulthood to 90%. Method :Young adults aged 20–30 years with CP (n = 335) were compared to a population-based control group (n = 2,152) of the same age. Motor function, self-care abilities, educational level, and social outcomes were determined by questionnaire. Results: Half the study group walked independently, but only 35.5% were independent in self-care. In comparison to their peers without disability, the study group's highest educational level was lower (p < .0001), as were rates of employment (36.3% compared with 80%), they were more likely to be living with parents (80% compared with 21%), to be single, and to have limited financial resources. Conclusion: Young adults with CP are functionally and socially disadvantaged in contrast with their peers without disability. Self-care dependence, intellectual disability, and communication impairments contribute to these outcomes but are not solely responsible. (Publisher abstract)
The impact of switching on family caregivers of children with cerebral palsy
- Authors:
- NICOLSON Amy, MOIR LOIS, MILSTEED Jeannine
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 8(2), 2013, pp.169-175.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: This study aimed to enhance our knowledge and understanding of switching, as assistive technology, and how it impacts on family caregivers of children with cerebral palsy with GMFCS levels four or five. Methods: A qualitative method using a constructivist approach was adopted. Purposive sampling was used to recruit five caregivers to participants in this study. Framework analysis was applied to the data collection of semistructured interviews conducted with each caregiver. Findings: The three main themes identified were an investment in the future, resulting in joy and hope. The learning process of switching is resource intensive, time consuming and effortful for caregivers. If caregivers do not perceive this as an investment, then they may not experience the joy switching can bring to their child, and in turn the joy, hope, and caregiver satisfaction it can offer for the future. Conclusion: This research indicates that caregivers often have the greatest impact on whether switching will be adopted in the home. The greatest impact on caregivers is related to their perception on the competence of therapists and coordination of services provided. (Publisher abstract)
Systematic review of the efficacy of parenting interventions for children with cerebral palsy
- Authors:
- WHITTINGHAM K., WEE D., BOYD R.
- Journal article citation:
- Child: Care, Health and Development, 37(4), July 2011, pp.475-483.
- Publisher:
- Wiley
This review assessed the effectiveness of parenting interventions for parents of children with cerebral palsy (CP) on child behavioural outcomes and parenting skill outcomes. No randomised clinical trials of parenting interventions with parents of children with CP were identified. Three studies were identified that involved the examination of a targeted parenting intervention via a pre-post design. Interventions included the implementation of parenting interventions in conjunction with behavioural intervention and oral motor exercises for children with CP and feeding difficulties. All studies found changes in relevant child behavioural outcomes. The studies reviewed suggest that parenting interventions may be an effective intervention for parents of children with CP. However, the current research is limited to pre-post designs of targeted parenting interventions focused upon communication. The authors concluded that a randomised controlled trial of parenting interventions for families of children with CP is urgently needed to address this lack of literature and provide families of children with CP with an evidence-based intervention to address behavioural and emotional problems in their children.