Search results for ‘Subject term:"cerebral palsy"’ Sort:
Results 1 - 10 of 37
I felt like running away: the social and emotional implications of cerebral palsy
- Authors:
- BAMFORD David, GRIFFITHS Huw, KERNOHAN George
- Publisher:
- Boys' and Girls' Welfare Society
- Publication year:
- 1991
- Pagination:
- 84p.,diags.,bibliog.
- Place of publication:
- Cheadle
Research report based on interviews with parents. Examines the impact on family life, and satisfaction or dissatisfaction with services received. Draws conclusions and makes recommendations for improvements in services.
The family business
- Author:
- MARSDEN Robert
- Publisher:
- British Association for Adoption and Fostering
- Publication year:
- 2008
- Pagination:
- 142p.
- Place of publication:
- London
The Family Business is the true story of the adoption of William, a little boy with cerebral palsy, by a middle-aged couple with three birth children. It tells of the journey William and the other members of the family made to get to the point where they felt they were a whole family. The story describes the doubts of the parents in the early days, the confused feelings of William, and some of the frustrations and humorous adventures the family has had in the “disability world”. Narrated by the adoptive father, this is an honest and realistic account of adopting a child with a disability and the impact of adoption on the whole family. It explores the challenges of day-to-day family life and the importance of focusing on the child’s personality rather than his disability. Above all The Family Business provides a positive, upbeat account of the growth of love and the cementing of family bonds.
I can't walk but I can crawl: living with cerebral palsy
- Author:
- ROSS Joan
- Publisher:
- Paul Chapman
- Publication year:
- 2005
- Pagination:
- 212p.
- Place of publication:
- London
Joan is an adult with cerebral palsy who grew up when compulsory education was not in place for all children. Her memories of her childhood before inclusion, her development as a teenager and her adult life are chronicled without sentiment and this book offers the reader an autobiography of someone who lives with a significant disability. "I Can't Walk but I can Crawl" is supported by Scope who have provided an introduction and informative commentary about cerebral palsy. The book is of general interest and offers information and inspiration to Scope members and those whose lives are touched by cerebral palsy.
Conductive education
- Authors:
- HARI Maria, AKOS Karoly
- Publisher:
- Routledge
- Publication year:
- 1988
- Pagination:
- 375p., tables, illus.
- Place of publication:
- London
Detailed information on the general principles and practice of conductive education which is developed and shaped for each individual with motor dysfunction.
The child with cerebral palsy
- Author:
- DINNAGE Rosemary
- Publisher:
- NFER-Nelson
- Publication year:
- 1986
- Pagination:
- 75p.
- Place of publication:
- Windsor
Understanding cerebral palsy: a guide for parents and professionals
- Author:
- STANTON Marion
- Publisher:
- Jessica Kingsley
- Publication year:
- 2012
- Pagination:
- 224p.
- Place of publication:
- London
This book is designed as an invaluable starting point for anyone encountering cerebral palsy for the first time, and provides essential background information on causes, types and symptoms, as well as vital advice about the treatments, therapies and sources of support available. Practical tips on everyday considerations such as communication, diet and education will help parents achieve the best quality of life for their child. It explores options after compulsory education and how best to support a young person making the transition to independent adulthood. Using personal experience and case studies as sources of inspiration, as well as a comprehensive list of resources to signpost readers to further information, this handbook will help parents and professionals better understand cerebral palsy and the different options available to people with the condition. Chapters include: an introduction to cerebral palsy; should therapy and treatment be your first priority?; the early stages; management of cerebral palsy; special considerations; alternatives to verbal communication; day to day life; complementary therapy; informal support, social factors and disadvantage; education; after school - what next?; and useful addresses and contacts.
Getting involved: some of the options available to get involved in education, volunteering, employment opportunities and campaigning
- Author:
- SCOPE
- Publisher:
- SCOPE
- Publication year:
- 2005
- Pagination:
- 6p.
- Place of publication:
- London
Volunteers have always been vital in leading and delivering Scope’s work. Effective community involvement, through the recruitment of properly trained and supported volunteers, enables Scope to deliver the strongest possible message in its campaign for disabled people achieving equality.
Michelle finds a voice
- Authors:
- HOLLINS Sheila, BARNETT Sarah
- Publishers:
- Gaskell, St. George's Hospital Medical School
- Publication year:
- 1997
- Pagination:
- 44p.,list of orgs.,bibliog.
- Place of publication:
- London
Presents the story of a young woman with cerebral palsy who is unable to speak. She feels isolated and unhappy and similarly her carers are frustrated in their attempts to understand or recognise her needs. Illustrates what happens to Michelle and how she and her carers are helped to overcome these difficulties. Various solutions are explored, including the use of signing, symbol charts and electronic communication. There is written text at the end of the book which provides one possible narrative for the pictures in the main part of the text.
Barriers for adults with Cerebral Palsy on achieving full life participation: access to healthcare services and progressing at work
- Author:
- ALL PARTY PARLIAMENTARY GROUP ON CEREBRAL PALSY
- Publisher:
- All Party Parliamentary Group on Cerebral Palsy
- Publication year:
- 2022
- Pagination:
- 20
- Place of publication:
- London
This is the third report by the All-Party Parliamentary Group on Cerebral Palsy exploring Cerebral Palsy as a lifelong condition. It focuses on two key areas. Firstly, it examines the transition from childhood into maturity, and how this impacts the ability of adults with Cerebral Palsy to access healthcare services. Access to specialist health and social services is the core for enabling adults with Cerebral Palsy to live their lives as fully as possible. Secondly, the report assesses the barriers facing the adult Cerebral Palsy community in entering, remaining, and progressing through the world of work. The report highlights that the problems faced by the community are multifaceted and that collaboration between health, social care and employment is essential. Among the recommendations, Parliamentarians call on NHS England, social care, education, and employment specialists to agree a new national specification for adult Cerebral Palsy to commission dedicated specialist services across the new 42 Integrated Care Systems (ICSs) in England. Devolved governments should put in similar measures in their respective health systems. Other proposals contained in report include: guaranteeing adults living with Cerebral Palsy annual medical reviews to better assess their evolving health and care needs; ringfencing funding for the ICSs to develop specialist services; enhancing employment rights for adults with Cerebral Palsy to better reflect the varied, fluctuating, and complex nature of their conditions; creating a new online information hub for employers to better understand the needs of member of the adult Cerebral Palsy community in their workforces. (Edited publisher abstract)
Beyond physiotherapy: voices of children and young people with cerebral palsy and their carers about ‘Participation’ in recreational activities (VOCAL)
- Author:
- PICKERING Dawn
- Publisher:
- Cardiff University
- Publication year:
- 2021
- Pagination:
- 342
- Place of publication:
- Cardiff
This thesis is about children and young people with cerebral palsy and the emotional well-being impact from their level of participation in recreational activities. A literature review highlighted the gap in knowledge for non-verbal disabled children with limited mobility, who are usually excluded from research studies. They also have less choices for recreational activities than typically developing children. Very little is known about these disabled children’s perceptions of their own well-being. By centrally positioning their voices at the centre of the enquiry, their agency was heard to facilitate their social justice. The research question explored how children and young people with cerebral palsy and their carers viewed, experienced and chose their level of participation in recreational activities. Evidence of their well-being, was brought out in the analysis. A comparative case study design was developed using visual methods, this enabled the storylines of the children to be socially constructed from the evidence of the social forces at play, in the activities where they were positioned. There were two groups, a Participatory Group (N=4) and a Limited Participatory Group (N=3). The disabled children and young people were aged nine to sixteen years and were supported by their parents in the data collection. Each case included two interviews at the beginning and end of twelve weeks, during which time they kept a diary, observations were carried out at one of their usual activities within this time period. Photographs were taken by the parent and the researcher for context. These photographs were used to elicit discussion in the second interview. The seven cases were analysed by an interpretative approach, using Braun and Clark’s six stages of analysis. Pseudonyms were chosen and care was taken to anonymise photographs used. First the Participatory Group were analysed, then the Limited Participatory Group, then across case analysis was carried out. Three overall themes were identified: 1. Participation enhancers; 2.Champions for disabled children’s emotional well-being; 3.Hindrances to participation. Innovative designs, advocacy and positive attitudes came out as key features that enhanced participation and pain, mood, epilepsy, as well as lack of choices and perceived negative attitudes, hindered participation. Positioning theory has been applied and adapted to represent the well-being of disabled children and young people with a kaleidoscope. This relates to both their physical positioning and agency to choose to participate, or not. This proposed ‘Kaleidoscope of Well-being’ suggests that well-being can fluctuate in different environments, influenced by the social forces of advocates to promote their needs, with specialist equipment. The non-verbal children also showed they could choose not to participate, even when opportunities were offered to them, to determine their own storylines. Those who enjoyed participation included physical activities such as bike riding, surfing, skiing, and trampolining, but there were less choices in the arts and cultural based activities, which were more sensory based. Having the social confidence to relate to non-verbal children was seen as helpful, but there were many examples where this was missing, perceived as negative attitudes. Currently the needs of these disabled children and young people are overlooked, reducing their social justice as valued citizens in society. Policy makers, designers of equipment and environments could take notice of these findings, to consider how to move the boundaries further of what might be possible to increase the choices for non-verbal children with mobility limitations. Practitioners should consider how they include participation as an outcome from their interventions, which at a minimum requires signposting to available choices. There is a need to explore how health and social care professionals perceive the role of advocacy with disabled children and young people, to enhance the children’s participatory opportunities. Further research requires a cross-disciplinary approach to address the complexities of non-mobile, non-verbal disabled children and young people’s participation in recreational activities. This should focus on increasing their choices, to enhance their well-being and visual methods should be developed further to illuminate the experiences of non-verbal children. (Edited publisher abstract)