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Caring for a daughter with intellectual disabilities in managing menstruation: a mother's perspective
- Authors:
- CHOU Yueh-Ching, LU Zxy-Yann Jane
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 37(1), March 2012, pp.1-10.
- Publisher:
- Taylor and Francis
Parents and carers of women with intellectual disability (ID) may encounter difficulties when dealing with menstruation management. The focus of research in this area has been largely on reducing family carer burden by preventing menstruation through the use of menstrual suppression medication or surgery. The aim of this qualitative study was to explore mothers' experiences and perceptions to relevant professionals and carers.
Under a cloud: carers' experiences of Huntington's disease
- Author:
- MANTELL Andy
- Journal article citation:
- Social Care and Neurodisability, 1(2), 2010, pp.33-42.
- Publisher:
- Emerald
Huntington's disease is a rare, chronic, hereditary, neurodegenerative condition. This qualitative study explores the social, emotional and practical issues faced by family members of people with the disease, highlighting how social workers can provide support. The study looked at the common and significant experiences for relatives in adapting to caring for a person with Huntington's disease, and how these experiences are affected by support from others, including formal service provision. The article describes the findings from semi structured interviews with 31 relatives of people with Huntington's disease, covering diagnosis, changing roles and relationships, care-centric relationships, power and dependency, redefining the relationship, entering care homes, and loss and bereavement. It includes a list of key points for best practice with people with Huntington's disease. The article concludes that services' preoccupation with the practical and emotional burden of caring neglects the social relationships that form the context in which illness and disease are experienced and meanings are generated.
Managing caring and employment
- Authors:
- YEANDLE Sue, et al
- Publisher:
- Carers UK
- Publication year:
- 2007
- Pagination:
- 36p.
- Place of publication:
- London
Report No. 2 is about how services are used by carers to support them in managing caring alongside paid employment.
Scandinavian Journal of Caring Sciences
- Publisher:
- Blackwell Publishing
This international peer-reviewed journal publishes research that has a patient, family or community focus and which promotes an interdisciplinary team approach. The Journal aims to contribute to the development and advancement of scientific knowledge on caring related to health, well-being, illness and the alleviation of human suffering. In additional to research, the journal also publishes reviews, announcements and short communications. Coverage on Social Care Online from this journal is limited to relevant systematic reviews only.
Liverpool carers' charter
- Author:
- LIVERPOOL. Social Services Directorate. Joint Consultative Committee
- Publisher:
- Liverpool. Social Services Directorate
- Publication year:
- 1999
- Pagination:
- 9p.
- Place of publication:
- Liverpool
Charter setting out the rights of carers to receive good quality services. Produced jointly by Liverpool Health Authority, Liverpool City Council, independent and voluntary organisations, service users and carers.
Carers in employment: a guide to community services for carers
- Author:
- PRINCESS ROYAL TRUST FOR CARERS
- Publisher:
- Princess Royal Trust for Carers
- Publication year:
- 1995
- Pagination:
- 4p.
- Place of publication:
- London
Leaflet listing organisations and services for carers who are in employment.
Tipping the balance: the implications of change in acute healthcare for patients and their families
- Author:
- HENWOOD Melanie
- Publisher:
- National Association of Health Authorities and Trusts
- Publication year:
- 1995
- Pagination:
- 28p.,bibliog.
- Place of publication:
- Birmingham
Paper looking at changes in acute healthcare and how these are affecting patients and their carers.
Learning disabilities: report of seminars held during 1993
- Author:
- SOUTH EAST INSTITUTE OF PUBLIC HEALTH
- Publisher:
- South East Institute of Public Health
- Publication year:
- 1993
- Pagination:
- 63p.
- Place of publication:
- Tunbridge Wells
Report from seminars covering: services for adults with learning difficulties, who does what and why in service teams; and opportunities for people with learning difficulties and their carers for a full life.
Health and older people : attitudes towards health in old age and towards caring for older people
- Author:
- FINCH Helen
- Publisher:
- Health Education Council
- Publication year:
- 1986
- Pagination:
- 97p.
- Place of publication:
- London
Coding unpaid carers: SNOMED CT
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2022
- Place of publication:
- Leeds
Review and clinical codes for unpaid carers. An unpaid carer is anyone including children and adults who looks after a family member, partner or friend who needs help because of their illness, frailty, disability, a mental health problem or an addiction and cannot cope without their support. The care they give is unpaid. When we refer to carers in this document, this is inclusive of both adult and young carers (under 18). The law is very clear about who is an unpaid carer. There is a need to improve the identification, recognition and support of unpaid carers as part of proactive prevention approaches being pursued at a population health level. Where carer registers are coded and linked to patient records, this has not been done consistently. There are >80 existing SNOMED CT codes which relate to unpaid carers, or which could be perceived to relate to unpaid carers. As such, primary care data for unpaid carers isn't consistent. This guidance sets out a recommended cluster of SNOMED CT codes for unpaid carers, of all ages, to enable and demonstrate the delivery of the NHS Long Term Plan and People at the Heart of Care. Consistency when coding unpaid carers will help to ensure that carers are better identified and supported across and within systems. As a minimum, systems are expected to be able to report how many unpaid carers are registered in primary care, including the number of young carers, and of those unpaid carers, how many have a carer contingency plan recorded in records so that professionals can action them when required. (Edited publisher abstract)