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Support networks in a caring community: research and policy, fact and fiction: papers presented at an international conference
- Editor:
- YODER J.A.
- Publisher:
- Martinus Nijhoff
- Publication year:
- 1985
- Pagination:
- 245p.,tables,diag,bibliog.
- Place of publication:
- Dordrecht
Carers talking: interviews with family carers of older, dependent people in the European Community
- Editors:
- MESTHENEOS Elizabeth, TRIANTAFILLOU Judith
- Publisher:
- European Foundation for the Improvement of Living and Working Conditions
- Publication year:
- 1993
- Pagination:
- 115p.
- Place of publication:
- Dublin
A collection of personal accounts from carers of older people, designed to illustrate and examine the experience of becoming and being a family carer and how the nature and costs of caring change over time.
Multiple engagement: the relationship between informal care-giving and formal volunteering among Europe's 50+ population
- Author:
- STRAUSS Susanne
- Journal article citation:
- Ageing and Society, 41(7), 2021, pp.1562-1586.
- Publisher:
- Cambridge University Press
The article investigates the conditions of multiple engagement in the private and public realm in the second half of life. More specifically, I look at the relationship between informal care-giving and formal volunteering in a country-comparative way. Based on longitudinal data from the Survey of Health, Ageing and Retirement, 2004–2015, I investigate the 50+ population in 13 European countries. Controlling for unobserved heterogeneity by using conditional fixed-effect logistic regression models, I confirm earlier findings that care-givers are more likely to volunteer than non-care-givers; this effect is independent of care-giving intensity but only true for those who care outside their own household. As to macro-level influences, I find that both care-in-kind and cash-for-care expenditures increase the likelihood of volunteering among the 50+ population. The effect of cash-for-care expenditure is even stronger for the group of those who give intensive care outside their own households than for non-care-givers. Moreover, I find effects related to family's and women's role in society. First, I show a negative effect of a country's societal norm of family orientation on volunteering participation for those giving sporadic care outside their household but also among non-care-givers. Second, in countries with higher female labour market participation among the middle-aged, the volunteering likelihood is higher for sporadic female care-givers outside their own household but also among female non-care-givers. (Edited publisher abstract)
Carers’ experiences of timely access to and use of dementia care services in eight European countries
- Authors:
- JELLEY Hannah, et al
- Journal article citation:
- Ageing and Society, 41(2), 2021, pp.403-420.
- Publisher:
- Cambridge University Press
Timely access to care services is crucial to support people with dementia and their family carers to live well. Carers of people with dementia (N = 390), recruited from eight countries, completed semi-structured interviews about their experiences of either accessing or not using formal care services over a 12-month period in the Access to Timely Formal Care (Actifcare) study. Participant (Edited publisher abstract)
Policy measures adopted to support unpaid care across Europe
- Authors:
- LE BIHAN Blanche, et al
- Journal article citation:
- Eurohealth, 25(4), 2019, pp.10-14.
- Publisher:
- European Observatory on Health Systems and Policies
- Place of publication:
- Brussels
Providing informal care can have significant negative effects for carers in terms of reducing psychological and physical health outcomes, constraining social participation and limiting ability to remain in formal employment. Developing policies to support informal carers is therefore an important policy objective to enable carers to continue caring for as long as they wish to do so and to ensure that the future availability of unpaid care is sufficient to meet demand. There are different types of policy measures addressed directly to carers that have been implemented across Europe to support provision of informal care. (Edited publisher abstract)
European carers' report: carers' experiences of diagnosis in five European countries
- Author:
- ALZHEIMER EUROPE
- Publisher:
- Alzheimer Europe
- Publication year:
- 2018
- Place of publication:
- Luxembourg
The findings of a study conducted by Alzheimer Europe and Bangor University, to better understand the experiences of informal carers of receiving a diagnosis of dementia across five European countries: France, Germany, Poland, Spain and the UK (Scotland). The questionnaire included 57 questions addressing; demographics of the carer and person with dementia; the symptoms that were experienced and prompted help-seeking; the pathway through the diagnostic process; the experience of the diagnostic process; support and information offered at the time of diagnosis; emotions experienced immediately after the diagnosis and subsequently; and the carers’ experience of their community as 'dementia friendly'. A total of 1,409 carers participated in the study, with just over 200 from Scotland. Carers across (Edited publisher abstract)
Caregivers’ appraisals of patients’ involuntary hospital treatment: European multicentre study
- Authors:
- GIACCO Domenico, et al
- Journal article citation:
- British Journal of Psychiatry, 201(6), December 2012, pp.486-491.
- Publisher:
- Cambridge University Press
Recent mental health policies emphasise the need for psychiatric services to involve family caregivers in treatment planning to help them cope with their role and also to consider their views in the evaluation of treatment. The aim of this study was to explore caregivers’ satisfaction with the involuntary hospital treatment of patients and to discover what factors are associated with caregivers’ appraisals of treatment. A multicentre prospective study was carried out in eight European countries. Involuntarily admitted patients and their caregivers rated their appraisal of treatment using the Client Assessment of Treatment Scale one month after admission. A total of 336 patients and their caregivers participated. Caregivers’ appraisals of treatment were positive (mean of 8.5 on a scale from 0 to 10) and moderately correlated with patients’ views although their appraisals tended to be more positive than that of the patients. Generally, more positive caregivers’ views were associated with greater patients’ symptom improvement.
The authors conclude that caregivers’ appraisals of involuntary in-patient treatment are inclined to be rather favourable.
Gender, cash and informal care: European perspectives and dilemmas
- Author:
- UNGERSON Clare
- Journal article citation:
- Journal of Social Policy, 24(1), January 1995, pp.31-52.
- Publisher:
- Cambridge University Press
- Place of publication:
- Cambridge
Recent feminist literature on care has suggested that, conceptually, it is better dissolve the boundaries between 'formal' and 'informal' care when analysing care. Suggests that there are policy developments taking place, both in Britain and in some of the countries of Europe, which are dissolving the boundaries between formal and informal care, particularly as far as payment for care is concerned. Argues that, in this case, far from benefit systems being a form of 'decommodification' they are actually a form of 'commodification' of the caring relationship. The article then explores these empirical developments, considers their gendered nature and gendered impact, and their possible consequences for the relationship between care-giver and care-recipient.
Caring for older people: a European issue; report from a Eurolink Age seminar held in Bonn, November 26 1994
- Author:
- EUROLINK AGE
- Publisher:
- Eurolink Age
- Publication year:
- 1995
- Pagination:
- 37p.,bibliog.
- Place of publication:
- London
Looks at issues around the limited European legislation supporting carers of older people or disabled people. Made links with the more favourable situation regarding child care. Includes a carers charter.
Young carers in Europe: an exploratory cross-national study in Britain, France, Sweden and Germany
- Editor:
- BECKER Saul
- Publisher:
- Loughborough University. Department of Social Science. Young Carers Research Gro
- Publication year:
- 1995
- Pagination:
- 106p.,bibliogs.
- Place of publication:
- Loughborough
Research report revealing the extent to which young carers have been ignored in Europe and highlighting issues for future policy formulation.