The findings of a study conducted by Alzheimer Europe and Bangor University, to better understand the experiences of informal carers of receiving a diagnosis of dementia across five European countries: France, Germany, Poland, Spain and the UK (Scotland). The questionnaire included 57 questions addressing; demographics of the carer and person with dementia; the symptoms that were experienced and prompted help-seeking; the pathway through the diagnostic process; the experience of the diagnostic process; support and information offered at the time of diagnosis; emotions experienced immediately after the diagnosis and subsequently; and the carers’ experience of their community as 'dementia friendly'. A total of 1,409 carers participated in the study, with just over 200 from Scotland. Carers across
(Edited publisher abstract)
The findings of a study conducted by Alzheimer Europe and Bangor University, to better understand the experiences of informal carers of receiving a diagnosis of dementia across five European countries: France, Germany, Poland, Spain and the UK (Scotland). The questionnaire included 57 questions addressing; demographics of the carer and person with dementia; the symptoms that were experienced and prompted help-seeking; the pathway through the diagnostic process; the experience of the diagnostic process; support and information offered at the time of diagnosis; emotions experienced immediately after the diagnosis and subsequently; and the carers’ experience of their community as 'dementia friendly'. A total of 1,409 carers participated in the study, with just over 200 from Scotland. Carers across Europe reported that diagnosis took an average of 2.1 years from the time of problems being first noticed. Delays to diagnosis included the first professional they saw did not consider anything was wrong and the person with dementia not wanting to seek help. Post-diagnostic support was found to be still a major issue across Europe, with the need for information on coping and living well with dementia and on available services particularly high at 51.1 per cent and 46 per cent respectively.
(Edited publisher abstract)
Presents a collection of papers looking at how payments for care schemes are developing across Western and Central Europe, the United States and Canada. Includes discussions of payments to 'volunteers', and consideration of the way in which social security and tax systems work to increase the incomes of care recipients and their carers. Also includes introductory chapters discussing general and theoretical issues involved in the development of systems of payments for care including the labour market, empowerment and the relationship between carers and care recipients.
Presents a collection of papers looking at how payments for care schemes are developing across Western and Central Europe, the United States and Canada. Includes discussions of payments to 'volunteers', and consideration of the way in which social security and tax systems work to increase the incomes of care recipients and their carers. Also includes introductory chapters discussing general and theoretical issues involved in the development of systems of payments for care including the labour market, empowerment and the relationship between carers and care recipients.
Subject terms:
labour market, mixed economy of care, older people, payments, social policy, taxation, carers, children, families, empowerment;
Location(s):
Canada, Belgium, Czech Republic, Denmark, Hungary, Finland, France, Ireland, Israel, Netherlands, Norway, Sweden, Slovenia, United Kingdom, United States
European Centre for Social Welfare Policy and Research
Publication year:
2015
Pagination:
15
Place of publication:
Vienna
... Briefing presents a typology of long-term care regimes and proposes four case studies to illustrate the main barriers and drivers to deinstitutionalisation. Austria (Standard care mix) illustrates the importance of developing strong support systems for informal carers and strengthening home-based care provision. Sweden (UniversalNordic) has made great strides towards deinstitutionalisation by promoting to informal and family carers, but this historic over-reliance on household contributions to care is leading to a widening gap between supply and demand, which needs to be addressed through the strengthening of community-based services.The briefing concludes with a discussion of the core principles for reaching a sustainable balance between different long-term care settings.
(Edited publisher abstract)
Many countries across Europe have developed strategies to support community-based services in an attempt to replace traditional institutional models of care. Differences in needs, approaches and commitment levels have led to diverse results and pace of progress. However, much can be learned from their experiences and from examples of strategies and models which proved to be effective. This Policy Briefing presents a typology of long-term care regimes and proposes four case studies to illustrate the main barriers and drivers to deinstitutionalisation. Austria (Standard care mix) illustrates the importance of developing strong support systems for informal carers and strengthening home-based care provision. Sweden (UniversalNordic) has made great strides towards deinstitutionalisation by promoting coordination between care providers, but, the coverage and cost of services will soon become unsustainable unless appropriate support for family-based care is provided. Italy (Family-based) and the Czech Republic (Transition) represent situations where the rates of institutionalisation are relatively low and current policy is challenged to contain future growth. Both systems offer significant support to informal and family carers, but this historic over-reliance on household contributions to care is leading to a widening gap between supply and demand, which needs to be addressed through the strengthening of community-based services.The briefing concludes with a discussion of the core principles for reaching a sustainable balance between different long-term care settings.
(Edited publisher abstract)
Subject terms:
older people, long term care, informal care, community care, deinstitutionalisation, care homes, models, social policy, carers, policy, case studies;