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Young‐onset Alzheimer dementia: a comparison of Brazilian and Norwegian carers' experiences and needs for assistance
- Authors:
- DOURADO M.C.N., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 33(6), 2018, pp.824-831.
- Publisher:
- Wiley
Objectives: Few studies have examined the needs of persons with young-onset AD (YO-AD) and their families, and cross-cultural research on the topic is even scarcer. This study Investigates the situations, experiences and needs for assistance of carers of persons with YO-AD in Brazil and Norway. Methods: As part of the qualitative study, the research used a convenience sample of Brazilian (n = 9; 7 women) and Norwegian carers (n = 11; 6 women) in 2014 and 2015, respectively, and analysed data in light of a modified version of grounded theory. Results: Carers' narratives from both countries revealed five common themes in terms of how YO-AD affected carers' psychological and emotional well-being, physical well-being, professional and financial well-being, social lives and need for support services. Conclusions: The infrequent differences between carers of persons with YO-AD in Brazil and Norway indicate that carers' problems are highly similar regardless of cultural differences and public services provided. (Edited publisher abstract)
An intervention to reduce neuropsychiatric symptoms and caregiver burden in dementia: preliminary results from a randomized trial of the tailored activity program–outpatient version
- Authors:
- DE OLIVEIRA Alexandra Martini, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 34(9), 2019, pp.1301-1307.
- Publisher:
- Wiley
Objective: To evaluate the efficacy of the tailored activity program–outpatient version (TAP‐O) and to reduce neuropsychiatric symptoms (NPS) in patients with dementia and caregiver burden compared with a control group (psychoeducation intervention). Methods: Twenty‐one persons with dementia and their caregivers were recruited and randomized. The intervention group received TAP‐O, designed for outpatients with dementia and their caregivers. TAP‐O consisted of eight sessions in which an occupational therapist assessed the patient's abilities and interests; prescribed tailored activities; and educated caregivers about dementia, NPS, and how to implement meaningful activities in the daily routine. The control group received eight sessions of a psychoeducation intervention about dementia and NPS. Results: Compared with controls, patients receiving TAP‐O had a significant decrease in hallucination (P = 0.04), agitation (P = 0.03), anxiety (P = 0.02), aggression (P = 0.01), sleep disorder (P = 0.02), aberrant motor behavior (P = 0.02), and in caregiver burden (P = 0.003). Conclusions: Findings suggest that TAP‐O may be an effective nonpharmacological strategy to reduce NPS of outpatients with dementia and to minimize caregiver burden. (Edited publisher abstract)
Psychological distress in Brazilian caregivers of relatives with dementia
- Authors:
- BANDEIRA D. R., et al
- Journal article citation:
- Aging and Mental Health, 11(1), January 2007, pp.14-19.
- Publisher:
- Taylor and Francis
The authors evaluated stress, anxiety, depression, and feelings of hopelessness in caregivers of relatives with dementia. One hundred and twenty-nine caregivers and 145 non-caregivers who lived in metropolitan Porto Alegre, Brazil completed Lipp's Inventory of Stress Symptoms for Adults, (ISSL), and Beck's Anxiety (BAI), Depression (BDI), and Hopelessness (BHS) scales. Caregivers showed higher levels of anxiety, depression, hopelessness, resistance/pre-exhaustion stress than controls. This study indicates that constant caregiving may significantly increase the risk of physical and mental health problems for caregivers in Brazil.