British Journal of Occupational Therapy, 69(3), March 2006, pp.98-105.
Publisher:
Sage
The objective of this study was to explore the prevocational needs of adolescents with juvenile idiopathic arthritis (JIA) from the occupational therapists' perspective and to examine the role of occupational therapy in addresssing these issues. Data was collected via a questionnaire that was distributed to members of occupational therapy organizations (n=494). The outcome measures were
The objective of this study was to explore the prevocational needs of adolescents with juvenile idiopathic arthritis (JIA) from the occupational therapists' perspective and to examine the role of occupational therapy in addresssing these issues. Data was collected via a questionnaire that was distributed to members of occupational therapy organizations (n=494). The outcome measures were the perceived importance of addressing prevocational issues for adolescents with JIA and the respondents' knowledge, confidence and perceived role. The questionnaires were completed by 175 individuals. The results indicated that although the resppondents felt that their profession was apropriate to deal with such issues, they had limited knowledge and confidence to do so. This study highlighted the need for training in the area of vocational rehabilitation within adolescent rheumatology.
Subject terms:
needs, user views, young people, arthritis, educational performance, employment;
British Journal of Occupational Therapy, 66(7), July 2003, pp.303-310.
Publisher:
Sage
This qualitative study aimed to explore the perceptions of play and leisure in junior school aged children with juvenile idiopathic arthritis. Twelve children between the ages of 7 years and 11 years were interviewed in order to uncover the barriers to engagement in play and leisure and to consider the implications for occupational therapy. The results showed that all children, regardless
This qualitative study aimed to explore the perceptions of play and leisure in junior school aged children with juvenile idiopathic arthritis. Twelve children between the ages of 7 years and 11 years were interviewed in order to uncover the barriers to engagement in play and leisure and to consider the implications for occupational therapy. The results showed that all children, regardless of disease activity, reported difficulty in engaging in play and leisure activities. The symptoms of the disease, the treatment regimes and their side-effects, and psychosocial factors were all reported to affect play and leisure experiences. The children also reported that play behaviours were often restricted by parents, friends and school personnel. Fear of damage and unclear communication about the effects of activity also resulted in self-imposed restrictions, which further limited play experiences. Although the children reported a number of coping strategies to deal with these difficulties, they reported more indoor play and engagement in sedentary activities which often gave rise to feelings of being different, sadness and loneliness.
Subject terms:
leisure, play, school children, user views, arthritis, children, coping behaviour;
British Journal of Occupational Therapy, 75(1), January 2012, pp.29-35.
Publisher:
Sage
This qualitative study aimed to increase understanding of how hand deformities caused by rheumatic disease influence the individual's potential to continue participating in society by taking into account other people's attitudes. Occupational therapy has traditionally focussed on the successful performance of activities and the engagement in social contexts based on this improved ability. However clinical experience suggests personal and attitudinal factors are also involved. Eleven people (age 49-81 years, six men) with hand deformity associated with a rheumatic disease were contacted via a Swedish hand surgery clinic and interviewed. Analyses were conducted using comparative methodology and hermeneutic interpretation. Participation was defined as an experience that arises during involvement in an activity or a social context. All those interviewed experienced restricted participation across a variety of situations. Along with the hand deformity, the physical environment, personal attributes and the attitudes of others were obstacles to full participation. During the study participants were unable to consider the impact of their hand deformity alone without acknowledging other consequences of their rheumatic condition. The authors conclude that personal and contextual factors intertwine and influence the lived experience of participation. They suggest that focussing only on function or performance in rehabilitation might hinder a broader understanding of the experience of participation.
This qualitative study aimed to increase understanding of how hand deformities caused by rheumatic disease influence the individual's potential to continue participating in society by taking into account other people's attitudes. Occupational therapy has traditionally focussed on the successful performance of activities and the engagement in social contexts based on this improved ability. However clinical experience suggests personal and attitudinal factors are also involved. Eleven people (age 49-81 years, six men) with hand deformity associated with a rheumatic disease were contacted via a Swedish hand surgery clinic and interviewed. Analyses were conducted using comparative methodology and hermeneutic interpretation. Participation was defined as an experience that arises during involvement in an activity or a social context. All those interviewed experienced restricted participation across a variety of situations. Along with the hand deformity, the physical environment, personal attributes and the attitudes of others were obstacles to full participation. During the study participants were unable to consider the impact of their hand deformity alone without acknowledging other consequences of their rheumatic condition. The authors conclude that personal and contextual factors intertwine and influence the lived experience of participation. They suggest that focussing only on function or performance in rehabilitation might hinder a broader understanding of the experience of participation.
Subject terms:
occupational therapy, participation, self-concept, social inclusion, stereotyped attitudes, user views, activities of daily living, arthritis;
British Journal of Occupational Therapy, 74(3), March 2011, pp.137-142.
Publisher:
Sage
This study examined the experiences of mindfulness training for five adults living with rheumatic disease. Specifically it investigated their experiences in terms of coping with pain and the impact on their psychological well being. Focus group data were gathered from participants aged between 46 and 69 years diagnosed with psoriatic arthritis, fibromyalgia or rheumatoid arthritis. All
This study examined the experiences of mindfulness training for five adults living with rheumatic disease. Specifically it investigated their experiences in terms of coping with pain and the impact on their psychological well being. Focus group data were gathered from participants aged between 46 and 69 years diagnosed with psoriatic arthritis, fibromyalgia or rheumatoid arthritis. All participants had completed an 8-week Mindfulness-Based Stress Reduction (MBSR) programme 6 months prior to the study. Interpretative phenomenological analysis revealed two clinically relevant themes: responding to pain and psychological wellbeing. The participants felt that mindfulness was helpful in relation to pain, activity tolerance and psychological distress. Participants also felt that it had the potential to be integrated into daily life so that the benefits can be maintained over time. A number of limitations to the study are discussed; most notably the use of focus groups. However the authors conclude that mindfulness has the potential to improve the health and wellbeing of individuals living with rheumatic disease.
Subject terms:
mental health, pain, psychotherapy, quality of life, user views, behaviour modification, arthritis, mindfulness;
British Journal of Occupational Therapy, 72(6), June 2009, pp.249-258.
Publisher:
Sage
The parents of children with juvenile idiopathic arthritis have been identified as pivotal facilitators of children's involvement in treatment regimens, including home exercise programmes. As such, parents' perspectives regarding the factors that influence participation in their children's treatment regimens, and in particular home exercise programmes, are addressed in this study. In depth, Seven key themes emerged, namely the difficult process of diagnosis, the emotional toll, medications, exercises, life revolves around arthritis, parents' relationship with their child and other family members, and parents and paid work. The implications for clinical practice and future research are discussed.
The parents of children with juvenile idiopathic arthritis have been identified as pivotal facilitators of children's involvement in treatment regimens, including home exercise programmes. As such, parents' perspectives regarding the factors that influence participation in their children's treatment regimens, and in particular home exercise programmes, are addressed in this study. In depth, semi-structured interviews were conducted with 16 families. Rigour was ensured through a rich description of participants, peer and member checking, field journals and audit trails. Four key topics related to the process - the experience of the child's diagnosis, community access and participation, treatment regimens and the impact of these regimens on the parent's roles and relationships - and were addressed. Seven key themes emerged, namely the difficult process of diagnosis, the emotional toll, medications, exercises, life revolves around arthritis, parents' relationship with their child and other family members, and parents and paid work. The implications for clinical practice and future research are discussed.
Subject terms:
long term conditions, parental attitudes, physical exercise, treatment, therapy and treatment, user views, arthritis, children, family relations;
British Journal of Occupational Therapy, 69(1), October 2006, pp.7-14.
Publisher:
Sage
Located within a sociological perspective and focusing on women with chronic arthritis, this study aimed to gain a greater understanding of the strategies that the women used to maintain activity and the integration of such strategies into their lifestyles. A longitudinal qualitative study using interviews, diaries and focus groups was conducted over a period of 2 years. The interviews and focus groups were recorded, transcribed and analysed to identify key themes and concepts. The diaries were analysed to provide insights into the daily activities of the women. Three interrelated themes were identified: the embodied experience of living with chronic arthritis, the development and use of strategies and the integration of the strategies into the women's evolving personal context. This paper
Located within a sociological perspective and focusing on women with chronic arthritis, this study aimed to gain a greater understanding of the strategies that the women used to maintain activity and the integration of such strategies into their lifestyles. A longitudinal qualitative study using interviews, diaries and focus groups was conducted over a period of 2 years. The interviews and focus groups were recorded, transcribed and analysed to identify key themes and concepts. The diaries were analysed to provide insights into the daily activities of the women. Three interrelated themes were identified: the embodied experience of living with chronic arthritis, the development and use of strategies and the integration of the strategies into the women's evolving personal context. This paper explores these themes and discusses their implications for the development of self-management programmes informed by the experiences of people living with these impairments.
Subject terms:
long term conditions, longitudinal studies, self care, self-help, user views, women, attitudes, arthritis, coping behaviour;
GREAT BRITAIN. Department of Health. Social Services Inspectorate, ARTHRITIS CARE
Publisher:
Great Britain. Department of Health
Publication year:
1996
Pagination:
26p.,list of orgs.
Place of publication:
London
Report outlining the main concerns expressed by a sample of disabled people and their carers and identifying issues for service delivery, mainly in health and social services, but also for transport, education, housing and employment.
Report outlining the main concerns expressed by a sample of disabled people and their carers and identifying issues for service delivery, mainly in health and social services, but also for transport, education, housing and employment.
Subject terms:
housing, physical disabilities, social care provision, user views, transport, arthritis, carers, education, employment, health care;