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Telling it how it is: researching the family's perspective: what is it really like for families managing their child's serious condition at home?
- Author:
- BRITTON Carrie
- Publisher:
- Handsel Trust
- Publication year:
- 2001
- Pagination:
- 38p.bibliog.
- Place of publication:
- Birmingham
This research aims to explore with families, experiences and expectations when living with a child with juvenile idiopathic arthritis. This included their lived experience of both the arthritic disease process and the healthcare programmes they required to deliver daily at home