Search results for ‘Subject term:"alzheimers disease"’ Sort:
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Factors affecting the implementation, use, and adoption of real-time location system technology for persons living with cognitive disabilities in long-term care homes: systematic review
- Authors:
- GRIGOROVICH Alisa, et al
- Journal article citation:
- Journal of Medical Internet Research, 23(1), 2021, p.e22831. Online only
- Publisher:
- JMIR Publications
Background: As the aging population continues to grow, the number of adults living with dementia or other cognitive disabilities in residential long-term care homes is expected to increase. Technologies such as real-time locating systems (RTLS) are being investigated for their potential to improve the health and safety of residents and the quality of care and efficiency of long-term care facilities. Objective: The aim of this study is to identify factors that affect the implementation, adoption, and use of RTLS for use with persons living with dementia or other cognitive disabilities in long-term care homes. Methods: We conducted a systematic review of the peer-reviewed English language literature indexed in MEDLINE, Embase, PsycINFO, and CINAHL from inception up to and including May 5, 2020. Search strategies included keywords and subject headings related to cognitive disability, residential long-term care settings, and RTLS. Study characteristics, methodologies, and data were extracted and analyzed using constant comparative techniques. Results: A total of 12 publications were included in the review. Most studies were conducted in the Netherlands (7/12, 58%) and used a descriptive qualitative study design. We identified 3 themes from our analysis of the studies: barriers to implementation, enablers of implementation, and agency and context. Barriers to implementation included lack of motivation for engagement; technology ecosystem and infrastructure challenges; and myths, stories, and shared understanding. Enablers of implementation included understanding local workflows, policies, and technologies; usability and user-centered design; communication with providers; and establishing policies, frameworks, governance, and evaluation. Agency and context were examined from the perspective of residents, family members, care providers, and the long-term care organizations. Conclusions: There is a striking lack of evidence to justify the use of RTLS to improve the lives of residents and care providers in long-term care settings. More research related to RTLS use with cognitively impaired residents is required; this research should include longitudinal evaluation of end-to-end implementations that are developed using scientific theory and rigorous analysis of the functionality, efficiency, and effectiveness of these systems. Future research is required on the ethics of monitoring residents using RTLS and its impact on the privacy of residents and health care workers. (Edited publisher abstract)
Follow-up of an intervention program for caregivers of a relative with dementia living in a long-term care setting: are there any persistent and delayed effects?
- Authors:
- DUCHARME Francine, et al
- Journal article citation:
- Aging and Mental Health, 9(5), September 2005, pp.461-469.
- Publisher:
- Taylor and Francis
The purpose of this randomized study was to test the persistent and delayed effects of an intervention programme entitled “Taking Care of Myself" on selected mental health outcomes of daughter caregivers of a relative with dementia living in a long-term care setting. One group of caregivers took part in the experimental programme (EG, n=45), one in a comparison programme offered by an Alzheimer Society (AG, n=51), and another constituted a control group (CG, n=41). Effects were verified at the end of the program me and 3 months later. Results from prediction analyses reveal that competence dealing with healthcare staff and use of the coping strategy of reframing were persistent effects unique to the EG condition, whereas perceived availability of informal and formal support was a persistent effect in the EG and in the AG. A delayed effect was observed in the AG regarding competence dealing with healthcare staff. These results underline the importance of follow-up assessments of intervention programmes and suggest avenues to support caregivers of institutionalized seniors.
Activity involvement and quality of life of people at different stages of dementia in long term care facilities
- Authors:
- SMIT Dieneke, et al
- Journal article citation:
- Aging and Mental Health, 20(1), 2016, pp.100-109.
- Publisher:
- Taylor and Francis
Objectives: Involvement in activities is assumed to positively influence the quality of life of people with dementia, yet activity provision in long-term care remains limited. This study aims to provide more insight into the value of activity involvement for domains of the quality of life of long-term dementia care residents, taking resident characteristics and cognitive status into account. Method: Data were derived from 144 long-term care facilities participating in the second measurement (2010/2011) of the living arrangements for dementia study. Amongst 1144 residents, the relationship between time involved in activities (activity pursuit patterns; RAI-MDS) and quality of life (Qualidem) was studied using multilevel linear regression analyses. Analyses were adjusted for residents’ age, gender, neuropsychiatric symptoms, ADL dependency and cognition. To check for effect modification of cognition, interactions terms of the variables activity involvement and cognitive status were added to the analyses. Results: Despite resident's cognitive status, their activity involvement was significantly related to better scores on care relationship, positive affect, restless tense behaviour, social relations, and having something to do. A negative relationship existed between the activity involvement and positive self-image. The explained variance in the quality of life between residents caused by the activity involvement was small. Conclusion: Activity involvement seems to be a small yet important contributor to higher well-being in long-term care resident at all stages of dementia. Adjusting activities to individual preferences and capabilities might enlarge this relationship. Further research is needed to confirm this hypothesis, using measurement instruments less sensitive to recall bias and differentiating between the active and passive activity involvement. (Publisher abstract)
Dementia and assisted living
- Authors:
- HYDE Joan, PEREZ Rosa, FORESTER Brent
- Journal article citation:
- Gerontologist, 47(3), December 2007, pp.51-67.
- Publisher:
- Oxford University Press
This article presents an overview of what is known about dementia services in assisted living settings and suggests areas for future research. A search of Medline, the Journals of Gerontology, and The Gerontologist was undertaken. Publications dealing with the target subject were organised into 10 topic areas and reviewed. The article describes the demographic characteristics of cognitively impaired residents in assisted living and related residential settings in the United States, the services they receive, and process and structural elements both in specialized dementia units and in integrated assisted living settings. The literature on methodological issues regarding research in this area was then reviewed. It is important to generate research on processes as well as outcomes, such as dignity, individualized and pleasurable experiences, and freedom from pain and discomfort.
Evaluating the quality of life of long-term care residents with dementia
- Authors:
- SLOANE Philip D., et al
- Journal article citation:
- Gerontologist, 45(Supplement), October 2005, pp.37-49.
- Publisher:
- Oxford University Press
This study's purpose was to better understand existing measures of quality of life in dementia residents of long-term care facilities. The authors gathered data from 421 residents in 45 facilities. Analyses determined the psychometric properties of each measure, estimated the relationship between measures, and identified the extent to which resident characteristics predicted scores. Most instruments had good to excellent dispersion and interrater reliability, and most scales had good to excellent internal consistency. Proxy measures tended to correlate best with each other, less well with observational measures, and least well with resident measures. Resident cognition and activities of daily living (ADLs) function were associated with most quality-of-life measures but predicted no more than a quarter of the observed variance in any measure. Various measures and sources of data provide different perspectives on quality of life. No "gold standard" exists; so a combination of methods and sources is likely to provide the most complete picture of quality of life.
Ethnographic reflections on selfhood, embodiment and Alzheimer's disease
- Author:
- KONTOS Pia C.
- Journal article citation:
- Ageing and Society, 24(6), November 2004, pp.829-849.
- Publisher:
- Cambridge University Press
Explicit in the current construction of Alzheimer's disease is the assumption that memory impairment caused by cognitive deficiencies leads to a steady loss of selfhood. The insistence that selfhood is the exclusive privilege of the sphere of cognition has its origins in the modern western philosophical tradition that separates mind from body, and positions the former as superior to the latter. This dichotomy suggests a fundamental passivity of the body, since it is primarily cognition that is held to be essential to selfhood. In contrast to the assumed erasure of selfhood in Alzheimer's disease, and challenging the philosophical underpinnings of this assumption, this paper presents the findings of an ethnographic study of selfhood in Alzheimer's disease in a Canadian long-term care facility. It argues and demonstrates that selfhood persists even with severe dementia, because it is an embodied dimension of human existence. Using a framework of embodiment that integrates the perspectives of Merleau-Ponty and Bourdieu, it is argued that selfhood is characterised by an observable coherence and capacity for improvisation, and sustained at a pre-reflective level by the primordial and socio-cultural significance of the body. The participants in this study interacted meaningfully with the world through their embodied way of ‘being-in-the-world’.
Alzheimer's ruling reignites debate on the provision of long-term care
- Author:
- REVANS Lauren
- Journal article citation:
- Community Care, 12.2.04, 2004, pp.16-17.
- Publisher:
- Reed Business Information
Reports on the latest ruling of the health ombudsman, which has upheld the complaints of Barbara Pointon, the wife of a man with dementia who was campaigning for free NHS care at home for her husband. The decision has reopened the debate on the provision and funding of long-term care.
Everyday ethics in dementia day care: narratives of crossing the line
- Author:
- HASSELKUS Betty Risteen
- Journal article citation:
- Gerontologist, 37(5), October 1997, pp.640-649.
- Publisher:
- Oxford University Press
Looks at the ethical aspects of the experience of providing day care to people with dementia in the USA. Findings reveal that ethical challenges of dementia day care are embodied in the everyday incidents when participants, staff, or family members "cross the line" of acceptable behaviour. An ethical hierarchy of staff responses ranges from benign manipulation to termination of day care. Concludes that these findings help us understand the situated ethics of dementia day care and heighten our sensitivity to the lived experience of dementia day care staff.
Costs of dementia and dementia care: a review
- Authors:
- WIMO Anders, LJUNGGREN Gunnar, WINBLAD Bengt
- Journal article citation:
- International Journal of Geriatric Psychiatry, 12(8), August 1997, pp.841-856.
- Publisher:
- Wiley
Costs of dementia care constitute a great part of the total costs of care for older people. Because the prevalence of dementia is linked to increasing age, and the number of the oldest old is rising, the costs of dementia care will increase considerably in the forthcoming decades. Reviews research describing the costs of dementia care. Goes on to discuss the methodological problems of comparing and analysing research from different countries, and between different periods of time.
The effects of visual barriers on exiting behavior in a dementia care unit
- Authors:
- DICKINSON Joan Ivers, McLAIN-KARK Joan, MARSHALL-BAKER Anna
- Journal article citation:
- Gerontologist, 35(1), February 1995, pp.127-130.
- Publisher:
- Oxford University Press
Exiting due to wandering was a problem for caregivers in the dementia care unit. Previous attempts to control exiting by wanderers proved ineffective. Describes how the use of visual barriers reduced exiting.