Search results for ‘Subject term:"alzheimers disease"’ Sort:
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Life with two hats: part 3
- Authors:
- FAIN-BINDA Viviana, (Author and Producer)
- Publisher:
- Viviana Fain-Binda
- Publication year:
- 2009
- Pagination:
- 6 minutes 37 seconds
- Place of publication:
- -
Part 3 of a video on carers of people with dementia.The video highlights the different roles a carer plays (or different hats). They need to be compassionate when looking after the physical and mental health needs of the person they are caring for. They also need to be a warrier in order to battle to find out what services and benefits are available. (Publisher abstract)
Speaking our minds: what it's like to have Alzheimer's
- Author:
- SNYDER Lisa
- Publisher:
- Health Professions Press
- Publication year:
- 2009
- Place of publication:
- Baltimore, MD
- Edition:
- Rev. ed.
The author interweaves the interview responses of seven diverse individuals with Alzheimer’s disease with her own interpretation in order to gain insight into the day to day world of those with the disease. These first hand accounts offer the reader the opportunity to understand: the uniqueness of each individual’s experience; the coping strategies they use to face the changes and losses in their lives; the changes they experience as the disease progresses; and the barriers they encountered to living full and dignified lives. The author explains how to identify with and listen to persons with Alzheimer's and the distinct issues for young-onset persons with dementia. The book is aimed at professionals, family care givers, relatives, friends, students, and people who themselves have dementia. It is particularly suitable for those in the early stages of the disease. Discussion questions provide thought provoking material for use in coursework in aging and dementia, support groups, or book groups. The variety of backgrounds and perspectives of the people featured mean that many sufferers will find experiences in the text that parallel their own.
Safeguarding people with dementia: recognising adult abuse
- Author:
- PRITCHARD Jacki
- Publisher:
- Alzheimer's Society
- Publication year:
- 2009
- Pagination:
- 23p.
- Place of publication:
- London
This booklet, produced by Alzheimer's Society and Action on Elder Abuse, is designed to help those who work with people with dementia become aware of the potential causes and signs of abuse. People with dementia can be particularly vulnerable to abuse and mistreatment for many reasons. Dementia can also make it harder to detect when abuse is taking place. The booklet provides guidance on action to be taken and where to go for support. Contents include chapters on: what is dementia; what is abuse; why are people with dementia vulnerable to abuse; how do we recognise abuse; what action should be taken; and where to go for support?
Alzheimer's 911: help, hope and healing for the caregiver
- Author:
- GRAY-DAVIDSON Frena
- Publisher:
- Robert D. Reed
- Publication year:
- 2009
- Pagination:
- 187p.
- Place of publication:
- Bandon, OR
Writing from her own 20 years experience of working with dementia sufferers, the author offers an empowering and honest insight aimed at carers. She provides personal, often humorous, anecdotes to help caregivers begin to understand what is really going on inside the person with dementia. The book is described as melding the two tools seen as most precious to those associated with dementia: hope and pragmatism. It is intended as a practical, concrete, step by step guide to having a meaningful life while on the Alzheimer’s journey, either as the sufferer or the caregiver.
The moderating role of personal mastery on the relationship between caregiving status and multiple dimensions of fatigue
- Authors:
- ROEPKE Susan K., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 24(12), December 2009, pp.1453-1462.
- Publisher:
- Wiley
A substantial proportion of chronically-stressed spousal dementia caregivers report fatigue. This study tests the hypothesis that the relationship between caregiver status and fatigue is moderated by personal mastery. Seventy-three elderly Alzheimer’s caregivers and 41 elderly non-caregivers completed the Multidimensional Fatigue Symptom Inventory-Short Form and questionnaires assessing mastery. The results confirmed that fatigue was significantly higher for caregivers. However, personal mastery moderated the relation between caregiving status and both emotional and physical fatigue, so that the association between caregiver status and fatigue was significantly greater when mastery was low. Caregivers with high mastery had significant reduction in both emotional and physical fatigue compared to those with low mastery. Considering the large proportion of caregivers who experience fatigue and the impact that this can have on physical and mental health, these findings provide information on a possible target for intervention aimed at alleviating fatigue in caregivers.
Understanding Alzheimer's disease and other dementias
- Authors:
- GRAHAM Nori, WARNER James
- Publisher:
- Family Doctor
- Publication year:
- 2009
- Pagination:
- 160p.
- Place of publication:
- Poole
Dementia is a term used to describe any condition where a variety of different brain functions such as memory, thinking, recognition, language, planning and personality deteriorate over time. Everyone gets more forgetful as they get older but that does not mean that they have dementia - it is not part of normal ageing. The most common type of dementia is Alzheimer's disease, but there are several other types. This book is intended for patients and carers and for anyone who may be worried that they or one their family or friends may have dementia. Chapters include: Symptoms of dementia; Treatments for dementia; Living with dementia; Future prospects.
'A licence to be free’: changing the way we see dementia
- Authors:
- HOUSTON Agnes, ALLAN Kate, KILLICK John
- Journal article citation:
- Journal of Dementia Care, 17(5), September 2009, pp.30-31.
- Publisher:
- Hawker
Part one of a conversation in which a person with Alzheimer's disease talks about aspects of her life since her diagnosis of dementia with two other people. The discussion covers her feelings about dementia, her medication, being active and being creative.
Support for Alzheimer's caregivers
- Author:
- WILKS Scott E.
- Journal article citation:
- Research on Social Work Practice, 19(6), November 2009, pp.722-729.
- Publisher:
- Sage
Information on the shortened, 20-item version of the Perceived Social Support Scale (S-PSSS) is scarce. The purpose of this study is to evaluate the psychometric properties of the S-PSSS Family (SSfa) and Friends (SSfr) subscales. Because of their common coping method of social support, a cross-sectional sample of Alzheimer’s carers was relevant for this evaluation. Self-reported data were collected from 229 participants at two carer conferences. Factor analysis on each measure indicated a three-factor solution with all items loaded. Reliability was satisfactory. Correlational analyses and odds ratios indicated preliminary construct validity for SSfa and SSfr. The S-PSSS subscales appear to be psychometrically appropriate for potential use in appraising family and friend support among Alzheimer’s caregivers.
Selfhood in younger onset dementia: transitions and testimonies
- Authors:
- HARRIS Phyllis Braudy, KEADY John
- Journal article citation:
- Aging and Mental Health, 13(3), May 2009, pp.437-444.
- Publisher:
- Taylor and Francis
Younger people with dementia and their carers are an overlooked population for research, policy and practice attention. In this study, data were collected from both the United States and the UK in order to explore the meaning and construction of selfhood and identity. The US data collection included in-depth interviews with 23 people diagnosed with younger-onset dementia, while the UK data collection comprised 15 face-to-face interviews with younger carers of younger people with dementia; all carers were/had been caring for a younger person with dementia diagnosed through the DSM-IV-R criteria. A grounded theory analysis of the data resulted in the emergence of five themes to explain the interview data, these were: (1) identity as a worker; (2) identity of abandoned individual; (3) sexual identity; (4) family identity; and (5) identity as an individual engaged in living. Additional research is necessary to further develop the attributes and application of these identity profiles.
Emotional reactions of Arab lay persons to a person with Alzheimer's disease
- Authors:
- COHEN Miri, WENER Perla, AZAIZA Faisal
- Journal article citation:
- Aging and Mental Health, 13(1), January 2009, pp.31-37.
- Publisher:
- Taylor and Francis
A total of 170 Israeli Arab adults, aged 40-85, were interviewed in person by the vignette methodology for their emotional reactions to people with Alzheimer's Disease (AD). Their perceptions of dangerousness of persons with AD to themselves and to others, familiarity with the disease and perceptions of personal threat were also probed. Four dimensions of emotional reactions to a person with AD emerged: anxiety, aggressiveness, prosocial reactions and rejection. More positive than negative emotions were expressed. Levels of education and religiosity, and perceived dangerousness of the person with AD to others, were the main factors associated with emotional reactions. Culturally based educational programs should be developed to increase knowledge and reduce negative reactions, thus increasing the wellbeing of AD sufferers and their families.