Search results for ‘Subject term:"activities of daily living"’ Sort:
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Chronic fatigue syndrome/ME: support for family and friends
- Author:
- TURP Elizabeth
- Publisher:
- Jessica Kingsley
- Publication year:
- 2010
- Pagination:
- 240p.
- Place of publication:
- London
Chronic Fatigue Syndrome (CFS)/ME manifests itself as extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition is likely to have an impact on all areas of a sufferer's life as well as the lives of their family and friends. This book aims to provide the families and friends of people with CFS/ME with a clear introduction to the condition, and explains what can be done to support those who have it. It offers practical advice on how to help sufferers cope with the illness, and suggests ways to help with everyday issues such as personal hygiene, nutrition, finances, and relationships. The author, who has had CFS herself, recognises that coping with the impact of CFS/ME can be just as difficult for the relatives and friends and addresses the emotional, social, and practical aspects of having a loved one with CFS/ME. She explains how to understand the changes in the relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their carers and supporters.
A dimensional analysis of caregiver burden among spouses and adult children
- Authors:
- SAVUNDRANAYAGAM Marie Y., MONTGOMERY Rhonda J. V., KOSLOSKI Karl
- Journal article citation:
- Gerontologist, 51(3), June 2011, pp.321-331.
- Publisher:
- Oxford University Press
There is growing consensus that the burden of caregiving responsibilities is multidimensional. This article identifies dimensions reflecting pre-existing interpersonal relationships (relationship burden), activities to provide support for the care receiver which may affect other aspects of the caregiver's life (objective burden), and emotional stress or anxiety relating to caregiving experience (stress burden). The aim of the study described was to examine the measurement properties of the Montgomery-Borgatta Burden Measure, designed to assess the caregiver's perceptions about their caregiving burden. The participants were 280 spouse/partner and 243 adult child caregivers of people with chronic illnesses recruited from the US League of Experienced Family Caregivers. Information was gathered using questionnaires, and the article describes the methods, analysis and results. It reports that the findings supported the contention that caregiver burden is multidimensional, and demonstrated the invariance of the 3 dimensions of burden across spouses and adult children.
Reducing stress-related behaviours in people with dementia: care-based therapy
- Author:
- BONNER Chris
- Publisher:
- Jessica Kingsley
- Publication year:
- 2005
- Pagination:
- 92p., bibliog.
- Place of publication:
- London
This practical book provides simple and imaginative ways to prevent and reduce stress-related behaviours in people with dementia in residential care. The author's approach is based on maximizing personal expression and fulfilment and recovering access to familiar, enjoyable and meaningful activities. He suggests strategies for managing common problems with feeding, bathing, toileting and sleep, looks at how to understand and cope with wandering, agitation and inappropriate sexual activity, and discusses ways of defusing aggressive behaviour. He also explains how to enhance care home environments and staff communication skills, and suggests a variety of helpful activities and therapies.
Initiating activities of daily living contributes to well-being in people with dementia and their carers
- Authors:
- GIEBEL Clarissa M., SUTCLIFFE Caroline
- Journal article citation:
- International Journal of Geriatric Psychiatry, 33(1), 2018, p.e94–e102.
- Publisher:
- Wiley
Problems with everyday functioning are linked to reduced well-being in people with dementia (PwD) and their carers. However, previous research has almost solely investigated the performance of everyday activities, and global functioning without analysing individual activities. This study explored how deficits in initiating and performing individual activities were associated with carer burden and poorer quality of life of carers and PwD. Methods: Carers of people with mild dementia were recruited via 10 National Health Service Trusts, as well as through attending six carer support groups. Carers were asked to complete the revised Interview for Deteriorations in Daily Living Activities in Dementia 2 (R-IDDD2), and measures on carer burden, well-being, and person with dementia well-being. Data were analysed using correlation analysis. Results: Two hundred and seventy-two carers completed the R-IDDD2. Carers were grouped into those with low or high ratings of well-being based on the mean scores. All but three activities on the initiative and/or performance scale were significantly associated with carer burden and carer and PwD quality of life. Engaging in hobbies and maintaining an active social life were most strongly associated with carer and PwD well-being. Initiating computer use, driving, and medication management were not related to carer burden. Conclusions: Findings from this study can have direct implications for improving care management early in the disease. Post-diagnostic support needs to provide more opportunities for PwD, and their carers, to engage in social groups, whilst interventions targeted at living well with dementia need to particularly improve the initiative of engaging in individual hobbies. (Publisher abstract)
The determinants of informal caregivers' burden in the care of frail older persons: a dynamic and role-related perspective
- Authors:
- MELLO J. de Almedia, et al
- Journal article citation:
- Aging and Mental Health, 21(8), 2017, pp.838-843.
- Publisher:
- Taylor and Francis
Abstract: Research into informal caregivers' burden does not distinguish between different stages of impairment. This study explored the determinants of burden from an in-depth perspective in order to identify which determinants apply to which phases of impairment. Methods: This was a cross-sectional study including frail older persons aged 65 and above. Instruments used were the interRAI Home Care, the Zarit-12 interview and an ad hoc economic questionnaire. A combination of variables from the Stress Process Model and Role Theory and a sub-group analysis enabled refined multivariate logistic analyses. Results: The study population consisted of 4175 older persons (average age: 81.4 ± 6.8, 67.8% female) and their informal caregivers. About 57% of them perceived burden. Depressive symptoms, behavioural problems, IADL impairment, previous admissions to nursing homes and risk of falls yielded significant odds ratios in relation to informal caregivers’ burden for the whole sample. These determinants were taken from the Stress Process Model. When the population was stratified according to impairment, some factors were only significant for the population with severe impairment (behavioural problems OR:2.50; previous admissions to nursing homes OR:2.02) and not for the population with mild or moderate impairment. The informal caregiver being an adult child, which is a determinant from Role Theory, and cohabitation showed significant associations with burden in all strata. Conclusion: Determinants of informal caregivers’ burden varied according to stages of impairment. The results of this study can help professional caregivers gain a greater insight into which informal caregivers are most susceptible to perceive burden. (Edited publisher abstract)
Factors associated with perceived health in older adult Irish population
- Authors:
- BURKE Kate E., et al
- Journal article citation:
- Aging and Mental Health, 16(3), April 2012, pp.288-295.
- Publisher:
- Taylor and Francis
Perceived health status or self-reported health is a reliable indicator of overall health status and is a widely used measure in health and aging surveys. Self-reported health declines with age and is associated with increased morbidity, mortality, poor mental health and functional outcomes and health care utilisation. The aim of this study was to investigate how older people perceive their health and the physical, psychological and social factors that influence and potentially predict such perceptions. The participants were 492 community-dwelling older people with a mean age of 72.5 years living in Dublin. The participants underwent a comprehensive assessment using standardised measures of medical morbidity, personality, functional status, depression, anxiety, perceived stress, cognition, loneliness and social support. Analysis of the findings revealed that self-rated health is best predicted by instrumental activities of daily living (IADL), Charlson Co-morbidity Index (CCI), extraversion and perceived stress. The effects of cognition and social support from friends on self-rated health were found to be mediated by elements of these identified factors. The article concludes that self-rated health is not simply the absence of physical illness but is also strongly influenced by the degree of functional impairment, personality factors and the level of stress experienced by the older person.
Stress and burden among caregivers of patients with Lewy Body Dementia
- Authors:
- LEGGETT Amanda N., et al
- Journal article citation:
- Gerontologist, 51(1), February 2011, pp.76-85.
- Publisher:
- Oxford University Press
Lewy Body Dementia (LBD) is the second most prevalent dementia type in the USA. The authors describe its symptoms, list its distinguishing features and advise on its possible misdiagnosis as Alzheimers disease. This study looks at stress, and the burden and appraisal of emotional, physical and social challenges faced by 611 family carers. Participants were recruited via a Lewy Body Dementia Association survey online between December 2007 and January 2008. A modified 12-item Zarit Burden Interview and factor analysis revealed 3 types of burden: role strain; personal strain; and worry about performance. Multiple regressions identified the following as predictors of these burdens: behavioural and emotional problems (BEPs); deficiencies in the activities of daily living (ADL); isolation; carer age; and patient gender. Other hallmark stressors commonly associated with LBD include: motor and movement disabilities, which add to difficulties with ADL; and a lack of formal awareness of the condition, which can lead to feelings of isolation and BEPs. The authors note that the following were not linked to burden: formal service use; falls; difficulties in finding a physician; and subsequent evaluation of that physician.
Community based occupational therapy for patients with dementia and their care givers: randomised controlled trial
- Author:
- GRAFF Maud J.L.
- Journal article citation:
- British Medical Journal, 9.12.06, 2006, pp.1196-1199.
- Publisher:
- British Medical Association
This study aimed to determine the effectiveness of community based occupational therapy on daily functioning of patients with dementia and the sense of competence of their care givers. Participants were 135 patients aged 65 with mild to moderate dementia living in the community and their primary care givers. The interventions were 10 sessions of occupational therapy over five weeks, including cognitive and behavioural interventions, to train patients in the use of aids to compensate for cognitive decline and care givers in coping behaviours and supervision. Patients' daily functioning was assessed with the assessment of motor and process skills (AMPS) and the performance scale of the interview of deterioration in daily activities in dementia (IDDD). Care giver burden was assessed with the sense of competence questionnaire (SCQ). Participants were evaluated at baseline, six weeks, and three months. Scores improved significantly relative to baseline in patients and care givers in the intervention group compared with the controls. It is concluded that occupational therapy improved patients' daily functioning and reduced the burden on the care giver, despite the patients' limited learning ability. Effects were still present at 12 weeks, which justifies implementation of this intervention.
Does depression prior to caregiving increase vulnerability to depressive symptoms among caregivers of persons with Alzheimer's disease?
- Authors:
- NEUNDORFER M. M., et al
- Journal article citation:
- Aging and Mental Health, 10(6), November 2006, pp.606-615.
- Publisher:
- Taylor and Francis
Based on the vulnerability model of depression, this study tested the hypothesis that caregivers with prior depression are more likely to be depressed during caregiving than caregivers without prior depression. The authors further hypothesized an interaction effect in which caregivers with prior depression would be affected more by care-recipient dependency in activities of daily living and care-recipient depressive symptoms than those without prior depression. In a sample of 111 caregivers of persons with Alzheimer's disease, in an additive regression model, neither ‘prior depressive symptoms’ nor the clinically more serious ‘prior depressive syndrome’ was related to depressive symptoms during caregiving. In an interaction model, for caregivers with either ‘no prior depression’ or ‘prior depressive symptoms,’ the greater the care-recipient dependencies in instrumental activities of daily living (IADL), the greater were the depressive symptoms during caregiving. For caregivers with a ‘prior depressive syndrome’, however, the greater the IADL dependency, the fewer were the depressive symptoms during caregiving. This unexpected finding suggests that caregivers with a history of clinically significant depression are not necessarily more prone to depressive symptoms when caregiving responsibilities, at least for instrumental activities, are high. This result questions the vulnerability model of depression when applied to older caregivers.
Mental status of the elderly receiving home health services and the associated stress of home helpers
- Authors:
- NAGATOMO Itsugi, TAKIGAWA Morikuni
- Journal article citation:
- International Journal of Geriatric Psychiatry, 13(1), January 1998, pp.57-63.
- Publisher:
- Wiley
Investigates older Japanese people receiving home health service investigated. The study examines intellectual levels, depressive state evaluated by the Cornell scale for depression in dementia (CSDD) scale, abnormal behaviours evaluated by the dementia behaviour disturbance (DBD) scale, and activities of daily living (ADL).