Search results for ‘Subject term:"access to services"’ Sort:
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Experiences of unpaid carers for someone with dementia
- Author:
- BANKS Tim
- Publisher:
- Carers Trust Wales
- Publication year:
- 2022
- Pagination:
- 17
- Place of publication:
- Cardiff
This study aimed to understand the experiences and needs of unpaid carers for people with dementia. The purpose is to use the findings to provide recommendations to policy and decision makers and to add to the body of evidence to be best equipped to campaign nationally for better support for carers, raising awareness of unmet needs. Three male carers and four female carers were interviewed. All interviewees cared for a family member with two carers looking after at least one grandparent, four caring for a parent and one caring for a spouse. The following are the key themes to emerge: the carer role is not something that is well recognised but also not clearly defined; the identity of the individual can be intertwined with caring; care work often negatively impacts on carer wellbeing; the changed relationship between the carer and cared for can be particularly emotive; carers want a different relationship with social services. Concerted and sustained efforts should be made to recognise 'hidden carers', carers who do not recognise themselves as such. Health and social care professionals should be encouraged to recognise and identify unpaid carers so that they can access any necessary support, advice and entitlements accordingly. (Edited publisher abstract)
Limited receipt of support services among people with mild‐to‐moderate dementia: findings from the IDEAL cohort
- Authors:
- VAN HORIK Jayden O., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 37(3), 2022,
- Publisher:
- Wiley
Background: Global initiatives that promote public health responses to dementia have resulted in numerous countries developing new national policies. Current policy guidelines in England, for example, recommend that people diagnosed with mild-to-moderate dementia receive information and psychosocial interventions to improve their ability to ‘live well’. However, it remains unclear to what extent these recommendations are being achieved. Methods: Self-reported information from 1537 people living with dementia and informant-reported information from 1277 carers of people living with dementia was used to quantify receipt of community-based dementia support services, including health and social care services provided by statutory or voluntary-sector organisations, in Britain from 2014 to 2016. Demographic factors associated with differences in receipt of support services were also investigated to identify particularly vulnerable groups of people living with dementia. Results: Both self- and informant reports suggested that approximately 50% of people living with dementia received support services for dementia. Receipt of support services was lower among people living with dementia who are older, female, and have fewer educational qualifications. Receipt of support services also differed according to diagnosis and carer status, but was unrelated to marital status. Conclusions: Limited receipt of dementia support services among people living with dementia in Britain provides a baseline to assess the efficacy of current policy guidelines regarding provision of information and support. Targeted efforts to facilitate receipt of support services among the particularly vulnerable groups identified in the current study could improve the efficacy of dementia support services both in Britain and internationally, and should inform policy development. (Edited publisher abstract)
Carers’ experiences of timely access to and use of dementia care services in eight European countries
- Authors:
- JELLEY Hannah, et al
- Journal article citation:
- Ageing and Society, 41(2), 2021, pp.403-420.
- Publisher:
- Cambridge University Press
Timely access to care services is crucial to support people with dementia and their family carers to live well. Carers of people with dementia (N = 390), recruited from eight countries, completed semi-structured interviews about their experiences of either accessing or not using formal care services over a 12-month period in the Access to Timely Formal Care (Actifcare) study. Participant responses were summarised using content analysis, categorised into clusters and frequencies were calculated. Less than half of the participants (42.3%) reported service use. Of those using services, 72.8 per cent reported timely access and of those not using services 67.2 per cent were satisfied with this situation. However, substantial minorities either reported access at the wrong time (27.2%), or feeling dissatisfied or mixed feelings about not accessing services (32.8%). Reasons for not using services included use not necessary yet, the carer provided support or refusal. Reasons given for using services included changes in the condition of the person with dementia, the service's ability to meet individual needs, not coping or the opportunity to access services arose. Facilitators and barriers to service use included whether participants experienced supportive professionals, the speed of the process, whether the general practitioner was helpful, participant's own proactive attitude and the quality of information received. To achieve timely support, simplified pathways to use of formal care services are needed. (Edited publisher abstract)
Accessible design and dementia: a neglected space in the equality debate
- Authors:
- HOUSTON Agnes, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 19(1), 2020, pp.83-94.
- Publisher:
- Sage
This paper addresses the issue of accessible design in the context of dementia. It is not difficult to design buildings and outside spaces for people with dementia but you do have to follow clear design principles and values. However, unlike other disabilities, accessible dementia design is still viewed as an added extra and not a vital component of facilitating citizenship. In 2015, the World Health Organisation published guidance on human rights and dementia. People living with dementia are frequently denied their human rights even when regulations are in place to uphold them. This paper will focus on accessible design from a human rights perspective using the PANEL principles. PANEL stands for Participation, Accountability, Non-Discrimination and Equality, Empowerment and Legality. The paper concludes with recommendations for policy, practice and research to ensure that accessible design for people living with dementia does not continue to be a neglected space in the equality debate. (Edited publisher abstract)
Is this outside public space dementia-inclusive?
- Authors:
- INNOVATIONS IN DEMENTIA, UNIVERSITY OF EDINBURGH. Edinburgh Centre for Research on the Experience of Dementia, HAMMONDCARE. Dementia Centre
- Publisher:
- Dementia Engagement and Empowerment Project
- Publication year:
- 2017
- Pagination:
- 8
A checklist to assess how inclusive outside public spaces, such as parks or approaches to public buildings are for people with dementia. The checklist has been designed to help dementia groups when carrying out environmental audits of venues and facilities and covers nine key areas to consider. It has been tested and refined by members of DEEP (The Dementia Engagement and Empowerment Project). (Edited publisher abstract)
Is this inside public space dementia-inclusive? A checklist for use by dementia groups
- Authors:
- INNOVATIONS IN DEMENTIA, UNIVERSITY OF EDINBURGH. Edinburgh Centre for Research on the Experience of Dementia, HAMMONDCARE. Dementia Centre
- Publisher:
- Dementia Engagement and Empowerment Project
- Publication year:
- 2017
- Pagination:
- 8
A checklist to assess how inclusive inside public spaces, such as leisure centres and cafes, are for people with dementia. The checklist has been designed to help dementia groups when carrying out environmental audits of venues and facilities and covers ten key areas to consider. It has been tested and refined by members of DEEP (The Dementia Engagement and Empowerment Project). (Edited publisher abstract)
Dementia-friendly Yorkshire: first steps on the journey
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2014
- Pagination:
- 24
- Place of publication:
- York
Part of JRF’s programme Dementia Without Walls, this collection comprises 20 examples of inspiring grassroots dementia-friendly projects transforming communities across Yorkshire. It describes projects which are taking place in shops, churches, mosques, gurdwaras, legal services and cafes, and in public services such as transport, museums, hospitals, trading standards, schools, libraries, and sports centres. Local dementia ‘champions’ are behind most of this work, and show how we can each play our role in making our own community or organisation a welcoming and supportive place for people with dementia. (Edited publisher abstract)
What makes a dementia-friendly community?
- Author:
- MILTON Steve
- Journal article citation:
- Journal of Dementia Care, 20(2), March 2012, pp.12-13.
- Publisher:
- Hawker
In this article, the author, from Innovations in Dementia, went out to hear from people with dementia what they would regard as a ‘dementia friendly community’. People with dementia, and their carers, wanted to stay active within the community. The physical environment was a factor, but the attitude of others was more important. Local groups were seen as key places of safety, and allowed them to stay connected, especially through one-to-one support provided by buddying schemes. They thought that local communities should increase their awareness of dementia, make mainstream services more dementia friendly, and provide more accessible information about local services and facilities.
Poor care for people with dementia
- Author:
- MANTHORPE Jill
- Journal article citation:
- Community Care, 30.08.07, 2007, p.32, 34.
- Publisher:
- Reed Business Information
A critical report from the National Audit Office describes dementia care in England as poor. The author looks at the evidence of varying services across the country and health and social care disparities.
Getting on with living: a guide to developing early dementia support services
- Authors:
- CANTLEY Caroline, SMITH Monica
- Publisher:
- Mental Health Foundation
- Publication year:
- 2007
- Pagination:
- 71p., bibliog.
- Place of publication:
- London
The early stages of dementia can be difficult to recognise because the changes that an individual experiences may be attributed to other factors, such as family or work induced stress, physical health problems, depression, or other mental health problems. However, our overall understanding of early dementia, and particularly the experiences of living with early dementia, has advanced. In particular we are now more aware of the information and support needs of people with early dementia and their families. Although services to meet their needs are not well developed, there are some examples of good practice and there is a limited, but growing, body of relevant research. Yet there is little guidance available for service managers or practitioners. This guide aims to address this gap. It provides an overview of what we know about current practice in early dementia support services and offers suggestions about setting up, running and developing services.