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Experiences of unpaid carers from Black and minority ethnic communities report
- Author:
- BANKS Tim
- Publisher:
- Carers Trust
- Publication year:
- 2022
- Pagination:
- 28
- Place of publication:
- Rugby
This research sought to understand the experiences of unpaid carers from Black and minority ethnic communities in Wales to identify, raise awareness and highlight solutions to specific challenges and requirements. After conducting interviews with 23 unpaid carers from Black and minority ethnic communities, the following themes were identified: the overarching theme is a ‘lack of fit’ between the support and services available and the needs of unpaid carers from Black and minority ethnic communities; there are practical barriers to receiving support, including general lack of awareness of carer rights and services that might be available, language barriers, a lack of reliable support at home, inappropriateness of service support, a lack of cultural sensitivity on the part of providers, differing concepts of what constitutes 'care'; there are cultural expectations within the local community regarding the carer role - this has an impact on the capacity to seek support; perceptions of what it is to be a carer means that many carers do not access support; there is a general lack of trust in service providers, particularly social services, to offer appropriate support. (Edited publisher abstract)
Experiences of unpaid carers for someone with dementia
- Author:
- BANKS Tim
- Publisher:
- Carers Trust Wales
- Publication year:
- 2022
- Pagination:
- 17
- Place of publication:
- Cardiff
This study aimed to understand the experiences and needs of unpaid carers for people with dementia. The purpose is to use the findings to provide recommendations to policy and decision makers and to add to the body of evidence to be best equipped to campaign nationally for better support for carers, raising awareness of unmet needs. Three male carers and four female carers were interviewed. All interviewees cared for a family member with two carers looking after at least one grandparent, four caring for a parent and one caring for a spouse. The following are the key themes to emerge: the carer role is not something that is well recognised but also not clearly defined; the identity of the individual can be intertwined with caring; care work often negatively impacts on carer wellbeing; the changed relationship between the carer and cared for can be particularly emotive; carers want a different relationship with social services. Concerted and sustained efforts should be made to recognise 'hidden carers', carers who do not recognise themselves as such. Health and social care professionals should be encouraged to recognise and identify unpaid carers so that they can access any necessary support, advice and entitlements accordingly. (Edited publisher abstract)
Limited receipt of support services among people with mild‐to‐moderate dementia: findings from the IDEAL cohort
- Authors:
- VAN HORIK Jayden O., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 37(3), 2022,
- Publisher:
- Wiley
Background: Global initiatives that promote public health responses to dementia have resulted in numerous countries developing new national policies. Current policy guidelines in England, for example, recommend that people diagnosed with mild-to-moderate dementia receive information and psychosocial interventions to improve their ability to ‘live well’. However, it remains unclear to what extent these recommendations are being achieved. Methods: Self-reported information from 1537 people living with dementia and informant-reported information from 1277 carers of people living with dementia was used to quantify receipt of community-based dementia support services, including health and social care services provided by statutory or voluntary-sector organisations, in Britain from 2014 to 2016. Demographic factors associated with differences in receipt of support services were also investigated to identify particularly vulnerable groups of people living with dementia. Results: Both self- and informant reports suggested that approximately 50% of people living with dementia received support services for dementia. Receipt of support services was lower among people living with dementia who are older, female, and have fewer educational qualifications. Receipt of support services also differed according to diagnosis and carer status, but was unrelated to marital status. Conclusions: Limited receipt of dementia support services among people living with dementia in Britain provides a baseline to assess the efficacy of current policy guidelines regarding provision of information and support. Targeted efforts to facilitate receipt of support services among the particularly vulnerable groups identified in the current study could improve the efficacy of dementia support services both in Britain and internationally, and should inform policy development. (Edited publisher abstract)
Building public understanding of health and health inequalities
- Authors:
- KANE Martina, THORNTON Jacqui, BIBBY Jo
- Publisher:
- Health Foundation
- Publication year:
- 2022
- Place of publication:
- London
There is a mismatch between the public’s perceptions of what influences health (namely individual behaviour and access to care) and the clear evidence base demonstrating the significance of wider determinants of health. In this long read we draw on polling and recent research to explore the reasons behind public attitudes towards health and health inequalities. We look at how public health professionals can use communications techniques to improve public understanding of evidence about health inequalities. Research shows that people tend to filter nuanced messages about health through either an individualistic or ecological (structural) lens. Understanding how these different mindsets can promote – or obscure – people’s awareness of the significance of social determinants is an important first step in developing effective ways of framing the evidence. We should be aiming to shift more people towards the ecological mindset, while also being wary of a possible sense of inevitability or disempowerment at the scale of complex systemic challenges. To achieve this, we can learn from the recent change in dialogue on climate, and use tangible examples showing structural inequalities (relatable case studies cut through). Anyone delivering public health messages must take time to understand how their messages land with the public. (Edited publisher abstract)
Trends in child and adolescent mental health services and the Cordis Bright CAMHS stress-test
- Author:
- CORDIS BRIGHT
- Publisher:
- Cordis Bright
- Publication year:
- 2021
- Pagination:
- 48
- Place of publication:
- London
This document presents an analysis of trends in Child and Adolescent Mental Health Services (CAMHS) in England. It presents a national picture and then examines how these trends vary by local area. Clinical Commissioning Groups (CCGs) are often experiencing different pressures to the national average: we aggregate 13 indicators to identify those which we think are experiencing the most pressures. There has been a 118% increase in the number of people in contact with children and young people mental health services in the month of November in England since 2016. This rate of increase is slower than that for open referrals. There may indicate a lack of capacity to respond to increasing demand for mental health services. Similarly, the proportion of the population aged 0-18 years who are in contact with CAMHS services in November of each year has increased since 2016, i.e. from 11 per 1,000 to 24 per 1,000. This indicates that the number of people in contact with these services is increasing more rapidly than the overall population of children and young people aged 0-18. (Edited publisher abstract)
Delphi study to understand options available that will help to identify, address, or mitigate the impact of COVID-19 on children under age 5
- Authors:
- TYRIE Jacky, KNIGHT Cathryn, BORRAS Margarida
- Publisher:
- Welsh Government
- Publication year:
- 2021
- Pagination:
- 88
- Place of publication:
- Cardiff
Based on the opinions of more than 400 experts and practitioners, this study points to ways that will help to identify, address, or mitigate the impact of COVID-19 on children under age 5. Overall, expert participants believed that the social and emotional development of children under 5 would be most negatively impacted by COVID-19. This was followed by speech and language development, physical development, and health and, finally, cognitive development. In addition, experts believed that 4-5 years olds would be the most negatively impacted by COVID-19 with the negative impacting decreasing as the child’s age decreased. Very few participants believed that there was a positive impact of the COVID19 pandemic on any sociodemographic group, age group or area of development. Research participants believe there is value in: supporting early education and childcare settings to create supportive play environments; creating calm environments which provide children with a sense of belonging; supporting their well-being to ensure that they are able to progress in their learning and development. In terms of more strategic methods, the key message is that early education and childcare provision should be of a high quality, with universal access, which sits alongside quality parents and carers support and resources. (Edited publisher abstract)
What changes for young carers? A qualitative evaluation of the impact of dedicated support provision for young carers
- Author:
- PHELPS Daniel
- Journal article citation:
- Child and Adolescent Social Work Journal, 38(5), 2021, pp.547-558.
- Publisher:
- Springer
In 2016, the Children’s Commissioner for England reported that the most frequent provision for young carers (YCs) comes from dedicated YC services. This study formed one part of a three-year evaluation of support for YCs and their families provided by the Hampshire YCs Alliance (HYCA), a county-wide collaboration of ten YC services in the UK. It set out to explore the following primary questions; (a) what are the most important changes that the YC services made to YCs and their families? (b) what is it about the services that creates those changes? Semi-structured interviews were carried out in 2017, with YCs aged 9–17 (n = 8), their parents (n = 5), HYCA staff (n = 6) and professionals from other stakeholder organisations (n = 5) and a thematic analysis was undertaken. Reflecting previous research that YCs and their families have a broad range of needs, findings also reveal how YC services support them through a diverse range of interventions. Support led to a diverse range of positive changes for YCs and their families. A number of service features that facilitate change for YCs, as well as ‘key dynamics’ important in facilitating change were identified. These findings have led to a conceptual framework of how YC services facilitate change for YCs and are important for understanding the impact these dedicated services can make to the lives of YCs and how they facilitate change. Together they have implications for the development and commissioning of interventions for YCs and families and how service providers promote their support provision. (Edited publisher abstract)
Youth in foster care and the reasonable and prudent parenting standard
- Authors:
- MCRELL Amanda Stafford, et al
- Journal article citation:
- Child Maltreatment, 26(3), 2021, pp.302-312.
- Publisher:
- Sage
Children in foster care face disproportionate rates of biopsychosocial challenges but social and extracurricular activities (SEAs) may support their healthy development. The Reasonable and Prudent Parenting Standard (RPPS), a 2014 federal policy, aims to increase access to these opportunities for children in foster care. Analyses of statutes from 50 US states and the District of Columbia (n = 51) revealed similarities and differences in state-level RPPS policy implementation. Building on these findings, researchers conducted semi-structured retrospective telephone interviews with foster parents across one southeastern state (n = 20) to identify local retrospective perspectives on RPPS implementation. Using thematic inductive coding two unique themes emerged about SEAs prior to RPPS: 1) negative social impacts and 2) complicated activity approval processes. Three unique themes emerged after RPPS: 1) empowerment, 2) implementation disparities and 3) resource recommendations. Policy implications include the need to support foster parents by increasing resources (funding, transportation, access), clarifying liability and clarifying motivation expectations. (Edited publisher abstract)
Not making the grade: why our approach to mental health at secondary school is failing young people
- Author:
- MIND
- Publisher:
- MIND
- Publication year:
- 2021
- Pagination:
- 71
This report presents the findings of research either carried out or commissioned by Mind from September 2020 to April 2021 about the experiences of young people in England affected by mental health problems at secondary school. Our inquiry has found that secondary schools struggle, with minimal resources and over-stretched staff, to support young people with behaviour resulting from their mental health. Traumatised young people are frequently experiencing a punitive response from schools, such as being placed in isolation or excluded. For some, this damaging treatment has a devastating impact on their future lives. Every young person deserves to be listened to, have their needs understood, and be supported to address the underlying causes of their behaviour. The report makes a series of recommendations, including: create an attendance system which does not disadvantage or stigmatise young people experiencing mental health problems; Improve access to NHS mental health services; and radically rethink the approach to discipline in secondary schools. (Edited publisher abstract)
Corporate parenting in a pandemic: considering the delivery and receipt of support to care leavers in Wales during Covid-19
- Authors:
- ROBERTS Louise, et al
- Journal article citation:
- Children and Youth Services Review, 128, 2021, p.106155.
- Publisher:
- Elsevier
This paper considers the support available to care leavers during the Covid-19 pandemic from their corporate parents. The paper contributes to a developing evidence base concerned with social work efforts to adapt and maintain support provision during the unprecedented circumstances, and provides insight into how such support was perceived and experienced. Funded by Voices from Care Cymru and Cardiff University, a qualitative, mixed method study was conducted which included a survey of Welsh Local Authority professionals (n = 22) and interviews with Welsh care-experienced young people aged 17–24 (n = 17). The findings of this paper show the propensity of corporate parents to provide protection against the adversities of the pandemic, or to compound difficulties. While some young people reported being both practically and emotionally supported, for others corporate parenting support was perceived as unavailable, unhelpful and / or uncaring. The Covid-19 pandemic provides a unique lens to consider the strengths, flaws and future opportunities for corporate parenting. The findings emphasise the need for parity of support for young people leaving care and consideration of national, local and individual responses is included. Yet consistent with findings pre-dating the pandemic, the findings reaffirm the enduring importance of both relationships and resources in ensuring good support for care leavers. (Edited publisher abstract)