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Journal article

'They're taking the place of my hands': perspectives of people using personal care

Authors:
MEYER Michelle, DONELLY Michelle, WEERAKOON Patricia
Journal article citation:
Disability and Society, 22(6), October 2007, pp.595-608.
Publisher:
Taylor and Francis,

This study investigated the experience of personal support provided by paid service providers. People who were using formal personal care services (participants) were engaged in in-depth interviews about their experiences. The results of a thematic analysis of transcript data are reported. Findings indicate that the participants wanted their personal autonomy facilitated when they received assistance. This was achieved when the carer replaced the participant's 'hands' and followed the choices and preferences of the participant when providing assistance. A number of barriers prevented participants from achieving self-determination. This included the carer's attitudes and aversions to tasks, formal training and rules and regulations set down by the personal care service providers.

Journal article

Living with paraplegia: tensions and contradictions

Authors:
O'CONNOR Deborah L., YOUNG Jenny M., SAUL Megan Johnston
Journal article citation:
Health and Social Work, 29(3), August 2004, pp.207-218.
Publisher:
Oxford University Press

In-depth, personal interviews were conducted with 7 individuals with paraplegia who had been living back in the community for less than 2 years. Qualitative analysis suggests the transitional process revolved around their struggle to reposition themselves in a holistic way that reflects the injury while moving beyond it. Four interrelated challenges textured the experience: maintaining an identity beyond the medical, contending with the stigma of difference, addressing the invisible work of day-to-day living, and balancing independence and dependence. Implications for practice are discussed.

Journal article Full text available online for free

Breaking news

Author:
HESLOP Pauline
Journal article citation:
Community Care, 13.11.03, 2003, p.36.
Publisher:
Reed Business Information

Reports on a study of how short-break services can prioritise children's views and give their families respite from caring.

Journal article

Take your seats

Author:
LAWTON Smith
Journal article citation:
Mental Health Today, June 2003, pp.8-9.
Publisher:
Pavilion
Place of publication:
Hove

Looks at the election of the UK's first ever disabled people's parliament, an initiative led by the British Council of Disabled People. The aim is for the parliament to be a collective national voice feeding into national issues.

Journal article Full text available online for free

Working with disabled people in consultation and research

Authors:
BARNES Di, KENDALL Marilyn
Journal article citation:
Research Policy and Planning, 19(1), 2001, pp.17-24.
Publisher:
Social Services Research Group

When a consultation exercise is designed with disabled people, the result will be influenced by all the participants' experience of consultation and their knowledge and understanding of research. The exercise will also be a product of particular place and time. These influences are explored in a case study carried out by the authors in partnerships with disabled people; they adopted a pluralistic and flexible approach to consultation, which gave information as well as sought it, and included a commitment to developing community skills with an eye on succession.

Journal article

The meaning of disability

Author:
VARO-WATSON David
Journal article citation:
Professional Social Work, April 2001, pp.16-17.
Publisher:
British Association of Social Workers

The author, a disabled service user, discusses definitions given to disability, and explains why care managers need to provide a positive baseline for disabled service users.

Journal article

Wanted caring employees

Author:
VALIOS Natalie
Journal article citation:
Community Care, 1.6.00, 2000, pp.20-21.
Publisher:
Reed Business Information

Disabled people can exercise more control over their care by using direct payments. The author talks to users about the difference that direct payments have made in their lives.

Book

The Northern Ireland Disability Council annual report for 1998-1999 laid by the Department of Health and Social Services before the Assembly ...

Author:
NORTHERN IRELAND DISABILITY COUNCIL
Publisher:
Stationery Office
Publication year:
1999
Pagination:
36p.
Place of publication:
Belfast

Contains information on: the role and functions of the Northern Ireland Disability Council; the changing environment; monitoring the law; public consultations; and issues raised.

Book

The disability audit: RADAR's survey of disability organisations' views on Labour's first 18 months in Government

Author:
ROYAL ASSOCIATION FOR DISABILITY AND REHABILITATION
Publisher:
Royal Association for Disability and Rehabilitation
Publication year:
1998
Pagination:
14p.
Place of publication:
London
Book

Disability, benefits and employment: a report of research carried out by the Policy Studies Institute on behalf of the Department of Health; an evaluation of Disability Working Allowance

Authors:
ROWLINGSON Karen, BERTHOUD Richard
Publisher:
Stationery Office
Publication year:
1996
Pagination:
243p.,tables,bibliog.
Place of publication:
London

Report presenting the findings of research carried out as part of the Department of Social Security's evaluation of Disability Working Allowance (DWA), a cash benefit designed to help disabled people to work. The research used large scale surveys and qualitative interviews to analyse how far DWA is meeting its objectives. The role of DWA is explored against the background of the overall system of disability and incapacity benefits, and the wider labour marked experiences of disabled people.

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