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Journal article

Being, belonging, and becoming: examining rehabilitation service delivery to children with disabilities and their families

Authors:
HAYASHI Reiko, FROST Caren J.
Journal article citation:
Journal of Social Work in Disability and Rehabilitation, 4(4), 2005, pp.39-56.
Publisher:
Taylor and Francis
Place of publication:
Philadelphia, USA

This article reports on a study conducted at the rehabilitation unit of a children's hospital in the United States to explore the perspectives of children with disabilities and their guardians on quality-of-life issues. Both quantitative and qualitative methods were employed to elicit this information. The results revealed that socialisation is the most important quality-of-life issue for children with disabilities. The study also indicated a need for social workers to create a support system for the guardians of those children with disabilities receiving rehabilitation therapies. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street,  Binghamton, NY 13904-1580).

Book

Disabled children at the interface: co-operative action between public authorities and the reduction of social exclusion

Authors:
PETRIE Pat, et al
Publisher:
University of London. Institute of Education
Publication year:
2003
Pagination:
39p.
Place of publication:
London

This volume reports a research study that investigates how different local agencies work together - or fail to do so - in their approach to disabled children and their families. The challenge lies in keeping the whole child in view, the child who is more than a patient, pupil or social work client, and more than the sum of these parts. The study takes a broad view of local policy and practice. Key areas covered include: emerging trends in interagency working; difficulties in interagency work and some solutions; and case studies illustrating the lived experience of children and parents as they are affected by interagency work or its failure.

Book Full text available online for free

One town for my body, another for my mind: services for people with physical impairments and mental health support needs

Author:
MORRIS Jenny
Publisher:
Joseph Rowntree Foundation
Publication year:
2004
Pagination:
76p.
Place of publication:
York

Reports on high levels of dissatisfaction among mental health services users with physical impairments. Two-thirds reported difficulty accessing services. Key concerns included lack of assistance, accessible environments, withdrawal of medication for physical impairment on admission and non-availability when needed, community mental health workers' unfamiliarity with impairments, lack of a co-ordinated approach by GPs and psychiatrists, and fragmented physical/mental needs. People wanted to be seen as whole, with services and professionals communicating and working together. Concludes that services should work together to prevent needs being fragmented by professional and service boundaries.

Journal article

Disability

Author:
THORNTON Patricia
Journal article citation:
Research Matters, 2004, 2004, pp.17-22.
Publisher:
Community Care

Part of a special issue focusing on the Children Bill and the green paper, Every Child Matters, arguing that the latter is short on solutions to support disabled children's parents but some schemes are pointing the way. Argues the paper could be more sensitive to circumstances and needs: disabled children who attend special schools some distance from home; the effect of inadequate transport; care before and after school; parents in work taking jobs below their skill levels; better integration - families complain of having to repeat their story to different people; one main contact; and schemes rooted in established multi-agency working.

Journal article

One town for my body, another for my mind

Author:
MORRIS Jenny
Journal article citation:
Openmind, 129, September 2004, p.13.
Publisher:
MIND

Reports on high levels of dissatisfaction among mental health services users with physical impairments. Two-thirds reported difficulty accessing services. Key concerns included lack of assistance, accessible environments, withdrawal of medication for physical impairment on admission and non-availability when needed, community mental health workers' unfamiliarity with impairments, lack of a co-ordinated approach by GPs and psychiatrists, and fragmented physical/mental needs. People wanted to be seen as whole, with services and professionals communicating and working together. Concludes that services should work together to prevent needs being fragmented by professional and service boundaries.

Journal article

Working partnerships? A critique of the process of multi-agency working in services to disabled children with complex health care needs

Authors:
TOWNSLEY Ruth, WATSON Debby, ABBOTT David
Journal article citation:
Journal of Integrated Care, 12(2), April 2004, pp.24-34.
Publisher:
Emerald

Recent government policies in relation to children stress the importance of service integration and partnership working, with particular emphasis on combating social exclusion. With reference to findings from a three year empirical study, this article examines some key elements of the process of multi-agency working in services for disabled children with complex health care needs. Highlights some of the barriers to effective partnerships and lists some pointers for policy and practice.

Journal article

Enabling change

Author:
HOLMSTROM Radhika
Journal article citation:
Care and Health Magazine, 16, July 2002, pp.15-17.
Publisher:
Care and Health

Looks at the issues facing the External Working Group on disabled children which is helping to feed into the Children's National Service Framework.

Journal article

Easing the pain of transition

Author:
VALIOS Natalie
Journal article citation:
Community Care, 28.9.00, 2000, pp.32-33.
Publisher:
Reed Business Information

Your disabled child has grown up and is about to leave school. His or her world of support is about to end and another start. This article looks at one Southampton parent's stressful experience when responsibility changed from children's to adult services.

Journal article Full text available online for free

Care of a severely handicapped person over 8 years: implications for the future pattern of community care

Authors:
ELLIS P.F., FRANK A.O.
Journal article citation:
British Journal of General Practice, 40(338), September 1990, pp.283-385.
Publisher:
Royal College of General Practitioners

Describes co-operation between home care workers, care attendants and community nurses and case management by a key worker.

Book

A resource pack: developing a key worker service for families with a disabled child

Authors:
MUKHERJEE Suzanne, et al
Publisher:
Care Co-ordination Network UK
Publication year:
2006
Pagination:
91p.
Place of publication:
York

This resource pack offers research-based advice on how to develop and implement a key worker services for families with a disabled child. The pack takes the reader through each phase of the process, with examples of activities and exercises which can assist in planning and decision making for each phase. Issues addressed include: what the services should look like; managing change; how to support the service; and facilitating multi-agency steering groups. The pack is aimed at managers and development workers within education services, health services, social services and voluntary organisations.

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