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Book

Family based respite care for children with a disability

Author:
KING'S FUND CENTRE
Publisher:
Kings Fund Centre
Publication year:
1987
Pagination:
44p., bibliog.
Place of publication:
London
Journal article

Stranded in the middle: transition services lacking for young disabled people

Author:
SALE Anabel Unity
Journal article citation:
Community Care, 3.08.06, 2006, pp.30-31.
Publisher:
Reed Business Information

Disabled young people and their families have long criticised services that are intended to ease their transition to adult care. However, there are signs that the issue is at last gaining political currency. There are 770,000 disabled children in the UK. More than 90 per cent of disabled children live at home and are supported by their families. One in 13 families get services from their local social services. 25 per cent of families with disabled children say services are poor or lack co-ordination.

Journal article

Young Care-Givers- Children of disabled persons

Author:
URDANC Kristina
Journal article citation:
Ljetopis Studijskog Centra Socijalnog Rada, 10(2), 2003, pp.187-195.
Publisher:
University of Zagreb
Place of publication:
Zagreb

The author looks at the situation of under-aged children of disabled family members who, due to insufficient social support and care, have been made the main and sometimes only source of assistance to their parents or family members. Although results of systematic research about the kind of influence such demands and family obligations have had on the quality of life and experience of these children do not exist, practice has confirmed that the community’s deficiencies in caring for its disabled members often bring about the cummulation of various risk and stress factors in the growing and maturing process of disabled persons’ children. The author also highlights the importance of conducting research of this group in order to organise more effective and better established support. [Article in Croatian].

Book

You're on the waiting list: families waiting for respite care services: fourth interim report

Authors:
ROBINSON Carol, STALKER Kirsten
Publisher:
Norah Fry Research Centre
Publication year:
1991
Pagination:
37p.
Place of publication:
Bristol

Many families experience serious problems finding suitable services which can cater for both their child's complex health needs and their own need for significant levels of support. This paper highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.

Journal article

Debt and disability

Author:
-
Journal article citation:
Childright, 211, November 2004, pp.4-5.
Publisher:
Children's Legal Centre

In November 2004 Contact a Family and the Family Fund published a report entitled 'Debt and disability: the impact of debt on families with disabled children'. There are 70,000 disabled children in the UK today and the report identifies that on all indicators of debt families with children suffering from disabilities have higher debts than the general population. It also highlights that for families from black and ethnic minority backgrounds the problem is more severe. The study found that these families have more serious financial difficulties, at a lower level of debt, than their counterparts. This is possibly due to a less accepting attitude towards debt and also differences in pay.

Book

Finding a voice

Authors:
BURKE Peter, MONTGOMERY Sue
Publisher:
Venture Press
Publication year:
2003
Pagination:
39p.
Place of publication:
Birmingham

This book recognises the importance of supporting the siblings of disabled children. The research report provides a further source of evidence underpinning work in supporting services to disabled children and their families.

Journal article Full text available online for free

Breakthrough

Authors:
WEATHERLY Helen, et al
Journal article citation:
Community Care, 7.11.02, 2002, pp.34-35.
Publisher:
Reed Business Information

Investigates whether paying for short-break schemes for families with disabled children improves services.

Journal article

Helping the children face an uncertain future

Author:
BOND Henrietta
Journal article citation:
Community Care, 20.1.00, 2000, pp.28-29.
Publisher:
Reed Business Information

Children with a degenerative condition have needs that change as their illness progresses, and their families need a lot of support. The author talks to the workers at a project that aims to help.

Book

Complex numbers: families with more than one disabled child

Author:
LAWTON Dot
Publisher:
University of York. Social Policy Research Unit
Publication year:
1998
Pagination:
49p.,diags.,bibliog.
Place of publication:
York

Research study looking at families with more than one disabled child. Focuses on: epidemiology; the characteristics of families with more than one child; and support for families with more than one child.

Journal article

Polish social services to families of children with disabilities: practice in an emerging setting

Authors:
GAMMON Elizabeth Ann, DZIEGIELEWSKA Jolanta
Journal article citation:
International Social Work, 40(4), October 1997, pp.393-406.
Publisher:
Sage

Discusses a pilot study of the roles that social workers in Poland perform as they attempt to assist families whose children have disabilities. Barriers to service provision were examined, as were the cultural, economic and political frameworks in which those services are provided. Results demonstrate the emergence of a dynamic group of workers interested in clarifying the mission of their profession and in educating the public about the services in can provide to families.

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