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Journal article

Drifting down the Gulf Stream: navigating the cultures of disability studies

Author:
MEEKOSHA Helen
Journal article citation:
Disability and Society, 19(7), December 2004, pp.721-733.
Publisher:
Taylor and Francis,

Explores divergent theoretical developments in UK and US disability studies and posits some explanations for these differing trajectories. History, politics, space, place and the search for identity have all played important roles. These emergent and hotly debated developments add a wealth of material to the epistemological project. The question remains as to what explanatory power discourses developed within western metropolitan national cultures have for exploring the experience of disability in cultures on the peripheries.

Journal article

Capabilities and disability: the capabilities framework and the social model of disability

Author:
BURCHARDT Tania
Journal article citation:
Disability and Society, 19(7), December 2004, pp.735-751.
Publisher:
Taylor and Francis,

Seeks to illuminate the complementarity between the capabilities framework, developed by Amartya Sen and others, and the social model of disability. Common themes include the relationship between social barriers and individual limitations, the importance of autonomy and the value of freedom, and dissatisfaction with income as a measure of well-being. Bringing the 2 approaches together has implications for analysis (for example in identifying poverty or disadvantage), and for policy, which are briefly illustrated. Concludes that the capabilities framework provides a more general theoretical framework in which to locate the social model of disability, without compromising any of its central tenets; and the social model provides a thorough-going application of the capabilities framework. Each can benefit from exposure to the other.

Journal article

Failure to comply with the DDA duties

Authors:
WILLIAMS Peter J.G., GOODING Caroline
Journal article citation:
Access by Design, 101, Winter 2004, pp.6-8.
Publisher:
Centre for Accessible Environments

Explores the consequences of breaching Part 3 of the Disability Discrimination Act, considering the nature of the obligations the Act imposes, the remedies the courts have, and the powers of the Disability Rights Commission and how the may be exercised in the future. Considers the law in England and Wales only.

Book

Free2pee: lifting the lid on bad access

Authors:
CROOKS Andrew, MAY Paul, MCGINLAY Kate
Publisher:
SCOPE
Publication year:
2004
Pagination:
28p.
Place of publication:
London

The Free 2 Pee campaign is encouraging as many people  to complete a short access survey. Free 2 Pee highlights that when a disabled person visits a restaurant, cinema, tourist attraction, sporting venue or bar they have a right to use a toilet. But many building are being caught short by not providing proper facilities.

Book

Home bound: growing up with a disability in America

Author:
IRWIN Cass
Publisher:
Temple University Press
Publication year:
2004
Pagination:
223p.
Place of publication:
Philadelphia, PA

The author tells of the journey that transformed her from a young girl too timid to ask for help to a community activist and writer who speaks forcefully about the needs of people with disabilities. As a young girl she was taken to Warm Springs, Georgia, where she learned about living as a disabled person and found a hero in Franklin Delano Roosevelt, the famously if silently disabled president. In time, her keen sense of injustice gave her the courage to fight for a college education. That personal victory emboldened her to find the means to live independently, but it also persuaded her that political work is the key to enabling all people with disabilities to live fulfilling lives.

Journal article

Remembering with or without awareness through poetry to better understand aging and disability

Author:
MALEKOFF Andrew
Journal article citation:
Journal of Gerontological Social Work, 44(1/2), 2004, pp.255-264.
Publisher:
Taylor and Francis
Place of publication:
Philadelphia, USA

The author offers three poems that are evocative of his experience as a child with his grandfathers and their disabilities; and as an adult attempting to deal with the impending death of his father. The author aims that the first poem will reinforce the idea that connecting with personal memories of aged and disabled family members might support interactions with people who are aged and disabled in the here and now. The final two poems aim to encourage those working with family members of seriously ill aged people in a hospital setting to better understand the stress of decision-making and to consider devising short-term mutual aid groups to support them during a time for which no preparation exists.

Journal article

Overlaps and contradictions between queer theory and disability studies

Author:
SHERRY Mark
Journal article citation:
Disability and Society, 19(7), December 2004, pp.769-783.
Publisher:
Taylor and Francis,

This paper begins by exploring similarities in the experiences of queers and disabled people, such as familial isolation, high rates of violence, stereotypes and discrimination, and the difficulties associated with passing and coming out. Rejecting pathologisation and politicising access as well as using humor and parody as political tools have been important for both movements. It then considers similarities and differences in Queer Theory and Disability Studies as intellectual disciplines, examining their debt to feminism, opposition to hegemonic normalcy, strategic use of universalist and minority discourses, deconstruction of essentialist identity categories and use of concepts such as performativity.

Journal article

'Pick me up and not a down down, up up': how are the identities of people with aphasia represented in aphasia, stroke and disability websites?

Authors:
MOSS Becky, et al
Journal article citation:
Disability and Society, 19(7), December 2004, pp.753-768.
Publisher:
Taylor and Francis,

Suddenly acquiring a permanent impairment means a person must learn to think differently, and he or she does so partly by telling stories. The most commonly told illness narratives are 'restitution' narratives. People with aphasia (a communication impairment commonly following stroke) surfed aphasia, stroke and disability websites, read the personal stories attached to them, and created their own narratives in response. Charitable and disability-related websites excluded people with aphasia through their tone, content and narrative 'voice'. Engagement with some websites was contingent on subscribing to a specific perspective on aphasia. Personal narratives attached to charitable websites were seen to reflect the organisational stance. In particular, idiosyncracies of aphasic language were often eliminated. When participants constructed their own web pages they replicated the stylistic traits that had previously been criticised. Identities are mercurial and difficult to pinpoint. Further work with people with aphasia using videoclips, soundclips and other non-text-based techniques to create illness narratives is planned.

Journal article

Community care in Taiwan: mere talk, no policy

Authors:
CHOU Yueh-Ching, KROGER Teppo
Journal article citation:
Social Work in Mental Health, 2(2/3), 2004, pp.139-155.
Publisher:
Taylor and Francis
Place of publication:
Philadelphia, USA

This article explores the policy definitions and the funder roles of central and local governments in community care in Taiwan. The notion of community care has been adopted in Taiwan following the model of Hong Kong but the main question of the article is whether this has resulted in actual service provisions at the community level, forming an alternative to institutional care. The data has been collected from several sources: policy documents, official statistics, surveys, general reports, funding provision reports, and empirical studies. The results show that neither central nor local authorities are seriously involved in caring for elderly people or persons with disabilities in Taiwan's communities. In Taiwan, community care for these groups of people still means, in practice, informal care provided by female family members without any support from public policies. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580)

Journal article

The influence of nutritional health on physical function: a critical relationship for homebound older adults

Author:
SHARKEY Joseph R.
Journal article citation:
Generations, 28(3), 2004, pp.34-38.
Publisher:
American Society on Aging

Nutrition-related determinants have been identified among modifiable factors associated with increased physical disability. Reports on a study of homebound older adults receiving home-delivered meals in North Carolina. Concludes the development of physical disability is multidimensional and new evidence integrates nutritional health into the disability paradigm and emphasises the role of food intake in the development of health-related disability. Discusses implications and remedies.

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