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Journal article

Towards an affirmation model of disability

Authors:
SWAIN John, FRENCH Sally
Journal article citation:
Disability and Society, 15(4), June 2000, pp.569-582.
Publisher:
Taylor and Francis,

Argues that a new model of disability is emerging within the literature by disabled people and within disability culture, expressed most clearly by the Disability Arts Movement. This view has arisen in direct opposition to the dominant personal tragedy model of disability and impairment, and builds on the liberatory imperative of the social model. In this analysis the affirmation model addresses the limitations of the social model through the realisation of positive identity encompassing impairment, as well as disability.

Book

From a different viewpoint: the lives and experiences of visually impaired people

Authors:
FRENCH Sally, SWAIN John
Publisher:
Jessica Kingsley
Publication year:
1997
Pagination:
80p.,list of orgs.,bibliog.
Place of publication:
London

Workbook designed to help young people explore the lives and experiences of visually impaired people. Uses case studies and interviews and explores issues around disability in general.

Book

Confronting disabling barriers: towards making organisations accessible

Authors:
SWAIN John, GILLMAN Maureen, FRENCH Sally
Publisher:
Venture Press
Publication year:
1998
Pagination:
84p., bibliog.
Place of publication:
Birmingham

There are many different types of barriers which prevent disabled people's full and equal participation in society: not only physical barriers created by lack of access to buildings and transport systems, but also social and economic barriers resulting from unequal access to education, employment and services; lack of representation and involvement in local planning and politics; and a limited understanding of the nature of disablement.

Journal article

Towards a social model approach to counselling disabled clients

Authors:
SWAIN John, GRIFFITHS Carol, HEYMAN Bob
Journal article citation:
British Journal of Guidance and Counselling, 31(1), February 2003, pp.137-152.
Publisher:
Taylor and Francis

The social model of disability has emerged over the past 30 years in Britain to challenge the dominant individual, particularly medical and tragedy, models. This social model is borne from the experiences of disabled people and essentially defines disability as the discrimination faced by people with impairments. This paper explores the possible conflicts between some counselling approaches that can individualise and personalise problems and disability as a political issue. Drawing on research with counsellors and disabled clients, we illustrate the social construction of disability as an individualised problem within the counselling process. Considering the implications for counselling practice, we argue for an approach to counselling which recognises the social model of disability as the basis for social change.

Journal article

What's so special? Teachers models and their realisation in practice in segregated schools

Authors:
ADAMS Joan, SWAIN John, CLARK Jim
Journal article citation:
Disability and Society, 15(2), March 2000, pp.223-245.
Publisher:
Taylor and Francis,

The concept of 'special' has played a crucial role in the development of educational policy and practice, and the meaning of the term has been the subject of far-reaching debates and controversy. This paper is based on research which explored the meaning of 'specialness' in theory and practice from the point of view of practitioners working in segregated schools, providing education for young people designated as having moderate and severe learning difficulties. The research demonstrates the articulation of the individual model of special in teachers' thinking about pupils, themselves and their relationships with pupils, and also in the learning environment provided for different categories of young people. The authors argue that the dominant discursive practices of practitioners construct and maintain 'otherness' in special education, and pre-empt alternative discourses.

Journal article

'Just when you think you got it all sorted...': parental dilemmas in relation to the developing sexuality of young profoundly disabled people

Authors:
SWAIN John, THIRLAWAY Carole
Journal article citation:
British Journal of Learning Disabilities, 24(2), 1996, pp.58-64.
Publisher:
Wiley-Blackwell

Sexuality is a neglected topic in the literature focusing on young profoundly disabled people. For parents and formal carers who work with parents and young people themselves, however, sexual development and identity pose fraught and complex challenges in understanding and addressing young people's needs. This paper is based on qualitative research which explored parents' experiences, feelings and understandings and the responses of formal carers to parents' perspectives. The parents faced contradictory pressures to deny and not to deny sexuality. Formal carers drew on beliefs about 'good parenting' in reactions to the position of parents. Both groups confronted real dilemmas with young people who are incapable, and may never be capable, of informed consent of self-determination in sexual relationships.

Book

Disabling barriers: enabling environments

Editor:
SWAIN John
Publisher:
Sage
Publication year:
2004
Pagination:
306p.,bibliogs.
Place of publication:
London

In addition to analysing the barriers that disabled people encounter in education, housing, leisure and employment, this edition has new chapters on: international issues; diversity among disabled people; sexuality; and bioethics. The primary aim of this volume is to reflect changes over the past ten years since the first edition. Despite major changes in legislation, for instance, the dominant picture remains one of discrimination, prejudice, injustice and poverty, often rationalised on the grounds of supposed progress for disabled people. Part I charts the continuing development of a social approach to understanding disability and impairment that emanates from the lived experience of injustice and the establishment of a collective identity of disabled people. Part II addresses ‘image’ at its broadest – as encompassed by the notion of identity. The disabling barriers analysed in Part III are those that prevent the full participative citizenship of disabled people, that marginalise and segregate people in every aspect of social life, that deny access to and participation in organisations and that preclude equal rights. Part IV turns to the help and support provided for and by disabled people. Disabling barriers here are those faced by disabled people within the service providers’ models. Finally the reader concludes by focusing on possibilities for creating full democratic participation within the context of a rapidly changing social world.

Journal article

Parent-professional power relations: parent and professional perspectives

Authors:
SWAIN John, WALKER Caron
Journal article citation:
Disability and Society, 18(5), August 2003, pp.547-560.
Publisher:
Taylor and Francis,

This paper reflects on a small-scale qualitative research study around the establishment of a conductive education centre in a city in the north of England. From the outset, the centre's existence presented a challenge to existing services because the monopoly control of existing professional practice and policy was under question. The research does not offer an evaluation of the effectiveness of conductive education. The task was to examine the centre's provision in relation to existing statutory services, and provide a forum for informed discussion relating to the provision and organisation of multi-professional services for disabled children. The paper suggests that, although there was a mutual tension between the centre and professionals, a number of pointers could become a starting point for a more equitable partnership between parents and existing service providers. The authors also argue, however, that such a notion of partnership is limited without the voices of disabled people.

Book

Controversial issues in a disabling society

Authors:
SWAIN John, FRENCH Sally, CAMERON Colin
Publisher:
Open University Press
Publication year:
2003
Pagination:
198p.,bibliog.
Place of publication:
Buckingham

Examines the consequences of the social model of disability. From this point of view society is itself at fault, that is a disabling society that is geared to, built for and by, and controlled by non-disabled people. This exclusion of disabled people is created and constructed in every aspect of living including language, thinking, the built environment and power structures and regulations. This model asserts that whether one is disabled or not, one lives within a 'disabling society'.

Book

Disabling barriers: enabling environments

Editors:
SWAIN John, et al
Publisher:
Sage/Open University
Publication year:
1993
Pagination:
319p.,bibliogs.
Place of publication:
London

Argues that 'disability' is caused by the way society is organised and that numerous social, structural and economic barriers deny people with disabilities the opportunity of full citizenship and equal opportunities. Critically reviews professional practice and describes alternative models of support which give disabled people control over their own lives.

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