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Quality in services for disabled children and their families: what can theory, policy and research on children's and parents' views tell us?
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- Children and Society, 15(4), September 2001, pp.237-252.
- Publisher:
- Wiley
This article seeks to define 'quality' in services for disabled children and their families. Theoretical models are initially reviewed and then considered in relation to key policy guidelines, empirical data drawing upon parents' and children's experiences of 'quality' in services are presented. Demonstrates the many different levels within the concept of 'quality' and highlights the importance of recognising and respecting that children and parents frequently value different aspects of 'quality'.
Participation of disabled children and young people in decision making within social services departments: A survey of current and recent activities in England
- Authors:
- FRANKLIN Anita, SLOPER Patricia
- Journal article citation:
- British Journal of Social Work, 36(5), June 2006, pp.723-741.
- Publisher:
- Oxford University Press
A survey of all social services departments in England was undertaken in order to identify and investigate current work concerning the participation of disabled children within decision making regarding their own care and in service development. Developing a culture of, and good practice in, children’s participation is integral to government policy. Results demonstrate that disabled children are being involved in a range of decision-making areas; however, participation is not yet embedded or sustained across all social services departments, and the involvement of disabled children at a higher strategic level is still rare. The participation of disabled children needs further development including more evidence on which factors can support and promote disabled children’s effective participation.
Involving children and young people with a chronic illness or physical disability in local decisions about health services development: phase one: report on national survey of health authorities and NHS trusts
- Authors:
- LIGHTFOOT Jane, SLOPER Patricia
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2001
- Pagination:
- 57p.
- Place of publication:
- York
This report describes the first phase of a research project funded by the Department of Health's Health in Partnership Initiative. The overall aim of the Initiative is to contribute to the knowledge base for lay involvement in health care decision making. This study is investigates the involvement of children and young people, in particular those who have a chronic illness or physical disability, since this is a growing group and includes heavy and long-term users of a wide range of health services. The focus of the research is on children's involvement in decision making about service development, as opposed to decisions about their own treatment, care and/or support.
Participation of disabled children in individual decisions about their lives and in public decisions about service development
- Authors:
- CAVET Judith, SLOPER Patricia
- Journal article citation:
- Children and Society, 18(4), September 2004, pp.278-290.
- Publisher:
- Wiley
A literature review was carried out to establish what evidence exists about disabled children's participation in decision-making, both regarding their own lives and about the shape of service delivery. There is evidence that disabled children hold and can express views, given the right environment. However, participation of disabled children needs further development. Measures proposed include addressing organisational systems so that they promote participation, extending advocacy services, the adoption of inclusive approaches and staff training, plus education and information for disabled children and their parents. There remain significant gaps in the research evidence available.
Quality indicators: disabled children's and parents' prioritisations and experiences of quality criteria when using different types of support services
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- British Journal of Social Work, 33(8), December 2003, pp.1063-1080.
- Publisher:
- Oxford University Press
Current health and social care policy seeks to develop and refine standards of service quality. However, policies have so far largely focused upon statistically based service output indicators. Recognizing the importance and yet limitations of this, especially in services for disabled children and their families, this paper draws upon qualitative and quantitative data to explore indicators that are meaningful and relevant to disabled children and their families. Results demonstrate the need to look beyond a generic family-based perception of service quality, as children and parents value different aspects of service quality and prioritize different indicators when using different types of services. Although some indicators are regarded as 'core' quality indicators, irrespective of service type, others are only prioritized for specific types of services.
Multi-agency care coordination and key worker services for disabled children
- Authors:
- SLOPER Patricia, et al
- Journal article citation:
- Journal of Integrated Care, 11(1), February 2003, pp.9-15.
- Publisher:
- Emerald
The authors describe the rationale for key workers services for disabled children, factors to consider in developing such services, the role of key workers, how a key worker service is operating in Leeds and the impact it has had for families who received it.
Young disabled people and sport
- Authors:
- FINCH Naomi, LAWTON Dot, WILLIAMS Julie, SLOPER Patricia
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2001
- Pagination:
- 4p.
- Place of publication:
- York
This research commissioned by Sport England sets out to identify: current rates of sporting participation by young disabled people; what motivates young disabled people to undertake sport; barriers to their participation in sport; and to compare these results with findings from a 1999 survey of all young people.
Information that informs rather than alienates families with disabled children developing a model of good practice
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- Health and Social Care in the Community, 10(2), March 2002, pp.74-81.
- Publisher:
- Wiley
The provision of information and the importance of keeping families informed is frequently viewed as a significant factor within both the concept of empowerment and the facilitation of enabling and participatory processes for service users and their families. This article looks at how parents would like to receive this information and also discusses the empowering potential of user-friendly information. The article draws on data collected from a focus group discussions with parents caring for children with a range of disabilities or chronic illness. In particular it examines the criteria by which parents judge the quality of information and their ideas as to what constitutes good practice, especially in terms of how information is presented, its content and the way it is delivered. Using these ideas and criteria, the paper begins to develop a model of good information practice that is both three-dimensional and personally interactive.
Improving communication between health and education for children with chronic illness or physical disability
- Authors:
- MUKHERJEE Suzanne, LIGHTFOOT Jane, SLOPER Patricia
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2000
- Pagination:
- 164p.
- Place of publication:
- York
Report of project based in York intended to improve communication between health and education staff about children with a chronic illness and physical disability. Health and education staff, parents and children were surveyed and an action plan for creating better systems for communication drawn up.
Service support for children with a chronic illness or physical disability attending mainstreams schools
- Authors:
- LIGHTFOOT Jane, MUKHERJEE Suzanne, SLOPER Patricia
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 1998
- Pagination:
- 183p.,bibliog.
- Place of publication:
- York
Aims to identify needs for NHS support for schools as expressed by children with special health needs, their parents and teachers, and to make recommendations for good practice. Commences with a review of relevant literature. Examines results of focus group discussions, which raised issues relating to school absence, exclusion from school life, support from peers and teachers, and medical care. Finally reports on conclusions arising from workshops with managers and professionals from education and health care.